High risk - Spina Bifida

Discussion in 'Pregnancy - Second Trimester' started by strawberrieve, Jan 23, 2011.

  1. strawberrieve

    strawberrieve Member

    Joined:
    Jan 23, 2011
    Messages:
    8
    Likes Received:
    0
    Hi everyone, this is my first proper post, I hope everyones well.

    I had some confusing and upsetting news today, my midwife came round and told me that my 16 wk blood test for spina bifida came back at high risk. I'm devastated, although she said that its only high risk she couldnt give me my score as in 1 out of however many. I've been taking folic acid from the start and eating well, so i'm wondering if i'm just unlucky.

    Has anyone else had this or know any information about it? I'm so worried and confused, i've to go back for an ultrasound on tues, so its just the waiting thats hard now. My fiance will be so upset, hes in the forces over in Afghanistan just now, this is out first after having a miscarriage early last year, so i'm praying everything will be fine.

    Any advice is appreciated. xx
     
  2. tabitha561

    tabitha561 Gary,CAYLEE,Zoey,Beetle

    Joined:
    Nov 14, 2010
    Messages:
    1,785
    Likes Received:
    0
    I have heard those blood test are very unreliable. That the baby can have a high risk and everything be fine. A big thing is just if it does have spina bifida it could be just a mild case. I never had any of those blood test because house unreliable they are. I am going to love my little girl no matter what. No matter what health problems or anything she has.
     
  3. Jessicax5

    Jessicax5 3DD+1DS <3

    Joined:
    Sep 29, 2010
    Messages:
    722
    Likes Received:
    0
    I'm sorry you're going through this. I don't have experience but I do know that triple or quad screen tests do come back with false positive quite often. I know you're worried but just think positive and you will know for sure on Tuesday. I'm sure everything will be ok though. :)
     
  4. My4thmiracle

    My4thmiracle Mummy to baby Nico + 3

    Joined:
    Nov 7, 2010
    Messages:
    1,624
    Likes Received:
    0
    Fingers crossed your baby healthy xx
     
  5. theresarhuebb

    theresarhuebb x mother of 3 x

    Joined:
    Jan 14, 2011
    Messages:
    1,764
    Likes Received:
    0
    sorry to hear your news, your scans will be more helpfull so dont put your self down. chin up and hope for the best. as for the partner i dont know how to tell him the news. when will you hear from home and when does he come home x
     
  6. lilly77

    lilly77 Mom to Kai & Ivy

    Joined:
    Mar 22, 2010
    Messages:
    1,556
    Likes Received:
    0
    just wanted to send you some :hug: and hope everything turns out fine for you and your bubs xx
     
  7. strawberrieve

    strawberrieve Member

    Joined:
    Jan 23, 2011
    Messages:
    8
    Likes Received:
    0
    Thanks everyone, i'm crossing everyhting for tue, its just the waiting thats hard. I've since found something online that said because the midwife didnt take my weight at the 16 wk test that could affect the result. i've put on a bit more weight and i guess i'm hoping that could have some impact on it.

    I'm still looking for statistics online... hoping to find something. Has anyone had a high risk and everything been ok? xx
     
  8. Chocciebutton

    Chocciebutton Well-Known Member

    Joined:
    Oct 16, 2010
    Messages:
    812
    Likes Received:
    0
    Hi, im hoping that the outcome is good news......sorry to sound a bit 'thick' but is there a blood test for this at 16 weeks and is it routine? I thought it was done at 12 weeks??
    (ive only had 2 babies before....you would think I would know lol!!)
     
  9. strawberrieve

    strawberrieve Member

    Joined:
    Jan 23, 2011
    Messages:
    8
    Likes Received:
    0
    Hi Choccie, yeh theres a test for downs, spina bifida and another one at 16 weeks. if its high risk u can have more tests for definitive outcome. thank u, im praying for good news on tue. xx
     
  10. Brieanna

    Brieanna Well-Known Member

    Joined:
    Dec 11, 2010
    Messages:
    2,073
    Likes Received:
    0
    Didn't want to read and run.

    I have also heard that these tests can be highly unreliable. I haven't gotten my results back yet for my tests, but the main reason I even did mine was because OH wanted to be better prepared. I didn't want to take them because of how unreliable they are and also, because I didn't want to spend the entire rest of my pregnancy worrying about something that might or might not happen. I will love my child no matter what, so the results do not matter except for me to be better prepared.

    I'm not sure how yours works, but if mine says that I am high risk after the ultrasound I think they can do an amniocentesis to see more, but since that has a rate of miscarriage I won't be doing that. I have heard of people who's test said they were high risk and then everything turn out fine.

    Good luck on your ultrasound on Tuesday. :)

    I was neighbors with a girl who had spina bifida and we played together and she seemed to have a normal life, so even though of course we all want our babies to be completely healthy, a child living with spina bifida can lead a normal life.
     
