Hi there,
You poor thing!! I feel your pain, although my situation is a little different. After measuring perfectly at about 19 weeks things went crazy very quickly for me and I suddenly started to measure up much, much larger (I will say massive like you too- scary!). I went from people not noticing I was pregnant if they weren't observant to looking close to full term. This was my second child and I went to the docs and she measured my fundal height. I was 20.5 weeks and measuring 26 weeks. 5 and a half weeks ahead. I knew i had a big baby too as at my scan 2 weeks earlier he was around two weeks ahead. When the doc measured me up she was concerned (I was sooo uncomfortable), and i was sent for the diabetes screener which i passed. She asked me to come back in two weeks, but I am assuming I continued to grow and a week later my membranes ruptured and I started to leak amniotic fluid. The docs did a scan and I was way, way over the top of the bell curve lines even after 2 full days of leaking. Most women would have lost all their fluid by this time, but I had so much. I was extremely lucky to only have a leak and not a full rupture and to maintain my fluid levels. I resealed and the polyhydramnios began again. It lasted for a few weeks and then settled down for me (luckily), but I am still big. I am not sure if there is still a slight leak that I don't notice or whether the situation has just normalised. Both situations are not good, but they have kind of helped each other a little and I have been lucky not to go into labour.
What have the doctors said they can do for you? I was told that they would consider an amnioreduction (where they do an amnio and remove the fluid) if my AFI went above 40. Luckily, things settled for me and it hasn't been necessary. I was very uncomfortable though, so I imagine that it must be torture for you as I know full term isn't comfortable at the best of times, let alone with excess fluid.
Have you been tested for gestational diabetes? Have they run any tests on bubs to make sure he/she is okay? Most often there is no reason, but they usually run the tests as it can indicate a problem. I think I will have more tests after bub is born (not sure now), but so far they have no reason for the polyhydramnios and everything looks okay.
Have they talked about early delivery at all? I know often you naturally deliver early or sometimes doctors decide to induce. Whatever happens, you are doing wonderful to hang in there for so long. I was dreading having poly in the later stages of pregnancy and am so glad that things seem more normal for me now. I really hope they can find some way to help you get some relief, but if not, think of that bubba that will be here soon!
Take care