Im New, need info on Scoliosis and Muscle Dystrophy

[skinnyme]

Hi Im 29 and starting to think about having a baby. The thing is I have bad double S Scoliosis. had spinal fusion for it in my teens but have the classic rib hump, scapula winging and raised shoulder and hip on one side. I also have progressive Muscular Dystrophy (rigid spine spn1) As Mucular Dystophy is a muscle wasting condition I am keen to have a baby while Im fit enough.

Is there any mums out there who have scoliosis and MD, any stories to share.

I am also real interested in anyone who has had PGD which is a type of IVF that screens out genetic conditions MD.

Also use a nighttime ventilator for a respiratory condition caused by the scoliosis and Muscle dystrophy a sort of sleep apnea.

thanks

 

[xJG30]

https://i55.photobucket.com/albums/g146/GemLoux/Welcome.gif

 

[odd_socks]

hello and welcome :wave:

 

[angel2010]

https://www.babyandbump.com/baby-club/620304-ask-me.html

You should check out this thread ^^^ and see if there is anyone who could help (then pm them). Welcome btw!

 

[teal]

Hello and welcome xx

 

[robinator]

Hello!

 

[v2007]

Welcome.

V xxx

 

[lucy_x]

Welcome to BnB!

 

[cleckner04]

Welcome!! :wave:

 

[Vickie]

Welcome!

 

[vaniilla]

Welcome to BnB

 

[hakunamatata]

https://i1127.photobucket.com/albums/l634/hakunamatata2012/welcome2.gif