  11. Chocciebutton

    Chocciebutton Well-Known Member

    Joined:
    Oct 16, 2010
    Messages:
    812
    Likes Received:
    0
    ok...thanks strawberrieve....I had the downs test at 12 weeks and that came back as 1:2740 which is good considering im 39 in April. Does anyone know if this would have been tested for when I had the blood tests for downs? Strawberrieve are you talking about the triple test?
     
  12. spring_baby

    spring_baby <a href="http://pregnancy

    Joined:
    Dec 12, 2010
    Messages:
    1,007
    Likes Received:
    0
    Bit confused did you not have the nuchal scan at 12 weeks plus blood tests and then get offered the triple test at 16 weeks after, like choccie I am having my 4th baby and would think by now would understand,
    I had a nuchal scan and blood tests at 12 weeks and was told if there was a problem they would recommend the triple test and cvs at 16 weeks.
    My prayers are with you and yr baby that the test is a false negative, big hug coming yr way xx
     
  13. midori1999

    midori1999 Well-Known Member

    Joined:
    Feb 14, 2010
    Messages:
    3,396
    Likes Received:
    0
    There is a high risk of false 'positives' with the blood tests, so try not to worry too much, all might be fine.

    My friend's 13 year old daughter has Spina Bifida. You really wouldn't know, she is perfectly able bodied and plays lots of sports etc. Obviously she is at the mild end of the scale, but I also knlow a few adults with SB, some who have to use wheelchairs for part of the time and they are perfectly happy. It's not always the dreadful thing people imagine. :hugs:
     
  14. Semanthia

    Semanthia Guest

    Try not worry too much.I know it is easier said than done. I personally skipped those tests because they aren't very reliable and I didn't want the extra stress, besides they would tell you something like that at the anatomy scan.
    My sister's friend was told at her anatomy scan that her baby was going to have spina bifida and that they strongly suggest that she abort. Well she made the choice not to abort and her baby was fine, he didn't have spina bifida and he is a healthy 2 year old now. I just thought I'd share that nice story with you to hopefully boost your spirits! Be positive and try to relax until they give you an ultrasound that will tell you more.
     
  15. LittleSpy

    LittleSpy Well-Known Member

    Joined:
    Sep 28, 2010
    Messages:
    2,797
    Likes Received:
    0
    Exactly.
    The literature my OB office gave me on the quad screen states that 19 out of 20 positives are FALSE. So I've decided to not have the test because I don't want any added unnecessary stress like what you're going through right now and because it won't change anything for us either way.
    :hugs:
     
  16. SnapDragon

    SnapDragon Mum of 2

    Joined:
    Nov 11, 2010
    Messages:
    235
    Likes Received:
    0
    This happened to my best friend, not all that long ago. She was terrified as she didn't know if she would need invasive tests etc., but ultimately all it meant having further scans to check the baby's development. In the end her little boy is fine (currently 31 weeks). They say that it is possible that the case is so mild that there is not visible and will cause him no issue in his life, or it was so limited that it has minimised during development or just a false positive.
    I hope this helps put your mind at ease. x
     
  17. BabyBoyle

    BabyBoyle TTCAL of 2nd angel xx

    Joined:
    Jun 3, 2010
    Messages:
    935
    Likes Received:
    0
    Hi Hun I know everyone says it but the bloods are just a risk, baby may be fine. I work with a girl with spina bifida, she's stunning, does the hair of Paul weller and madonna and does get backache but she stands 14hr days.

    Also my ex dad has it, had an operation at birth and is fine n healthy n no problems.


    Every cloud & that babes but crossing fingers all is well xxx
     
  18. salander

    salander Well-Known Member

    Joined:
    Nov 15, 2010
    Messages:
    1,167
    Likes Received:
    0
    I was supposed to have the nuchal scan and blood test at 12 weeks but babs wouldn't move to the correct position so am booked to have the quad test on tuesday. I'm really nervous about having it and even if it comes back higher risk i won't be having the cvs. My fella thinks I should have it just to put my mind at ease, but there are so many false positives it will just worry me more...He also thinks that if it comes back higher risk then at least we can prepare ourselves...I just think with my age (35) is going to make it higher risk anyway....very frustrating just don't know what to do
     
  19. Sevenladybugs

    Sevenladybugs Well-Known Member

    Joined:
    Sep 3, 2010
    Messages:
    2,553
    Likes Received:
    0
    The AFP (test they do at 16 wks) is notorious for false positives. Try not to worry. Chances are your scan will show baby is just fine :hug:
     
  20. strawberrieve

    strawberrieve Member

    Joined:
    Jan 23, 2011
    Messages:
    8
    Likes Received:
    0
    Hi, as far as i knew i had a 12 week scan but wasnt aware of any nuchal testing, then i had they gave me the choice of having the blood test at 16 weeks. they could have checked the nuchal but just not told me, app my test for downs was ok but its just the sb now i'm worried about. thank u ur hug was much appreciated, i go from feeling ok to remembering about it. dont know how i'll be able to concentrate at work. xx
     

Share This Page

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
    Dismiss Notice