The steroid junkies' perfectly unscientific medical trial - Page 9

DMH1988 · Sep 10th, 2011, 13:35 PM

Quote:

Originally Posted by Round2

I have an autoimmune disease called CREST, where I know that I make ANA antibodies.

Are you currently taking anything to help with your CREST?

Round2 · Sep 10th, 2011, 13:38 PM

Quote:

Originally Posted by DMH1988

Quote:

Originally Posted by Round2

I have an autoimmune disease called CREST, where I know that I make ANA antibodies.

Are you currently taking anything to help with your CREST?

No, the only drug I would take would be blood pressure meds to help with circulation issues, but I can't take it while I'm TTC.

DMH1988 · Sep 10th, 2011, 13:39 PM

Have they ever given you anything to bring you ANA or any antibodies down?

Round2 · Sep 10th, 2011, 15:28 PM

No, I've never been told that I need to bring my ANA down. I've just been given advice on how to treat the symptoms. None of my doctors seem to think it's related to my mc's.

beachlover1 · Sep 13th, 2011, 13:48 PM

I thought ANA antibodies had a link to MC.....A book by Dr Beers is V good, "is your body baby friendly" can you get hold of that?

beachlover1 · Sep 13th, 2011, 13:50 PM

Steroid junkies........how are your tummies??

I have horrendous heartburn permanently ans severe diahorrea!....been given some meds to protect my tum, so just watch out!!! this was 3 weeks in on 30mg!!

Round2 · Sep 13th, 2011, 13:52 PM

Quote:

Originally Posted by beachlover1

I thought ANA antibodies had a link to MC.....A book by Dr Beers is V good, "is your body baby friendly" can you get hold of that?

Thanks, yes I have heard of that book. I haven't read it, but I know he talks about ANA antibodies.

My rhumetologist shot me down for steriods again this week, but he did recommend a doctor who works with Dr. Beer's clinic. I have an appointment for January! I'm on the cancellation list, hopefully I'll see him sooner.

DMH1988 · Sep 13th, 2011, 17:14 PM

Any auto antibodies have the potential to cause pregnancy problems. Although pregnancy is a natural thing it is still considered a foreign body. Antibodies, even those considered specific to particular areas in the body, have the potential to affect other areas. I have high ANA along with antibodies against my thyroid, but the antibodies have affected many other parts of my body including my heart and neurological system. ANA can definitely cause multiple MC. Also, do you have the Raynaud's phenomenon? If so, remember that the placenta is made of MANY blood vessels. Spasms of blood vessels causing any blood flow restriction in the placenta could also be a cause since the baby may not be getting the accurate amount of oxygen and nutrients necessary for survival.

Round2 · Sep 14th, 2011, 10:21 AM

Yes, I've got very severe Raynaud's. Ughh.....so fustrated. Wish my doctor's would listen to me.

DMH1988 · Sep 14th, 2011, 10:28 AM

I suggest seeing any and every doctor until one does...You know you body better than anyone and a doctor that doesn't listen to what you say isn't a good doctor.

I was luck enough to have doctors that listened to me and didn't think they knew everything. Unfortunately, the OB I was seeing for my pregnancy did and that's why mine ended the way it did. I was suppose to be getting monthly unltrasounds throughout the pregnancy, but only had too the entire almost 7 months! So when she was running out of amniotic fluid we never knew until it was too late.

Sep 10th, 2011, 13:39 PM	#83
DMH1988 Mum (Mom) Active BnB Member Join Date: Aug 2011 Location: Arizona Posts: 25	Have they ever given you anything to bring you ANA or any antibodies down?

Status: Offline

Sep 10th, 2011, 15:28 PM	#84
Round2 Pregnant (Expecting) BnB Addict Join Date: Dec 2009 Location: Canada Posts: 3,364	No, I've never been told that I need to bring my ANA down. I've just been given advice on how to treat the symptoms. None of my doctors seem to think it's related to my mc's.

Status: Offline

Sep 13th, 2011, 13:48 PM	#85
beachlover1 Trying to conceive (TTC) Chat Happy BnB Member Join Date: Jul 2009 Location: Warwickshire Posts: 1,629	I thought ANA antibodies had a link to MC.....A book by Dr Beers is V good, "is your body baby friendly" can you get hold of that?

Status: Offline

Sep 13th, 2011, 13:50 PM	#86
beachlover1 Trying to conceive (TTC) Chat Happy BnB Member Join Date: Jul 2009 Location: Warwickshire Posts: 1,629	Steroid junkies........how are your tummies?? I have horrendous heartburn permanently ans severe diahorrea!....been given some meds to protect my tum, so just watch out!!! this was 3 weeks in on 30mg!!

Status: Offline

Sep 13th, 2011, 17:14 PM	#88
DMH1988 Mum (Mom) Active BnB Member Join Date: Aug 2011 Location: Arizona Posts: 25	Any auto antibodies have the potential to cause pregnancy problems. Although pregnancy is a natural thing it is still considered a foreign body. Antibodies, even those considered specific to particular areas in the body, have the potential to affect other areas. I have high ANA along with antibodies against my thyroid, but the antibodies have affected many other parts of my body including my heart and neurological system. ANA can definitely cause multiple MC. Also, do you have the Raynaud's phenomenon? If so, remember that the placenta is made of MANY blood vessels. Spasms of blood vessels causing any blood flow restriction in the placenta could also be a cause since the baby may not be getting the accurate amount of oxygen and nutrients necessary for survival.

Status: Offline

Sep 14th, 2011, 10:21 AM	#89
Round2 Pregnant (Expecting) BnB Addict Join Date: Dec 2009 Location: Canada Posts: 3,364	Yes, I've got very severe Raynaud's. Ughh.....so fustrated. Wish my doctor's would listen to me.

Status: Offline

Sep 14th, 2011, 10:28 AM	#90
DMH1988 Mum (Mom) Active BnB Member Join Date: Aug 2011 Location: Arizona Posts: 25	I suggest seeing any and every doctor until one does...You know you body better than anyone and a doctor that doesn't listen to what you say isn't a good doctor. I was luck enough to have doctors that listened to me and didn't think they knew everything. Unfortunately, the OB I was seeing for my pregnancy did and that's why mine ended the way it did. I was suppose to be getting monthly unltrasounds throughout the pregnancy, but only had too the entire almost 7 months! So when she was running out of amniotic fluid we never knew until it was too late.

Status: Offline

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