back from my anomaly u/s

[socitycourty]

So......just got home. stayed team yellow

everything was ok, down's syndrome risk one in 38,000

then the dr came and said one of my "markers" was high. didn't really specify, just said she needed to check a few more things and said I should have another u/s at 30-32 weeks. just in case there were growth problems. but then told me not to lose sleep over it but I am worried......

I thought I would feel better after today!

 

[jenmcn1]

Usually one marker that measures larger or smaller for gestational gae usually isn't a problem! Its when you have more than one marker that could indicate a problem. Which is probably why she wants to do another u/s. If you are still really worried ask to discuss the details with them. Hugs!!!!!!

 

[socitycourty]

I was honestly trying to be logical and think if she didn't want me to repeat it until 30 weeks then it can't be that serious, and she didn't really tell me much. I will probably leave a message for my OB tomorrow on the test results line & ask them to explain it to me AGAIN. Although she did say don't lose any sleep, of course I'l lose some

 

[gk1701]

what does that mean, one of your markers is high?

 

[socitycourty]

I guess one of the measurements? i was pretty confused. I still don't really understand it too well, and she said Down's Syndrome was pretty much out of the question so...it's not that but I am still unsure what it meant.

 

[gk1701]

ok, i will begin my obsessive googling. im sure they would have told you if it was something to be concerned about. but i understand your concerns..any little thing scares me. hugs.

 

[socitycourty]

I'm googling! Could not resists. I will be calling my OB tomorrow and ask them to review & explain to me again though, and hopefully feel better.

I can't believe she told me all that and then said don't lose sleep! SMH

 

[socitycourty]

bumping....anyone else experience this??

 

[Mummy of Ange]

I had a soft marker at my 20 week ultrasound. The Nuchal Fold on the back of her neck was 7.2mm (6mm being the max), they said everything else, heart, bones etc were fine.

I have done loads of googling and seen that one soft marker is usually just a slight variation from the norm and the majority of the time means nothing.

Im back for a scan on Tuesday and hoping and praying it has decreased.

How these people can say "dont worry" baffles me. What pregnant women is not going to worry? I think its only natural x

 

[socitycourty]

I had a soft marker at my 20 week ultrasound. The Nuchal Fold on the back of her neck was 7.2mm (6mm being the max), they said everything else, heart, bones etc were fine.

I have done loads of googling and seen that one soft marker is usually just a slight variation from the norm and the majority of the time means nothing.

Im back for a scan on Tuesday and hoping and praying it has decreased.

How these people can say "dont worry" baffles me. What pregnant women is not going to worry? I think its only natural x

I know!!!!! They don't even want to check me again, just said at 30-32 weeks. That's a long time to wonder.

 

[Sunshine12]

Hi hun, understand why you are worrying but Im sure if it were something that was of major concern to them that they would have you back long before 32 weeks. I would take that as a good sign.xxx

 

[socitycourty]

I'm definitely trying to! I'm so anxious by nature that I spent the whole night worrying and tossing/turning. I do need to call them because I was completely confused by what they were saying

 

[Chiclet2012]

I wouldn't worry about it too much. I am in a similar boat, except my doctor explained it to me like this:

When I did my first trimester markers (with NT test on ultrasound), my combined risk was 1:10,000. The company does not give a risk any lower than that. My nuchal fold measurements during my 22 week ultrasound showed up at 6.5mm, which is higher than the normal range. But she explained that although that was an "abnormal marker", even if my chances of Down's DOUBLED because of this, it would still be 1:5,000 which is really low. In most cases, it's nothing.

 

[socitycourty]

Thank you for the info. I don't even know which marker she was referring to, which is why I was a little freaked out. She was really vague about it. And then told me not to worry. LOL

She did say my risk was 1 in 38,000 for Downs Syndrome, and my first NT u/s and blood test were good.

 

[Blizzard]

I had a soft marker at my 20 week us. We were told the baby has bilateral pelvi-calyceal dilatation (don't ask how long it took me to learn to spell that) which means that there is a minor problem with the ureter on both sides so we need a rescan at 30 weeks, like you. This is what they gave me, it describes the different soft markers and what they can mean:

https://www.screeningservices.org.uk/asw/professional/policy/marker_guidance.pdf

I don't know if that will help at all, but worth a shot .

 

[Blizzard]

Also may I add that I hate people telling me not to worry and giving me minimal information. Don't be ridiculous of course I'll worry, he's my baby. Give me all the facts I need and then I can work out the risks of things for myself. Sorry, people keep telling me not to worry about things and I can't help it .

xx

 

[socitycourty]

I know, I almost couldn't believe she said it like that. her information was very vague and made the whole thing more nervewracking than it needed to be. URGH

 

[jenmcn1]

Did you talk to you doctor today? I hope you are feeling a bit better ! Hugs!

 

[socitycourty]

My OB's nurse called me back, she pulled up the report and said it looked fine! But then said she would have the dr look at it and I have not heard from him. Either way I'm annoyed that the doctor at the ultrasound place was acting so weird, especially if there was no reason.....

confused.com!

 

[DaisyBee]

They should be obligated to tell you exactly what they found... As in what soft marker?

Our baby has a soft marker for edwards syndrome ( not downs). She has choroid plexus cysts on her brain which we were told were normal but that they can be a soft marker if other things were found. Nothing else was found but we could go to mayo clinic to get a level 2 ultrasound and we decided we would feel better if we did that and get a 2nd look. We saw a genetic counselor, had our level 2 scan and saw a high risk dr. The dr told me that these cysts are normal and almost always go away, they don't affect baby at all, and that everything else on our baby looks perfect, that they see these more on normal babies than babies with t18, and to go home and not worry any more.

It is hard not to worry. Totally get that... As I'm in the same boat. But I'm glad that I got the info and know what is going on vs. Being kept in the dark. I would push them for info.