Hello! I was just diagnosed with thyroid cancer today. I had a fine needle aspiration done a couple of weeks ago on a 3.7 cm nodule, and they couldn't get a difinitive diagnosis based on that. There were quite a few abnormal cells, so we made the decision to remove the left side of my thyroid. So, I had surgery on the 30th. During surgery, there was a pathologist on call who examined the tissues to determine if it was cancerous, but they still couldn't figure it out. They noticed more nodules on the right side, so they made the decision to remove the entire thing. They also removed several lymph nodes in my neck because they were swollen. My doctor called me today and confirmed that it was in fact cancerous. Thank goodness he removed everything the first time otherwise I would be having a second surgery!!
I am meeting with doctors later on in the week, but it looks like I will be having a radioactive iodine treatment, no chemo or ratiation. Has anyone here been diagnosed with thryoid cancer? I guess I'm just curious to see what your treatment has been like, or what I can expect. Sorry if this post has been a bit incoherant, and please ignore spelling errors, I'm still on a bit of pain medication
Hi kenzi so sorry for what you are going through I guess I am about to be in a similar position I had the fine needle aspiration a couple of weeks ago too and went back for my results today, it was inconclusive so I'm having to have it removed along with the surrounding thyroid. I suppose I'll know more about if it is cancer or if it has spread after the op and after the biopsy on the removed tissue.
He talked about radioactive iodine therapy if it has spread but I'm afraid I can't help you with what it is going to be like.
Yes my husband in 2009 he had an over active thyroid and when they removed it only to find tumours . Two weeks later he had a neck direction which is a cut from ear to ear removed about 50-60 nodes each sides. 3months later it had returned so the left side was reopened and another cut up to his chin . He had cancer from his breast bone to the brace of his scull . After that and many bone scans then had 6 weeks radio therapy everyday as chemo doesn't work on his cancer that was named medullary which is the 4worst out of 5 thyroide cancers. You are correct in saying certain ones are easily treated . He has gone through a hard time as he was a bricklayer but no longer can do that but now a teacher but we nearly lost our house I had to stop work to get help from benefits etc. where we are now is every 6 months he goes to the royal Marsden they are fantastic ! , just for bloods etc but he is left with reduced movement in his left arm as they had to cut through a nerve to remove tumours and a slight drop in his mouth he also can't look up very well as the scar tissue is so tight . It's hard as he can't to what he used to do and is very restricted in what he can do with the kids . Good luck with this its hard but in my expierance they know what they are looking at and are very quick in sorting . As you have this iodine set up for you then I would say try not to worry as that's very common and you have an easy one to treat pm me if you need any advice on anything oh and my husband is on thyroxin now as he doesn't have a thyroid that he takes everyday but ask about calcium tabs xx
Its so good to read the process for other people, i have a 3.5cm nodule in my right thyroid I had the scan and needle aspiration back in January and i know it has grown since then, my follow up appointment wasn't until May and they do want to remove the right side.
I am concerned things are taking such a long time, it bothers me daily and is more noticeable since i lost a little bit of weight.
I am sorry kenzi that it wasn't a straightforward removal and be done with, and yumyum it sounds like your husband has had an awful time.
To be honest i know the chance is slim but i am worried about it having spread or just not being a simple take it and out then i'm all better again.
Would you be concerned about it taking so long for them to remove? I don't even think the consultant checked my result until the morning of my follow up appointment (4months after the scan and needle aspiration!)
Sorry i can't help anyone, you all seem to be a few steps ahead of me on this process.
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