NT scan results - so confused :(

[hanrh]

Hi ladies

I had my 12 weeks scan yesterday and I have been left feeling so upset and confused. We were told the baby had more fluid than 'normal' at the neck (5mm) and also fluid down its back. We have been booked in to see a specialist on Tuesday and to have the cvs test to rule out chromosomal abnormalities. The midwife told us she thought the baby probably wouldn't survive much longer but wasn't able to say much more.
I am distraught and don't know what to do as this is just not something i know about!
I would really appreciate it if anyone has any experiences or advice to share. I am going out of my mind here and Tuesday is so far away!!!

 

[Rainbow82]

I'm really sorry about your scan, I don't have any advice in afraid but wanted to offer some hugs. Can you ring your midwife or ob for more information?

 

[hanrh]

Thank you for your support rainbow. I am going to wait to see the specialist on Tuesday before speaking to my midwife.

 

[Ducktales]

hanrh - massive hugs.
Its not fair that they are making you wait until Tuesday, the one thing I will say is that they could be wrong - until you have CVS or amnio results I would try and keep as positive as you are able. The specialist will be so much more knowledgeable.
Try and keep as busy as possible and off google as it will have all kinds of "helpful" stories.
I will be thinking of you on Tuesday.
xxxx

 

[Rainbow82]

I hope the midwife in Tuesday will be a little more positive it's seems a bit unprofessional to tell you baby may not survive long then not follow it up with any details.

A quick google search throws up this thread on another forum which may offer done comfort.

https://www.netmums.com/coffeehouse...13-nuchal-scan-fluid-around-baby-cvs-all.html

The OP and from what I can tell all the others ended up with a beautiful baby in the end. I hope that it will be the same for you and the CVS will have some good news.

 

[hanrh]

Thank you ducktales - I am hoping you are right and that the specialist is helpful.

Thank you again rainbow, that's a really positive thread and sounds similar to my story. That has given me some hope! X

 

[ajarvis]

Seems pretty irresponsible of your midwife to make a statement like that with no explanation!!

 

[Jenny Bean]

Wow,
I am finding doctors and midwifes have zero compassion when it comes to stuff like this.
Good luck to you!
I will be thinking about you on Tuesday!

 

[hanrh]

Thank you both. The more I think about how it was handled the more angry I feel about it. I will update on Tuesday.

 

[SoBlessedMama]

Hanrh, I'm SO sorry your midwife left that so up in the air, and that you're having to wait so long for further testing and results. I don't have any advice, but sending you massive hugs--I'm praying you have wonderful results Tuesday. Will be checking back in, hoping for a positive update!

 

[thurl30]

So sorry to hear this what an awful experience, I have no knowledge of this but just wanted to send you lots of luck and best wishes

 

[Hangin_On_AGS]

Oh hunny!! Hugs hugs hugs!!!! Hopefully Tuesday will bring some better answers and some more compassion!

 

[hanrh]

Thank you ladies. You are all so kind. I truly appreciate it. X

 

[Mum22GTTC]

I'm so sorry you're midwife was so insensitive!

My situation is different to yours but just to give you some hope & a positive story - in three of my pregnancies I have received high risk results for chromosome abnormalities. I then went on to have amnios in my first pregnancies & a CVS in this pregnancy. Each time the tests have gone on to confirm that the babies are just fine All that worrying & stress in waiting for the tests, then waiting for the results has been a waste. I know it's easier said than done, but try to stay positive. I really do not think your midwife should have made that comment, so just push those words to the back of your mind. Best wishes to you xxx

 

[lilegg2014]

Hiya hun,

I am very sorry about how your scan went. When I was pregnant with my little girl that I lost, she had what you described I think. She had a cystic hygroma and fetalis hydrops. It turned out she had Turners Syndrome, which is a chromosomal disorder. Sadly she didn't make it, but I just want you to know that I am here for you and I understand the pain you must be feeling. Stay strong.

 

[_jellybean_]

I'm so sorry you're going through this. Your midwife didn't handle this well at all. Sending you hugs.

 

[Mintastic]

Oh no! So sorry hanrh - as everyone else has said I think it is terrible the way your midwife handled it and waiting until Tuesday for answers (and possibly longer? Dunno when you will get the results from Tues back) sounds excruciating.

Definitely praying hard for you and your baby.

I don't want to give you false hope if something is very wrong but just a few days ago a woman I work with told me she got bad NT results for her youngest son (don't know if it was genetic risk factors or fluid like you have) but that when she went for CVS everything was fine. Her son is in Kindergarten now.

 

[smoore]

I agree that your midwife handled it badly.

I hope that everything turns out well. I think it is good that you had the NT scan so if there is something going on they were able to catch it. During my last pregnancy, they skipped the NT due to having a different early scan. I found out that I may have been able to have a warning of issues to come rather than being blind sided as I was.

I am glad you are seeing a specialist and hope for the very best for you. Please update us when you see the specialist.

 

[hanrh]

Thank you everyone.

Mint - it's always nice to hear positive stories. I have read quite a few online (I know I shouldn't be googling!) which is helping me stay positive!

Apparently we should have initial results back by Friday and then full results the week after. I am hoping the specialist will be able to shed a little more light on the fluid around babies back as that's the thing worrying me at the moment!!!

Again, thank you for all your kind words, it really does help! X

 

[tootyfruity]

I hope everything turns out positive for you! its awful not knowing what's going on especially as you've waited this long so far!