Little Estella Star

Discussion in 'Baby Club' started by LJaydow, Nov 15, 2011.

  1. LJaydow

    LJaydow Jack, Elizabeth

    Joined:
    Mar 29, 2009
    Messages:
    1,209
    Likes Received:
    0
    Ladies,

    A little girl called Estella died a couple of days ago aged 8 months old from SMA1 (Spinal muscular atrophy). Her mum and dad are on Twitter trying to raise awareness of SMA in her name.

    Her story is here: https://www.bluebellwood.org/estella.php

    Her funeral is tomorrow at 10.20, and they are asking for people to spread the word about SMA, and to light candles to help guide her on her way.

    Her twitter page is https://twitter.com/#!/EstellaStar1

    Wanted to try and raise awareness for her and her family - it wasnt something I had heard of before this.


     
  2. fedupwaiting

    fedupwaiting Well-Known Member

    Joined:
    Aug 14, 2010
    Messages:
    484
    Likes Received:
    0
    bless her wee soul xx
    children's hospices do amazing work and are so underfunded.

    glad the family have such positive experiences to remember of her little life

    fly high little Estella xx
     

Share This Page

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
    Dismiss Notice