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Old Jun 28th, 2016, 10:42 AM   1
topsy
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Cfs/me


Hi anyone else suffer with ME /CFS?

I have just been diagnosed by a consultant and just wondered if anyone else has it too?

I am so tired ALL the time

xxxx



 
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Old Jun 28th, 2016, 11:58 AM   2
fxmummyduck
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Hi Topsy, yes I was diagnosed back in 2009 with post viral CFS. I was so tired and I had myalgia with it too so whenever I did anything my muscles felt like they were on fire. I couldn't lift a kettle or a saucepan and would just have to lie on the sofa.

Luckily I got better after about a year, but I still tire quite easily but it's nowhere near what it was.



 
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Old Jun 28th, 2016, 16:45 PM   3
topsy
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Hi Hun Sorry you suffer too hun. I was originally diagnosed in 2006 ish by my GP but didn't know if that still stood so asked to be referred by a gp in Nov 2015 to a consultant and saw one last week.

So I have had it for a while and mine started after a virus at christmas time...I was just so tired and at the mo just feel drained of energy and have a constant sore throat.

Does ANYTHING ( other than resting) help you hun? I am sleeping 11-12 hours at night and having a 2-3 hour nap in the afternoon and I am still shattered.

xxxx



 
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Old Jun 29th, 2016, 12:04 PM   4
fxmummyduck
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I took beta blockers for a while and they seemed to help, also strangely trying not to sleep as much and go for a walk or something in the afternoon would make me feel better, the less I did the worse I got.

Sorry you're having a rough time with it, I hope people are understanding. Even with a diagnosis people didn't believe me, including my own sil who is a Dr.



 
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