Reply
 
LinkBack Thread Tools Search this Thread
Old Mar 4th, 2017, 23:43 PM   1
SarahBear
Mum (Mom)
BnB Addict
 
 
Join Date: Oct 2011
Posts: 7,657

Seizures - What the heck is going on?


Violet just had her third seizure since January and 2nd seizure in a week. What the heck is going on? With the first one, it seemed like a fluke. She had multiple infections and was on a new antibiotic and got a high fever the next day. But then she had another short seizure last week on Friday. It only lasted 15 to 30 seconds and wasn't too intense. After the seizure, we checked her temperature and it was a bit high. Now, she just had another one a week later (Saturday). I wasn't there for it, but her Nana said it was grand mal. Her temperature was elevated (100.8), but not high enough to add up to a febrile seizure.

With the first one, she went to the ER and after the second we scheduled an appointment with her doctor. The appointment is Monday. We will be referred to a specialist, but I don't know how long that process takes.

Has anyone been in a similar position? Do you think there's a good chance this is a seizure disorder? What else could it be? It isn't looking like febrile seizures but I don't know much about seizures, so I guess that's possible?

Knowing that I'm seeing a doctor soon and am not relying on the opinions of people on the internet, what do you all think about what could be happening?



 
Status: Offline
 
Old Mar 5th, 2017, 07:02 AM   2
Zephram
Mum (Mom)
BnB Addict
 
Join Date: May 2012
Location: NZ
Posts: 3,312
That sounds really scary! I hope she's okay.

I'm not a doctor either but I thought febrile seizures were to do with how fast a temperature rises rather than the actual height of the temperature. Since she's been sick every time it's happened, it would seem the logical explanation.

I hope her appointment points you in the right direction.



 
Status: Offline
 
Old Mar 5th, 2017, 08:33 AM   3
Teri7489
Waiting To Try (WTT)
Chat Happy BnB Member
 
 
Join Date: Nov 2012
Location: Central scotland
Posts: 2,242
Very scary for all of you. I hope you get a quick referral!

Seizures can happens in children due to temperature but also blood sugar dropping low. Does she have any dietry issues? Any viral issues recently where she hasn't been eating great that could be the cause of it? Lots of children have episodes of seizures that simply stop happening, others have tests and it results in a diagnosis of epilepsy, which sounds scary, but can be managed. Hopefully you get her seen real soon and can get all your questions answered but someone who has all the answers x



 
Status: Offline
 
Old Mar 5th, 2017, 08:40 AM   4
BunnyN
Mum (Mom)
Chat Happy BnB Member
 
Join Date: Jul 2012
Location: Portugal
Posts: 2,367
Hope you get it sorted soon. I thought fever was only a problem when it gets really high but maybe some children are more sensitive. Or could it be a combination of issues? I think a fever can trigger epileptic fits.



 
Status: Offline
 
Old Mar 5th, 2017, 11:32 AM   5
zorak
Mum (Mom)
Chat Happy BnB Member
 
 
Join Date: Jan 2013
Posts: 2,021
Hi, two of my siblings have seizure disorders. One is epileptic and the other has a rare neurological condition. That being said seizures in young kids can be caused by any number of things. Blood sugar levels, viral illness, variance in temperature, dehydration etc.

My only word of caution is always to get her seen straight away even if she seems fine after. I wouldn't wait on scheduled doctors appointments especially when you don't know the cause.



Status: Offline
 
Old Mar 6th, 2017, 15:38 PM   6
SarahBear
Mum (Mom)
BnB Addict
 
 
Join Date: Oct 2011
Posts: 7,657
Well, her appointment was today. The doctor said the pattern is atypical for febrile seizures and she called the neurologist before we left to check on whether or not she should do any testing and to get us a referral. There was no additional testing and we'll have to travel to the specialist (3.5 hours away) sometime in the next couple weeks. No appointment has been set yet.



 
Status: Offline
 
Old Mar 6th, 2017, 18:12 PM   7
gingmg
Mum (Mom)
BnB Addict
 
 
Join Date: Apr 2013
Posts: 2,727
Thinking of you and hope everything is ok!



Status: Offline
 
Old Mar 7th, 2017, 02:12 AM   8
AnneD
Other
 
 
Join Date: Jun 2012
Posts: 1,939
That's scary. I hope you get an appointment through soon and the specialist finds out what's causing Violet's seizures.



Status: Offline
 
Old Mar 7th, 2017, 05:08 AM   9
BunnyN
Mum (Mom)
Chat Happy BnB Member
 
Join Date: Jul 2012
Location: Portugal
Posts: 2,367
Hope you get your appointment soon and get some answers it must be really worrying.



 
Status: Offline
 
Old Mar 7th, 2017, 15:31 PM   10
zorak
Mum (Mom)
Chat Happy BnB Member
 
 
Join Date: Jan 2013
Posts: 2,021
I hope you get more answers soon. It's so worrying when you don't know what exactly is going on.



Status: Offline
 
Reply



Bookmarks

Tags
heck , seizures

Thread Tools Search this Thread
Search this Thread:

Advanced Search



SEO by vBSEO