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Old Oct 24th, 2017, 02:43 AM   11
_Meep_
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I hoped you would see this sarahbear, after what happened with Violet. I hope she is doing better now.



 
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Old Oct 24th, 2017, 14:12 PM   12
Babybump87
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I can relate to this

A few weeks back DD2 woke from her nap as usual eyes open didn't notice anything took her to brush her hair and noticed she closed her eyes . Didn't think anything of it assumed she just closed them because of her hair getting brushed . Anyway I finished brushing her hair and took her down noticed she had her eyes closed still and was crying. Sat her down on the stairs and was talking to her telling her to open her eyes and she was just crying hysterically . I stood her up and walked away a bit thinking she would open them but she just put her hands out feeling around and started walking but just fell to the ground . I obviously panaciked and was about to call for help when I shook her again and she open her eyes .

It's thankfully not happened again and she has been fine since. Nothing alarming. I'm not sure what happened with my DD .

I'm glad your little one is ok and the hospital were happy with all his blood work. It's a very scary thing to happen . I am still worried it might happen again! Hopefully it's a one off incident for us both. Hope your little one is doing well xx



 
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Old Oct 24th, 2017, 16:39 PM   13
SarahBear
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Quote:
Originally Posted by _Meep_ View Post
I hoped you would see this sarahbear, after what happened with Violet. I hope she is doing better now.
No seizures since a week after she was hospitalized in April. We're at the 6 month mark! She's generally doing quite well except for some emotional stuff. She's been through a lot this year and who knows what the seizures or meds have done to her emotional-regulation skills.



 
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Old Oct 24th, 2017, 20:32 PM   14
ParisJeTadore
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Oh wow, thanks for all the advice you guys! I am glad that we are on the same wavelength. I went back to his doctors yesterday and demanded that he send him for some tests. We are being sent for an ecg and an eeg. The more I think about what happened the more I think it's very possible he had a partial seizure. It was just so abnormal for my little boy.

Sarahbear, I'm sorry that you have been dealing with scary stuff. That sounds very stressful! I have been keeping a very close eye on my son. I'm so paranoid now! I check on him constantly. Does anything trigger your daughters seizures?

Babybump87, our situations sound very similar. It's frightening when you see super abnormal behaviour in your child but have no idea what's going on. I really hope neither one of our kids experiences it again.



 
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Old Oct 25th, 2017, 01:50 AM   15
SarahBear
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Initially they were with fevers. As things progressed, I don't think there was too much of a pattern. Possibly in morning and evening... When she was released from the hospital at a therapeutic dose of her current medication, she was having seizures within a couple hours of waking up. She hasn't had any seizures since April though.



 
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Old Oct 25th, 2017, 02:53 AM   16
_Meep_
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Ah that's great. I'm so glad she's been seizure-free since April. Poor thing really has dealt with a lot at her age but you seem a resilient family and I hope things continue as they are and she can work through the emotional stuff. It's a big thing for anyone, let alone a little girl, so it's understandable she may be having some issues.

Paris, I think you have totally done the right thing. It's really important you find out what happened. Hopefully the tests will give some answers and/or peace of mind.



 
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Old Oct 26th, 2017, 10:13 AM   17
ParisJeTadore
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Sarahbear, it's a relief that she hasn't any since April! Must still be stressful though.

Meep, thank you for the reassurance. He went for an ecg yesterday and I'm confident that it will come back normal. Unfortunately the eeg wait time is insane. He's on a six month wait list!! I will call and try to plead my case.



 
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Old Oct 26th, 2017, 12:08 PM   18
_Meep_
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Oh god, what a pain! Here, I was told if there was any indication whatsoever that my daughter was having infantile spasms, she'd be fast-tracked straight away for EEG analysis. But as I said before, they're very dangerous. I'm SO glad it wasn't that. We also paid to see a private paediatrician as GPs are both slow and useless. However, it's obviously different in America.



 
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Old Oct 26th, 2017, 12:20 PM   19
ParisJeTadore
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I was told I might be able to plead my case given the situation. I will know in a couple weeks if that's possible. I live in Canada and while I'm grateful for free healthcare it sure has its draw backs!



 
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Old Oct 27th, 2017, 17:00 PM   20
SarahBear
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Yeah... I've heard about the drawbacks of the Canadian healthcare system. I hope you can get answers soon! And like I said before, keep track of EVERYTHING, especially if it happens again. Even if it was a seizure, that doesn't necessarily mean that it's a big problem. It could be a one off sort of thing or it could be a minor form of epilepsy that doesn't have a drastic impact. But if things get complicated, you'll appreciate your notes.



 
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