Fetalius Hydrops

[mommybeth83]

Hello. So we went and had a nuchlar translucency test done friday.It basically is a genetic screen that looks at the fluid behind the back of the baby neck. They have found that with babies with more than 3mm there is a higher chance of down syndrome and other chromosome issues. So any way...

The results we got were not good. They found over 7mm of fluid behind "chickens" neck. With that much fluid its a 1 in 5 chance of DS or another chromosome issue. Theyalso found a hole in the babies heart, which is another sign of something wrong. They are saying that we are at a 70-80% of DS. All that is bad but we can survive. BUT...

They found these things called hydrops. It is basically fluid in places that it shouldnt be. The hydrops have surrounded the baby. They are basically saying that the hydrops will stop the fetal oragans from developing. NOT GOOD

We are basically just waiting to get to the referral to the high risk doctor so we can find out more info and answers to all the questions.

I am wondering if this has happened to any of you and what was the outcome

 

[fairykate]

There's another thread about this hun - it might help you

https://www.babyandbump.com/pregnan...4847-hydrops-fetalis-miracle-baby-update.html

 

[gigglebox]

Hi hun, I am SO sorry you are in this situation. I am in a similar situation; though baby hasn't developed hydrops, it does have an increased NT and we were given 50-60% chance of a chromosomal abnormality (most likely turner's syndrome). We went ahead with a CVS test (where they take a sample of the placenta and examine the baby's chromosomes) and the test was normal!

I am hoping and praying that what we have doesn't develop into hydrops, as hydrops has a bleak outlook...HOWEVER, this is not to say that it takes the lives of all babies. I have read many success stories where babies have overcome even the most grave prognosis.

Below is a link to another baby forum that may have some more personal stories you might find helpful. This exact link is of success stories with cystic hygromas (the increased NT fluid) but I think if you navigate the site you may find stories that specifically pertain to hydrops.

https://community.babycenter.com/post/a3219645/cystic_hygroma

Good luck to you; I hope everything turns around for the better.

 

[gigglebox]

here is another link that may help: https://hydrops.co.uk/

 

[BrightLights]

Hello

I am the orginal poister of the hydrops thread listed above...

At my 20 week scan our baby got diagnosed with bydrops fetalis, they literally stopped the scan and wouldnt let us see the screen it was horrid. Our baby had it on stomach, bowel and worstly the heart and lungs. We got sent to a specialist hospital who straight away drained our baby's chest by putting needle through my stomach and ultrasound to see where the needle was going. This gace relief to the chest a bit but the fluid instantly came back and much worse.

All our chromosmonal tests came back normal and they only gave our girl 50% chance survival rate. We went weekly to have chest drained until a week ago when there just wasnt much fluid anywhere so didnt have to have it drained. We went back this week and the hydrops has resolved itself which the chances of happening are minimal but my baby girl is proof that it can happen. The doctors were amazed as at that hospital they ahdnt seen it resolve, but it has happened before.

I think what Ive learnt with hydrops is there are so many different causes and different outcomes. I know many baby's survive this even if the fluid stays. Please dont read too much online because when I did that I literally thought my baby had no hope whatsoever as hydrops is badly researched.

Private message me if you want to hun, I know what a horrid situation and how nasty it is to have the weight of hydrops hanging over you, I am very lucky that I only had 4 weeks of hydrops.

Thinking of you

Kirsti