Our Journey with Brachycephaly.

Discussion in 'Toddler & Pre-School' started by Babybump87, Jun 25, 2020.

  1. Babybump87

    Babybump87 Mummy to my three musketeers

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    It’s a very strange time !! Oh I’ve not noticed anything with DSs hair apart from a slight cows lick at the front where it seems to always go over the top of the helmet ! Pineapple head we call it !! I’m sure Enzos will grow back in a few weeks !

    Awww that’s amazing I’m glad he had a lovely day with family !
     
  2. Babybump87

    Babybump87 Mummy to my three musketeers

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    Update from today’s appointment ! He is now 90% down for 97% and 1% asymmetry from 4%!

    We was going to finish today but decided as there has been improvement to go another 6 weeks to 30 Jan and then we will fully finish treatment ! I am sooo happy !!

    The silver pic is a scan of his head from his first appointment in June and the gold one is today’s! Soon as the specialist took his helmet off she said wow you can defiantly see the roundness ! So my eyes wasn’t tricking me! It’s a totally different head shape !!

    View attachment 1092048
     
    #102 Babybump87, Dec 19, 2020
    Last edited: Jan 3, 2021
  3. Bevziibubble

    Bevziibubble Well-Known Member
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    Wow, that's great news!!
     
  4. Babybump87

    Babybump87 Mummy to my three musketeers

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    I am actually amazed that he has gone from severe to on the edge of mild ( he only needs to shift 1 1/2% to be in mild) in just 25 weeks of having the helmet .

    Mild is where I hoped in my heart he would be and my aim for him and knowing he’s closer to it . I know it’s only a chart and seeing visually is more important though. I do think any further improvement over the next six weeks would be a bonus ! So fingers crossed for bonus improvement he deserves it after being such a trooper !
     
  5. Bevziibubble

    Bevziibubble Well-Known Member
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    Such amazing progress! You must be so pleased :cloud9:
     
  6. HLx

    HLx Mummy to Layla, George & Enzo <3

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    Absolutely amazing! So proud of you and your little dude! It's the home stretch now hun you've all done fab! <3
     
  7. Babybump87

    Babybump87 Mummy to my three musketeers

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    Thanks lovely !

    Just can’t believe it he’s gonna be fine not that he wasn’t anyway but you know what I mean. it’s such a relief!

    How are you and Enzo ? Xx
     
  8. Babybump87

    Babybump87 Mummy to my three musketeers

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    We have a cracked helmet ! Such a good job we are near the end of treatment otherwise I would be asking for a replacement ! Kinda annoyed though as it shouldn’t break !

    He fell and knocked his head on DDs bunk beds, must have hit a soft spot on the helmet at the top and it completely cracked and a few pieces fell off !! I managed to do a bit of DIY on it ! Thankfully it was only the outer shell !

    I just hope it lasts 4 weeks to go !!
     
  9. Bevziibubble

    Bevziibubble Well-Known Member
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    I'm sorry that the helmet got cracked. I'm glad he had it on and so didn't end up hurting his head, but like you say they surely shouldn't break that easily!
     
  10. Babybump87

    Babybump87 Mummy to my three musketeers

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    Oh gosh it could have been so much worse without it on ! Going to be lots of bumps and bangs when he’s got it off !
     
  11. HLx

    HLx Mummy to Layla, George & Enzo <3

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    Oh wow the helmet should not crack! Enzo hit his hard so many times and it never broke, thank god your so close to the end now hun! X
     
  12. Babybump87

    Babybump87 Mummy to my three musketeers

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    I know I’m still annoyed by it to be honest ! I’ve had to just use black tape to cover the top ! I will post a pic actually ! There’s also a hairline crack but I managed to glue that over that’s why it’s shiny ! Thankfully his hair always comes over the top of the helmet and anyhow it’s back to lockdown !
    How are you all getting on ?! 3 weeks and counting for us !

    View attachment 1093095
     
  13. HLx

    HLx Mummy to Layla, George & Enzo <3

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    Thats shocking actually you would have thought with TIM being a major company they would use the highest quality helmets. I saw so many posts on Facebook about the same issues with the same brand unfortunately, but I'm just glad your 3 weeks away now! We're doing so so well, Enzo's hair is just absolutely wild now, it's growing from all angles! I can't believe we are 2 and a half months post helmet! It feels like we never even had the treatment now! X

     
  14. Bevziibubble

    Bevziibubble Well-Known Member
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    Yay! He's so cute :)
     
  15. Babybump87

    Babybump87 Mummy to my three musketeers

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    I know we have 2 weeks 2 days to go otherwise I would have complained for sure !!

    awww he’s adorable look at his long hair !! I feel like I’ve watched him grow up with all the pictures ! He looks so happy and amazing !!

    Glad your all doing so well !! My DD1 is so excited for his helmet to come off she keeps asking me everyday how many more days ! It’s going to be weird adjusting to life without it and the many bumps he’s going to get !
     
  16. HLx

    HLx Mummy to Layla, George & Enzo <3

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    He hasn't been a baby for two minutes:( it doesn't even feel like we've had a helmet on now either! Times just going too fast, he's 14 months old already!

    Good luck for the last fortnight in the helmet! <3
     
  17. Babybump87

    Babybump87 Mummy to my three musketeers

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    I feel like that with J too . Maybe it’s because they are our third child? Time for sure needs to slow down a little haha!
    Thanks I will post our final update ! Cannot believe I am even writing that ! 2 weeks today eeek !!
     

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