Feeling stressed and guilty...anyone else have a blood disorder?

[ttc126]

I have a blood disorder called thalessemia. I only have the minor form and was told it wouldnt cause issues for me. All it does is make me appear anemic but its just that my blood doesnt process iron normally...my iron stores are fine. Today my midwife called. She said my bloods were "much worse" than she expected and wants me to see a hematologist. I was resistant and she said we can talk at my next appointment about it.

Well then i consulted dr google and read that maybe its not the minor deal i thought it was. I called back and agreed to go if she thinks I should. Well now I feel nervous about going and about complications. I feel guilty i didnt automatically think "do what is best...be safe not sorry" when it came to my baby. I feel like a bad mom already. Can anyone relate?

 

[Jenna1985]

I do know how you feel! I have a blood condition too....During pregnancy and at any point where I have higher Estrogen my body produces life threatening clots. We did not know what was causing our miscarriages (we had 3 of them) until just after our last one when they did a bunch of testing. The doctor thinks that the clots may have been caught in the ublilical cord cutting off oxygen to the baby and that is why we keep losing them. I have had 2 successful pregnancys but have had 3 losses and it has been almost 5 years since my daughter (youngest) was born. I have a bunch of other issues that make it so I only have a 10% chance of concieving naturally so I thought nothing of it when I had to wait 2 weeks to get an IUD in....then on the night befor Valentine's day we found out we were pregnant....Trust me I am terrified but the chances of the baby having the same thing is 1/10,000 so I am doing my best not to worry. Now that we know the issue and we found out we were pregnant so early we are able to get on the right medications to get it under control.

Don't worry. Breath. You are going to be a great Mommy and your choices have yet to prove otherwise. ***HUGS***

 

[angel2010]

I can completely relate. With this pregnancy I have to decide whether or not to take heparin injections. The dr and I decided last pregnancy that we didn't think it was necessary and it ended it mc. It could have been caused by a number of other things, but I will always wonder. I haven't had my appt with him yet to discuss it this pregnancy, but I go over it in my mind all the time.

 

[midori1999]

I can completely relate. With this pregnancy I have to decide whether or not to take heparin injections. The dr and I decided last pregnancy that we didn't think it was necessary and it ended it mc. It could have been caused by a number of other things, but I will always wonder. I haven't had my appt with him yet to discuss it this pregnancy, but I go over it in my mind all the time.

Out of interest, why wouldn't you take the heparin injections?

Although that said, it may not have prevented your miscarriage, I have miscarried while on heparin.

I have a blood disorder, APS or Hughes Syndrome. It means without medication I have an 80% chance of miscarriage, so I am on heparin (clexane) injections and aspirin throughout pregnancy. I lost my twin girls before I was diagnosed and it may have been due to this blood disorder, but we'll never know for sure.

 

[MorganEvans]

This is sad to read, but i refuse to believe that you're a bad mother.

 

[shaunasmommy]

I have mthfr, an enzyme in my blood that can cause clotting. With my last pregnancy I was on heparin injections and aspirin therapy, and have to take extra folic acid. So far with this pregnancy I am on progesterone supplements and extra folic acid but no blood thinners yet.

 

[angel2010]

I have mthfr, an enzyme in my blood that can cause clotting. With my last pregnancy I was on heparin injections and aspirin therapy, and have to take extra folic acid. So far with this pregnancy I am on progesterone supplements and extra folic acid but no blood thinners yet.

Are they planning to put you on them? Which MTHFR do you have?

 

[angel2010]

I can completely relate. With this pregnancy I have to decide whether or not to take heparin injections. The dr and I decided last pregnancy that we didn't think it was necessary and it ended it mc. It could have been caused by a number of other things, but I will always wonder. I haven't had my appt with him yet to discuss it this pregnancy, but I go over it in my mind all the time.

Out of interest, why wouldn't you take the heparin injections?

Although that said, it may not have prevented your miscarriage, I have miscarried while on heparin.

I have a blood disorder, APS or Hughes Syndrome. It means without medication I have an 80% chance of miscarriage, so I am on heparin (clexane) injections and aspirin throughout pregnancy. I lost my twin girls before I was diagnosed and it may have been due to this blood disorder, but we'll never know for sure.

I am sure that I will. I had a healthy pregnancy with my first at least in the beginning with out any blood thinners. I have been developing a small anxiety with needles, but I will do what I have to.

 

[SIEGAL]

God - I know how you feel. I have the factor v lieden and am on baby aspirin, lovonox, and progesterone and I have panic attacks all day that I am dying of a blood clot - can't be good for the baby Sometimes life sucks

 

[ttc126]

Thank you ladies for your responses and support. I am so sorry for your losses! I think its so difficult to have a condition to worry about on top of normal pregnancy concerns. I guess I am the most upset that I was always told this condition wouldnt cause issues... But yet, here we are. I guess worst case I may need a transfusion, but best case we will just watch it very carefully. I was told it puts me at a higher risk for IUGR... anyone know how that is managed?

Saying a prayer for all of you ladies with issues to manage and for your little beans!

 

[shaunasmommy]

Homo mthfr. They haven't mentioned it to me yet, but I intend on asking next Wednesday at my next appointment.

 

[angel2010]

Ah, I am compound hetero. I am pretty sure the dr will suggest lovenox.

 

[dodgercpkl]

Homo mthfr. They haven't mentioned it to me yet, but I intend on asking next Wednesday at my next appointment.

Do you know if it's c677t or a1298c? Regardless of which you have, I'd recommend to you to reconsider the extra folic acid and instead look into bio active forms of the B's - methylfolate rather then folic acid, methylcobalamin rather then B12, and P5P rather then B6. The issue with MTHFR is it causes your body to not break down synthetic B vitamins well and almost all typical vitamins out there are synthetic. The forms that I mentioned are already broken down and bypass the genetic issue.

BTW, I have homozygous c677t and my husband has single copies of FOUR MTHFR mutations - c677t, a1298c, p39p, and one other that doesn't have a common name. I've done a ton of studying on this, so please feel free to hit me up if you have any questions!