My journey with breastfeeding! LONG and pic

bookworm0901

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I just wanted to share my story for other women who may be struggling with BFing and don't know why. :flow:

When LO was born, I was so excited to breastfeed! I didn't have any false ideas of it being easy, I knew it would be hard but I still wanted to persevere with it.

The first time I tried to breastfeed was a disaster. He wouldn't latch on at all. No matter what I did, I spent hours attempting to get him latched and nothing was working! The lactation consultants at my hospital were very kind but unconcerned and told me to just keep trying- he's a newborn, he's sleepy, he needs time to learn, etc. Finally, after hours of breastfeeding attempts I was able to discover tricks to help him latch. One trick was making sure my nipple was hard before I tried to BF, the other was pinching my nipple when I put it into his mouth.

I took him home and it was such a struggle. I was constantly trying new positions to help him. He couldn't latch very well, he was constantly falling off the breast, every once in a while he would breastfeed well and it would give me hope. But those sessions were few and far between. He was also constantly pulling off of the breast as if he was frustrated. He was constantly choking, making gulping noises, and acting uncomfortable and was diagnosed with acid reflux. He started medication but was still unable to breastfeed effectively. When my milk came in, I had oversupply issues. I thought the letdown was too strong for him and causing him discomfort. I tried tricks to decrease my supply but I was constantly engorged and I had mastitis THREE times.

I finally downloaded a nursing app on my Iphone that let me time his breastfeeding sessions. I forced him to breastfeed for 15 minutes (minimum) per feed because I knew he was giving up on the breast too easily and wasn't getting enough. By 6 weeks old, he was 12 lbs. No one was taking my breastfeeding concerns seriously because he was gaining weight, but I knew there was something wrong.

I finally gave up, and started exclusively pumping. For 4 weeks, I pumped every bottle. My freezer is full the top with milk. But to my shock and surprise, he was still unable to eat! Giving him a bottle was just as frustrating as breastfeeding. Well, not just as frustrating but close. I leave LO with my mom twice a week while I'm at school, and she could never get him to take a bottle. DH struggled as well and I was the only one able to bottle feed my baby. He acted the same way he did on the breast: struggling, pulling off, acting frustrated, squirming. At a pediatrician appt, she told me that he only eats half of what he should be eating at his age. At this point, formula was beginning to look like heaven. But I was determined to figure out what the problem might be. As a SAHM with only one baby, I had the time to pump all the time but if I were a working mom or a mom to more than one child, I believe I would have switched to formula long ago.

I always suspected my baby had tongue tie, because my mom and brother both do, but every time I try to check his mouth it doesn't seem to be a problem. Finally, during a night of research, I heard of something called lip tie. It's the same as tongue tie, but instead of the frenulum under the tongue, it's the frenulum under the top lip where it connects to the gums. I looked under my baby's mouth and this is what I saw:

lip tie.jpg

I knew I had found the answer. I researched lip tie and found conflicting results: some moms had trouble BFing a lip tie baby and some didn't. I contacted a pediatric dentist in my area and he said leave it alone- it won't effect the baby until he is older and is getting adult teeth. This seemed to be a general consensus. This answer wasn't good enough for me, my baby can't even drink a bottle! Finally, I discovered a doctor 3 hours away from me who specializes in frenectomies (cutting the tie) on infants.

Yesterday, my mom and I drove LO 3 hours for a consultation. The result is severe lip tie and a posterior tongue tie. A posterior tongue tie isn't visible in the way a regular tongue tie is, and babies with posterior tie often look like their tongues are normal. He performed a laser procedure yesterday (painless) and fixed my baby's mouth. LO had a swollen lip and seems to have a sore mouth, but is already doing infinitely better. He hasn't had a single bottle since the procedure (about 18 hours ago) and is breastfeeding again!! It's definitely not perfect yet because he is learning to breastfeed and to use his mouth differently, but he is already doing amazingly better than he ever has.

I am so thankful that I didn't take no for an answer, I feel like I can actually feed my baby now. His mouth is sore, but he breastfed from me all night last night so contently. I'm so glad I didn't give up. My LO has never had formula. There's nothing wrong with supplementing formula, or FFing but with all of my struggles I am proud that I still provided breastmilk for my LO.

Our journey isn't over yet, but I am so grateful for where we are now. :cloud9:
 
This is wonderful! I'm so happy for you. You pulled through and lots of other moms will have hope for their breastfeeding journey after reading this!
 
Well done!

It is great to hear mums who stick it out, no matter what, as they know its best for baby and it sounds like its been a long struggle. Hope the next part of your breastfeeding journey is a happy one!

Enjoy! :flower:
 
I'm so glad you got everything sorted!

My daughter has a lip tie and it caused a lot of feeding problems, she could drink fine but she shredded me, I had to stop at 7 months. :cry:
 
Thanks ladies! I just fed him so contently, it was amazing. DH asked me if he was asleep because he's never seen him eat that happily. Now I'm full of questions though, he only ate for 5 minutes! Now I'm worried about if he got enough. :dohh:

@wiggler- I can't believe you stuck with the pain for 7 months! That is definitely love! My LOs lip tie didn't hurt me too badly, it hurt him and his ability to eat. :cry: You are a wonderful mother for sticking it out for so long!
 
Thank you for sharing your story :) I too had a very difficult start but determinedly stuck at it and refused to give up. It was so worth it, and I hope your story can inspire other mummy's who are struggling. Well done on overcoming so many obstacles :hugs:
 
Thanks for sharing.

My Lo had tongue tie, it was picked up by the midwife at her home visit. She referred us to the local hospital when Lo was a out three weeks. The consultant there agreed she was tongue tied but wouldn't snip it because she was gaining weight.

