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Old Mar 7th, 2017, 15:34 PM   11
SarahBear
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Thanks everyone. At this point, we're just continuing life as normal. I'll post updates as I have them.



 
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Old Mar 8th, 2017, 08:37 AM   12
jd83
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I don't have any advice, as the only family member I have who has a seizures has epilepsy, and she was in her 40s before it was even diagnosed, so I just have no idea with Violets age beyond febrile, which they seem to have ruled out. Thoughts are with you though, I'm sure you guys are stressed waiting for answers. Hugs.



 
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Old Mar 8th, 2017, 15:23 PM   13
SarahBear
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So I can't find much about febrile seizures starting around age 4, but I have found things that say "onset after 7 is unusual," which indicates that it's not that crazy for febrile seizures to start at age 4. It also says that seizure as the first sign of fever is a risk factor for repeat febrile seizures. That's consistent with our experience with Violet. We knew she had a cold the first time, but she didn't have a fever until the day after the seizure. The second time, the seizure was the first sign. Same with the third except that the fever came and went very quickly. Her temperature was normal several hours later.



 
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Old Mar 8th, 2017, 15:27 PM   14
SarahBear
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I don't know if they "ruled out" febrile seizures, but there were definite questions considering the late onset and frequency. Either way, we need to see a specialist.



 
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Old Mar 9th, 2017, 07:04 AM   15
jd83
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Quote:
Originally Posted by SarahBear View Post
I don't know if they "ruled out" febrile seizures, but there were definite questions considering the late onset and frequency. Either way, we need to see a specialist.
My bad, I misread that.



 
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Old Mar 21st, 2017, 22:35 PM   16
SarahBear
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Well it's epilepsy. The doctor thought it was a seizure disorder and the two seizures she had recently, definitelly confirmed that. One was on the 20th right before bed and one was on the 21st, before she had a chance to eat beakfast. Neither was accompanied by a fever. We will definitelly be looking at medication.



 
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Old Mar 22nd, 2017, 05:27 AM   17
lau86
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x hope you are all ok with the news



 
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Old Mar 22nd, 2017, 06:20 AM   18
gingmg
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How are you doing? How is violet? Glad you have some answers, sorry that they probably weren't the ones you were looking for.



 
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Old Mar 22nd, 2017, 08:11 AM   19
Eleanor ace
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Old Mar 22nd, 2017, 11:06 AM   20
sophxx
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Glad you got some answers and now can start treatment



 
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