PCOS - Advice Please?

[scrunchie]

Began TTC in november. Came off the BCP after 8 years.
Had on withdrawal bleed, then a 47 day cycle followed by very light 2/3 day AF, then . . . nothing. I am currently on cd90. 2

Went to the doctor today.
I have to say he was brilliant, very thorough and I was very impressed with how he treated me.
He thinks I may have polycystic ovary syndrome. I was okay when I left the surgery, and upbeat when I told my husband on the phone . . . have gone downhill ever since!
I feel devastated. I know it's not the end of the world and that doc may be wrong but I’m still worried.

Took me a while to put up this post. Wasn’t ready to share straight away.

Doctor said he could give me something to kick start AF but he didn't want to just in case it would make things worse.
He's referring me on to a gynaecologist.
Gynae's secretary 2ring me 2mro 2give definite date. I assume there's a bit of a waiting list!!!

Just wondering if anybody has any experience of this and what can I expect?
Will my fertility be hugely affected? Is there anything that can done?

Any advice is greatly appreciated.

 

[DiddyDons]

Hi hun, I have PCOS and I am 21...If you want to ask anything...ask away!

 

[nnn84]

Hey Girls,

Im in the same boat. I have just been diagnosed with PCOS. We started ttc in September after bcp. My first cycle was 130 days with very light

My second cycle was 40ish days long and I had a chemical Pregnancy I was then told I had PCOS during an internal scan.

then arrived in full swing.

Im now cd21 and still waiting to ovulate! My doctor has also been very good, If I haven't had any joy with by August I will then be referred to a specialist where Clomid will be offered.

I thought I was ok with knowing I had PCOS, as at least I then knew what was wrong. But the longer it goes on for without ovulating, or the more I feel it hurts

 

[beauty]

WOW.. this is scary!
I have stopped BC in September period arrived 60days ltr and since then they range from around 35 - 48 days.. I am on cycle 6 well just finished as the witch arrived and i have yet to have a BFP.. therefore I am worried that i might have the same?? Doctor did some blood tests and all ok he checked for throyids and hormones etc and all ok, i have been referred to gyno tho as had two day 21 tests and all negitive, this could be due to taking the test wrong time as my CM believe me to think i do ovulate but cause cycles vary i dont know when!!

x

 

[scrunchie]

Yeah, I have to say I'm gutted and I'm even more down 2day than I was yesterday.
It's so frustrating knowing that I'm not ovulating. We've put so much effort into trying to catch that egg every month since november . . . just in case.
And I've done loads of hpt, each time getting my hopes up, only for them to be dashed again.
I just don't know enough about pcos and of course I'm thinking the worst! Doctor did give me some info but I don't feel any the wiser!
Part of me is still hoping that it's just my body readjusting to coming off the pill. Either way, I'm fed up of waiting.
I'm also angry with myself for not ttc earlier. The doctor did say the other day - "don't worry, your still young. you've got loads of time!"
Easy for him to say! I always wanted to be a young mum (I'm 26 now - not exactly a spring chicken!!! ) and hoped to have all my brood before I'm thirty.
My hubby is 33. I suppose I'm even more anxious for him. He really wants to have a family and he kinda feels like there's a huge ticking clock behind him.
I feel I'm letting him down. I know he doesn't see it that way, but it's hard for me not to.

 

[scrunchie]

WOW.. this is scary!
I have stopped BC in September period arrived 60days ltr and since then they range from around 35 - 48 days.. I am on cycle 6 well just finished as the witch arrived and i have yet to have a BFP.. therefore I am worried that i might have the same?? Doctor did some blood tests and all ok he checked for throyids and hormones etc and all ok, i have been referred to gyno tho as had two day 21 tests and all negitive, this could be due to taking the test wrong time as my CM believe me to think i do ovulate but cause cycles vary i dont know when!!

x

I don't know what to tell you beauty. Maybe if you express your worries to your doctor he may be able to tell you. Gynae will definitely know what's going on. sorry can't be more help

 

[DiddyDons]

Hey Girls,

Im in the same boat. I have just been diagnosed with PCOS. We started ttc in September after bcp. My first cycle was 130 days with very light

My second cycle was 40ish days long and I had a chemical Pregnancy I was then told I had PCOS during an internal scan.

then arrived in full swing.

