Endometriosis

[Serene123]

How do I get them to check me out?

I have pretty much every symptom of it, including the headaches, anxiety, low blood sugar (which considering my weight and diet is surprising,) and depression. I'm pretty good at pulling myself out of depression because I know the only cure is keeping busy, but when I'm not busy I fall back into it.

I am in so much pain before ovulation and before my period starts. I know this is normal for some people but it just isn't normal for me. Literally, I can feel myself ovulate. I get so gassy and it feels like my uterus wants to cry! I feel exactly the same just before my period too.

I stopped charting because these pains fell in the exact place of my charted cycles and I just don't need to chart anymore.

I have mentioned this to two doctors now, without saying I think I have Endometriosis, and they're thought nothing of it. One of them said, "it's probably PCOS but as you have conceived twice I don't think it's causing you a problem." (I've had two chemical pregnancies.)

Do I just outright tell them I think I have Endo?

 

[Rach27]

Yup and then insist on a diagnostic laparosopy. For some reason a lot of clinics are reluctant to diagnose this. I suspect as it results in less IVF referrals but I'm just a cynic

 

[four_angels]

Nobody suspected that I have Endo, I thought I just had PCOS. Then during a Laparoscopy my Gyn found some "mild" Endo, he didn't bother trying to remove it though. I didn't know all those symptoms you mentioned are Endo related

 

[Serene123]

Thanks ladies xx

Apparently they are? Maybe I have false info?

 

[floofymad]

I spoke to my gyno about my endo yesterday. He insisted my headaches and constant migraines at the moment are not endo related. He was also insistent that it's not a hormone problem etc as long as you have regular periods.
I suffer from anxiety separately and have had mild depression in the past. Not sure that they're related, although I have found them coming back sometimes having to put up with the pain.
Think the pain you were suggesting sounds likely tho.
I had to be insistent and go back to the doctors SO many times insisting I was in pain. They did an ultrasound, but it doesn't show on that. I went back lots more times, They wouldn't do anything. I asked to see a gyno. The doc refused. I demanded to go private and saw a gyno. He said it sounded like endo.
The best way is to somehow get to see a gyno.
Good luck x

 

[claire_love]

Hi Serene123!

I have quite bad endo and was diagnosed in Feb (month after my 20th bday!)

Ive had quite bad periods ever since i can remember, it caused me to black out, the lot. I went and about my periods and printed off all the info on endo and demanded that my doctor send me to gynae. They say it takes an avarage of 10 years to be fully diagnosed (so they say) And when i read that i didnt want to leave it that long.

Dont let your doctors give up on it, go and get checked out, although i found out i had it im glad i know what was causing all my pain and discomfort. As im typing im in killer pain with my back because of it!

I also know a friends mum who had her and then went on to have mild endo, so its possible.

Wishing you all the best and i truely hope you dont have it. Its a massive pain in the arse!!

XX

 

[Rach27]

You can have some, all, some different ones or none of the above symptoms! The only way they can diagnose or rule out is through laparoscopy.

 

[amy_1234]

Hi have you tried taking evening primrose oil, its meant to work miracles for endo, I have mild endo which was diagnosed with a laparoscopy. I am starting the EPO this month day 1 to 12 xxxx

 

[floofymad]

Hi have you tried taking evening primrose oil, its meant to work miracles for endo, I have mild endo which was diagnosed with a laparoscopy. I am starting the EPO this month day 1 to 12 xxxx

I wish it did! I've got stage 3 endo and have tried EPO for the last 3 months. It's not working at all for me. Been taking 1500mg a day with the occasional 2000mg.

That said, it may be something that just doesn't work for me, and may for others......

 

[summerbreeze8]

I feel the same. Since I came off bc 10 months ago I have had pains - it starts a few days before ov and gets more and more painful until I do ov. Then I get pulling type pains inside and period type pains until AF. I also get bloated & feel horrible. Sometimes the pain feels like it is going down the tops of my legs. I have been sent away by my GP who tried to tell me it was pulled muscles and all sorts! I had an ectopic failed pregnancy in July which I am convinced was due to tubes being partially blocked, so am convinced something is wrong. I am so annoyed reading about so many people on here and people I know literally having to fight with doctors to get it diagnosed! Why do they not believe we are in pain?! I have a check up at the EPU this week and I am going to speak to the doctor there & hopefully persuade him to do a lap to find out what is wrong.

 

[floofymad]

I feel the same. Since I came off bc 10 months ago I have had pains - it starts a few days before ov and gets more and more painful until I do ov. Then I get pulling type pains inside and period type pains until AF. I also get bloated & feel horrible. Sometimes the pain feels like it is going down the tops of my legs. I have been sent away by my GP who tried to tell me it was pulled muscles and all sorts! I had an ectopic failed pregnancy in July which I am convinced was due to tubes being partially blocked, so am convinced something is wrong. I am so annoyed reading about so many people on here and people I know literally having to fight with doctors to get it diagnosed! Why do they not believe we are in pain?! I have a check up at the EPU this week and I am going to speak to the doctor there & hopefully persuade him to do a lap to find out what is wrong.

Totally understand how you feel. I had the same problem getting diagnosed and had to go back again and again. Had to go private in the end, cause the doctor refused to let me see a gyno on the NHS!
Your symptoms sound very similar to mine. I hope you manage to get someone to take you seriously. Good luck x x

 

[oxford_cpl]

How do I get them to check me out?

I have pretty much every symptom of it, including the headaches, anxiety, low blood sugar (which considering my weight and diet is surprising,) and depression. I'm pretty good at pulling myself out of depression because I know the only cure is keeping busy, but when I'm not busy I fall back into it.

I am in so much pain before ovulation and before my period starts. I know this is normal for some people but it just isn't normal for me. Literally, I can feel myself ovulate. I get so gassy and it feels like my uterus wants to cry! I feel exactly the same just before my period too.

I stopped charting because these pains fell in the exact place of my charted cycles and I just don't need to chart anymore.

I have mentioned this to two doctors now, without saying I think I have Endometriosis, and they're thought nothing of it. One of them said, "it's probably PCOS but as you have conceived twice I don't think it's causing you a problem." (I've had two chemical pregnancies.)

Do I just outright tell them I think I have Endo?

Hun, my best advice to you would be to tell your doctor your mum and nan have diagnosed endometriosis, do your research so if the doc asks what treatment they have/have had you can answer... Endometriosis is hereditry, so if you lie and say your family members have it, they will HAVE to test you for it, though it will mostly be diagnosed via laparoscopy Good luck xx

 

[4magpies]

Serene... I had suspected endo... they went in and did a lap and found that I actually dont. I just have scar tissue from a past infection that causes pain.

When I ovulate from my bad side the pain actually takes my breath away.

Make sure they sort you out. If they think you have PCOS they should be able to tell that from a ultrasound and rule it out. Then they will probably do a lap for you.

xxxx

 

[summerbreeze8]

I know it's been a while but thought I would update you. I went back to the EPU for a check up after my tubal miscarriage and then having severe pain on one side. I saw my consultant gyno and told him about my pains and straight away he said it sounds like endo!!! I nearly fell off my chair!! He couldn't see anything much on the scan but he has referred me for a diagnostic lap in December. I am so pleased! At least I will know then one way or another. They are also going to check my tubes for any damage.