My Lo was gaining weight because I had fast letdown and oversupply so she didn't need a good latch to have good milk transfer - but the pain from the bad latch was agonising and she was swallowing a lot of air too.

At about six weeks I mentioned the tt to a local hv who told me that the other hospital in the area (different pct though) snipped all tt whether or not the baby was feeding well. She referred me to a specialist midwife there who snipped it. The whole thing was over in minutes.

Lo's latch didn't immediately improve but over time it became more bearable and eventually pain free. I think she still has a lip tie (her top lip is often curled in when she feeds) but it doesn't seem to be causing problems). I do wonder if she'll have a gap vetween her top teeth though!
 
Thanks for sharing. My LO has a "minor" as they called it, tongue tie, and I do think he has a lip tie too, looks similar to your LO. I hated breastfeeding until about 3 months, when I think my nips got used to it and I did too...now it's okay...he is a feeder that tires out easily tho, I could have written this post-I also made mine feed for 15mins at least, forced...coz he was giving up too easily. The midwives said the doctors would do nothing about the tongue tie because he was gaining too...and I was so upset about that I never mentioned the lip tie. I have read they never sort out lip ties in the UK-are you in the US? Next baby-if there are any problems I am INSISTING they do something about it and that I know what I am on about! I wouldn't have had the confidence b4..
I think it's too late for this LO now unfortunately.
Well done for getting it sorted! Glad it's so much easier! Sounds WONDERFUL! :D

Edit: I have read about the gap in the front teeth thing, I think I can already see a gap forming tbh-and the other day my hubby told me that he used to have a gap in his front teeth b4 he got it fixed-you learn something new everyday! And I checked his lip for a tie, and yes he certainly has one too!...
 
@readytotry-I can't believe how much trouble we moms go through to get the help we need! Everyone was telling me to leave it be until they are older but I don't see the point. I would rather do it while he's little and be done. I don't want him to spend 10 years with his ties and then relearn to use his mouth as a preteen! Now it's done and he will adjust beautifully at only 3 mos old. Just because we moms are resourceful and will do whatever we have to do to help our LOs gain weight doesn't mean things are going well. Last night when he was fussy about his sore mouth, before I BF him successfully, I was getting so concerned about him going so long without eating that I fed him 5 oz from a medical syringe. :dohh: after he filled his belly and wasn't desperate to eat, he breastfed for the first time and it was wonderful.
 
@mrspmp- yes, I'm in the US. The procedure cost $500 but It was worth it. I think they probably don't sort out lip ties in the uk because its considered cosmetic? Most people fix it for the gap and don't realize the nursing problems it can cause!

According to some pediatric dentists I talked to, they leave the lip tie until LO loses baby teeth and if they get to it before adult teeth come in it fixes the gap. But because my baby can't eat, I pushed to fix it. Your LOs can still be fixed to avoid the gap and if they do a laser, it's pain free.
 
@mrspmp- the doctor that fixed it told me about lip tie causing babies to tire out cause it takes so much effort to eat!

Most people count fingers and toes when LOs are born....with number 2, I'm looking straight in the mouth!
 
Well done you!!! Breastfeeding is difficult as it is without additional 'issues' I had mastitis for 4 weeks then a breast abscess for 2weeks after...it was hell, I felt awful for nearly two months, double strength antibiotics for 6 weeks which gave my LO a bad tummy :-( But I am so proud that at nearly a year we are still bf.

The strange thing is some of my friends assume that I am a ridiculously pro bf and against ff - actually since I have had the experiences I did I 100 % understand why not all women bf...it's bloody hard going and everyday for months I said it would be my last day!
 
What a journey, and such a happy ending! Kudos!
 
The strange thing is some of my friends assume that I am a ridiculously pro bf and against ff - actually since I have had the experiences I did I 100 % understand why not all women bf...it's bloody hard going and everyday for months I said it would be my last day!

You poor thing! I only had it for a few days each time. I could not do a month- I couldn't even function!

I agree with u 100% about FF, anyone that can stick out Breastfeeding is great, but there is nothing wrong with those who can't and they are great for the attempt. It's hard and I almost gave up daily for 3 months :haha:.
 
That pic looks exactly like my LO's lip. And we have also had a lot of trouble with breastfeeding, we're getting there now though!
 
How wonderful of you to share your story - I'm sure you've given hope to a lot of other women.

I had a nightmare with breastfeeding to begin with partly because of tongue tie, and it's still a struggle at times but thankfully, despite my LO gaining loads of weight we were offered the tongue tie procedure and had it done at 3 weeks. It made literally a world of difference.

The other day I wanted to take a picture of his frenulum labii superiosis to show you in your journal and although he wouldn't let me take a pic it looks to me as though he actually has a mild lip tie too! But I don't think it's problematic to him and it's not nearly as severe as yours was.

Thanks for being an inspiration to people!:flower:
 
Hmmm...

I just did a little more research and I realised my LO definitely has lip tie. And suddenly a whole bunch of stuff with regards to our BF problems suddenly makes perfect sense.

Bookworm, thank you so much for highlighting this. I guess I'll never be able to get this fixed here in the UK but at least I've found this advice on how to improve his latch and make it less painful for me when I feed him. Maybe it'll also encourage him to feed longer and sleep a bit longer between night feeds!
 
Ready- that is a symptom of a lip tie baby that I was shocked about- frequent night wakings! Eating is such a struggle that the baby tires out before he's had his fill and needs to eat again sooner. My LO is already showing signs of sleeping better at night. I thank u for the article! Even though I no longer have a lip tied baby :)happydance:), my baby has the habits of a lip tie baby and I love the technique to latch them better, he's used to curling his lip in. I'm waiting until his wound heals before I really force him to flange his upper lip upward, should only be another day or two, I hope!
 

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