I am also a cfs / Fibro sufferer but undiagnosed due to crap doctors who don't believe in the syndrome I think!
I have had cfs for about 3-4 years now but fibro only really since the twins were born a year ago.
I find coping hard too - so your more than welcome to PM me too. My husband doesn't believe just how hard it is for me to get out of bed in the morning.
I have a lot of other conditions, perhaps related to fibro, who knows. It's very hard day to day, I have five children under seven to take care of.
My husband lost his Job in January because of my condition and I needed him while he was at work last year, and in his lunch hour he came to help us - and was found out and fired.
Life is unfair. We have no money coming in, it's disabling me almost, I want to see my children grow up but don't have the willpower to drag myself from bed at 7,8,9am in the morning etc.
I have had Fibro for about 4 years but I think I started with it earlier. I have an almost 9 month old boy and some weeks I am so beyond exhausted it's even a struggle to get out of bed.I also have PND which is prob linked to my fibro so I am finding being a mum tough. I feel guilty cos I want to really embrace being a mummy and be all happy and smiley and sunshine like most people but I feel most times like I have a dark cloud hanging over me. My OH knows all this but he never asks me how I am and I am not great at asking for help so I guess I shoot myself in the foot sometimes.
I have full sympathy for all you M.E and fibro sufferers x x x
currently its been mentioned but as im on antidepressants she is linking it to that, but im so tired even when i get a full nights sleep, i yawn ALL day even when ive done no activity, i know its not just depression but ive been like this for so long now its normal. I didnt realise it was a 'thing' i thought it was just me!
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