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Old Apr 30th, 2017, 00:17 AM   1
LAR83
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TSH Levels and TTC with Hashimoto's


Hello...If anyone who reads this has had a baby with hashimoto's or hypothyroid... What were your TSH levels around the time you conceived and throughout your pregnancy? Did you have any other thyroid levels checked? What did you do to keep your thyroid in control? Thanks in advance for any feedback. I have Hashimoto's and a hypothyroid and am having trouble conceiving... I am trying to figure out what I need to do differently.



 
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Old Apr 30th, 2017, 13:08 PM   2
CheshireDucky
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Haven't conceived yet but I have both hypothyroidism and Hashimoto's. I'm on levothyroxine to control it and I get seen by an endocrinologist to help keep things under control.

I saw him recently and he wants my TSH under 2.5, preferably between 1.0 and 2.0 to conceive. He just upped my dosage to get it further down and will be testing me every few months to make sure my TSH levels stays down both to get pregnant and to stay pregnant. Normally he'll do a full thyroid blood workup to check TSH, T4, T3, and I think one or two others? But for now, the "quick checks", just my TSH.

He also told me that once I do become pregnant I will need more medication to control my thyroid levels so I have to call him to work that out. If you don't have an endo yet I strongly suggest getting one and working out a personal plan with them. Levels which are too high (even if they're within "normal" range) can mess up getting pregnant.



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Old Apr 30th, 2017, 17:53 PM   3
LAR83
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Thanks Cheshire! How long have you been trying to conceive? For years I was having my thyroid levels checked by a primary care physician, but I recently sought treatment with a reproductive endocrinologist. My TSH was somewhere between 5 and 6 when I checked it last month, so my doctor increased my levothyroxine from 50mcg to 75mcg. But less than a week after the med change, she still had me do my 3rd IUI. Now that I am learning more about my thyroid, I think that was a mistake. I should have waited until I knew my levels were under control before going ahead with the IUI. I got my blood tested again on Friday and will get the results on Monday or Tuesday. If the levels aren't where they should be, I will advocate to postpone my 4th and final IUI until I can get it under control.

When the nurse told me that my TSH levels had increased, I asked her what could potentially cause that, and she said she didn't know! Never once has a doctor or nurse educated me about the interaction of foods and the thyroid. I just finally started doing my own research. I am reading a book now called "Your Healthy Pregnancy with Thyroid Disease" and have been doing research online. Things I thought were healthy- and can be for people with normal functionally thyroids- aren't healthy for us. For example, I was drinking sooo much grapefruit juice because I have heard there are benefits for EWCM. Grapefruit juice interacts with Levothyroxine and reduces its effectiveness....that may be why my TSH levels increased. I was also putting flaxseeds in my smoothie... I read that can bad for people with hypothyroidism, and I was eating cruciferous veggies (like broccoli, cauliflower, kale, brussel sprouts) and I read that that can really suppress thyroid function. I also read that you shouldn't take your vitamins at the same time as you take Levothyroxine, because there is an interaction and can make the Levothyroxine less effective. I never knew that. I always took it with my vitamins.

I am just sharing all this because I have been struggling with infertility, and I wish my doctor had educated me more about my thyroid. I realize now that I should have taken it into my own hands and not just have trusted her to tell me these things. But it's not too late... I am going to try to take my health into my own hands now, and I hope that I can become pregnant after making some serious lifestyle changes.

If you haven't already, I would encourage you to learn as much as you can about it too. There is so much information out there that a lot of doctors won't even tell you. Best of luck to you in your TTC journey.



 
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Old Apr 30th, 2017, 22:51 PM   4
CheshireDucky
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I haven't really looked into food interactions or anything. I haven't been trying for long since my thyroid jumped to a very scary level (thanks to illness) a year ago and it took some time to get back down and steady once more.

My PCP was taking care of it but after the illness/hospital stay, I got an endo to help me out.

One thing I didn't know, which should have been told to me the second I went on meds, was that you're supposed to take the levothyroxine first thing in the morning on an empty stomach with no other meds and to wait an hour before eating. I was taking mine at night with my other meds and supplements which may have been causing issues.

It's also important to remember that sometimes the thyroid can just keep going downhill to the point of needing it removed. My endo has talked to me about the possibility in a few years of removal, but we're not there just yet.



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