LJaydow
Jack, Elizabeth
- Joined
- Mar 29, 2009
- Messages
- 1,209
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Ladies,
A little girl called Estella died a couple of days ago aged 8 months old from SMA1 (Spinal muscular atrophy). Her mum and dad are on Twitter trying to raise awareness of SMA in her name.
Her story is here: https://www.bluebellwood.org/estella.php
Her funeral is tomorrow at 10.20, and they are asking for people to spread the word about SMA, and to light candles to help guide her on her way.
Her twitter page is https://twitter.com/#!/EstellaStar1
Wanted to try and raise awareness for her and her family - it wasnt something I had heard of before this.
A little girl called Estella died a couple of days ago aged 8 months old from SMA1 (Spinal muscular atrophy). Her mum and dad are on Twitter trying to raise awareness of SMA in her name.
Her story is here: https://www.bluebellwood.org/estella.php
Her funeral is tomorrow at 10.20, and they are asking for people to spread the word about SMA, and to light candles to help guide her on her way.
Her twitter page is https://twitter.com/#!/EstellaStar1
Wanted to try and raise awareness for her and her family - it wasnt something I had heard of before this.
