Hughes Syndrome-antiphospholipid syndrome (APS)

MaevesMummy · Oct 30th, 2010, 10:05 AM

Hi,
I wondered if anyone on here has this, as I have still not had any answers from the hospital and are not due any untill December (its so unfair they make you wait so long). I am so scared of something going wrong again. I cant bear how sad my husband is and dont want this to happen again.
I just want to know what I will need to do when / if we start TTC again...

xxxxxxxx

MaevesMummy · Nov 7th, 2010, 11:46 AM

Does no one else have this?
x

lu-is · Nov 7th, 2010, 11:49 AM

Sorry. To my knowledge I don't have APS. Hope you get your test results soon.

MaevesMummy · Nov 7th, 2010, 15:25 PM

Thanks, Its a good thing believe me.
I was hoping someone might be able to help, but realy I guess I will have to be patient

Kelly
xxxx

Tasha · Nov 7th, 2010, 15:30 PM

Hey, I am sorry I didnt see this earlier, I have this and a few other clotting disorders. I am really sorry about the loss of Maeve. If there is anything you wanna ask fire away.

Sherileigh · Nov 8th, 2010, 12:08 PM

I'm not sure what this is, but I'm so sorry for your loss. I hope you find answers soon.

MaevesMummy · Nov 8th, 2010, 14:47 PM

Thank you both.
I hope someone can tell me tommorow.
xxxxx

Peach Blossom · Nov 16th, 2010, 07:16 AM

Hi MaevesMummy. I tested positive for Lupus Anticoagulant or Antiphospholipid Syndrome after my 3rd miscarriage in February this year. It is an autoimmune disorder. I already have one autoimmune disorder, Graves' disease, which is why they tested me for it. It is very important that the blood is tested within 24 hours of being taken or the result may come back as a false negative. What the specialist told me was that the Lupus Anticoagulant attacks the developing placenta causing the pregnancy to fail. Since the diagnosis I have become pregnant and have been successfully treated with Heparin and Aspirin. So far everything is going well.

I am so sorry for your loss. It must have been so devastating for you and your husband. I hope that you get some answers and that you have a healthy pregnancy soon.

Oct 30th, 2010, 10:05 AM	#1
MaevesMummy Mum (Mom) Active BnB Member Join Date: Oct 2010 Location: West Midlands Posts: 308	Hughes Syndrome-antiphospholipid syndrome (APS) Hi, I wondered if anyone on here has this, as I have still not had any answers from the hospital and are not due any untill December (its so unfair they make you wait so long). I am so scared of something going wrong again. I cant bear how sad my husband is and dont want this to happen again. I just want to know what I will need to do when / if we start TTC again... xxxxxxxx

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Nov 7th, 2010, 11:46 AM	#2
MaevesMummy Mum (Mom) Active BnB Member Join Date: Oct 2010 Location: West Midlands Posts: 308	Does no one else have this? x

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Nov 7th, 2010, 11:49 AM	#3
lu-is Mum (Mom) Chat Happy BnB Member Join Date: Jan 2010 Location: Saskatoon, Canada Posts: 1,777	Sorry. To my knowledge I don't have APS. Hope you get your test results soon.

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Nov 7th, 2010, 15:25 PM	#4
MaevesMummy Mum (Mom) Active BnB Member Join Date: Oct 2010 Location: West Midlands Posts: 308	Thanks, Its a good thing believe me. I was hoping someone might be able to help, but realy I guess I will have to be patient Kelly xxxx

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Nov 7th, 2010, 15:30 PM	#5
Tasha Other BnB Spammer Elite Join Date: Jul 2008 Posts: 23,952	Hey, I am sorry I didnt see this earlier, I have this and a few other clotting disorders. I am really sorry about the loss of Maeve. If there is anything you wanna ask fire away.

Status: Online

Nov 8th, 2010, 12:08 PM	#6
Sherileigh Other BnB Addict Join Date: Oct 2008 Location: Canada Posts: 4,789	I'm not sure what this is, but I'm so sorry for your loss. I hope you find answers soon.

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Nov 8th, 2010, 14:47 PM	#7
MaevesMummy Mum (Mom) Active BnB Member Join Date: Oct 2010 Location: West Midlands Posts: 308	Thank you both. I hope someone can tell me tommorow. xxxxx

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Nov 16th, 2010, 07:16 AM	#8
Peach Blossom Trying to conceive (TTC) BnB Addict Join Date: Feb 2009 Posts: 5,056	Hi MaevesMummy. I tested positive for Lupus Anticoagulant or Antiphospholipid Syndrome after my 3rd miscarriage in February this year. It is an autoimmune disorder. I already have one autoimmune disorder, Graves' disease, which is why they tested me for it. It is very important that the blood is tested within 24 hours of being taken or the result may come back as a false negative. What the specialist told me was that the Lupus Anticoagulant attacks the developing placenta causing the pregnancy to fail. Since the diagnosis I have become pregnant and have been successfully treated with Heparin and Aspirin. So far everything is going well. I am so sorry for your loss. It must have been so devastating for you and your husband. I hope that you get some answers and that you have a healthy pregnancy soon.

Status: Offline

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