has anybody

[trying4#1]

hi

 

[AlwaysPraying]

We lost our baby at 15 weeks. He was diagnosed with Trisomy 13. It's a fatal condition that causes baby to have many severe mental and physical problems. I understand what you mean about poor quality / no life. With T13, his eyes may be fused shut, missing skin on his skull, his brain did not separate, his heart only had three chambers. This would mean he wouldn't have the ability to suck, see, or digest. Sorry to be graphic, but it's part of his little story.

Also, I remember that alone feeling. When we found out I was told that the doctor had only seen this condition presented in the way it was in 6 other patients in his career, and he's one of the four specialists in my country. We were 1 in 4,000 statistically. I felt so alone having no one know what his condition was, and still, like now, it's hard to have to explain it again and again.

If you'd like to talk I'm here, as are lots of other women. I know we have very different stories with very different diagnosis, but thought I'd offer up my story in case it would be any help to you at all.

 

[niusia]

it hasn't happened to me (or at least i don't know what was the cause of my mmc). it must be difficult trying for another baby but i hope you know that u have 75% of having a healthy baby. Good luck and I hope you'll find somebody to talk to.