Im now cd21 and still waiting to ovulate! My doctor has also been very good, If I haven't had any joy with by August I will then be referred to a specialist where Clomid will be offered.

I thought I was ok with knowing I had PCOS, as at least I then knew what was wrong. But the longer it goes on for without ovulating, or the more I feel it hurts

I am so sorry to hear about your chemical! I know how it feels to know your not ovulating! as you can see by my sig I went 2 years without ovulating before....But I think my case is a little worse than what others are! PCOS is actually very common and alot can be done to help you out..I hope you get your bfp soon!

WOW.. this is scary!
I have stopped BC in September period arrived 60days ltr and since then they range from around 35 - 48 days.. I am on cycle 6 well just finished as the witch arrived and i have yet to have a BFP.. therefore I am worried that i might have the same?? Doctor did some blood tests and all ok he checked for throyids and hormones etc and all ok, i have been referred to gyno tho as had two day 21 tests and all negitive, this could be due to taking the test wrong time as my CM believe me to think i do ovulate but cause cycles vary i dont know when!!

x

I think you should ask for a scan hun just to make sure! All of my hormones and everything were fine and I just thought I was a late developer....but after i peed on a opk and I had positives for over 2 weeks (and still do) I knew something wasnt right. Maybe you can try that and see if you are also getting positives?!

Yeah, I have to say I'm gutted and I'm even more down 2day than I was yesterday.
It's so frustrating knowing that I'm not ovulating. We've put so much effort into trying to catch that egg every month since november . . . just in case.
And I've done loads of hpt, each time getting my hopes up, only for them to be dashed again.
I just don't know enough about pcos and of course I'm thinking the worst! Doctor did give me some info but I don't feel any the wiser!
Part of me is still hoping that it's just my body readjusting to coming off the pill. Either way, I'm fed up of waiting.
I'm also angry with myself for not ttc earlier. The doctor did say the other day - "don't worry, your still young. you've got loads of time!"
Easy for him to say! I always wanted to be a young mum (I'm 26 now - not exactly a spring chicken!!! ) and hoped to have all my brood before I'm thirty.
My hubby is 33. I suppose I'm even more anxious for him. He really wants to have a family and he kinda feels like there's a huge ticking clock behind him.
I feel I'm letting him down. I know he doesn't see it that way, but it's hard for me not to.

Hun I know its scary but PCOS isnt the end of the world! There are alot of things that can help with it! Such as weight loss or weight gain (im not saying anyone is fat or over weight or underiweght...) I am underweight and I sactually just found out this can be related to PCOS...as is overweight people....
Accupunture is top on my list...if anyone can afford it I would recommend that...there are so many success storys with PCOS sufferers and people start oving more frequent after trying it!

Theres also metformin (which is what I am on) and clomid aswell that can help you ovulate!

If anyone wants to ask me anything please feel free to..

Donna xxx

 

[beauty]

I havent gotten a positive off an opks since tried using them.. I havent seen a positive either but cause my periods are quite long i cant say i have tested at the right time either.. i seem to test quite and run out of opks on around cd24 and i dont think i ovulate if i do going off last two periods until around cd31 so i guess i will have to wait and see!! Thanks for advice girls xx

 

[LankyDoodle]

Am so sorry, hunny. I have to say that I feel male GPs tend to be a little more sympathetic and concerned with regards women's problems. I am not sure why. My GP is male, but re my women probs I have always gone to an alternative, female dr int he surgery. I have never received better treatment than from my own male GP, though.

PCOS is not a nice thing to be diagnosed with (if you do have it), but you CAN still have children. It may take longer or it may take some help, but it can still happen!

 

[scrunchie]

Am so sorry, hunny.
PCOS is not a nice thing to be diagnosed with (if you do have it), but you CAN still have children. It may take longer or it may take some help, but it can still happen!

thank you. it's really nice just to hear that it can still happen

 

[scrunchie]

Hun I know its scary but PCOS isnt the end of the world! There are alot of things that can help with it! Such as weight loss or weight gain (im not saying anyone is fat or over weight or underiweght...) I am underweight and I sactually just found out this can be related to PCOS...as is overweight people....
Accupunture is top on my list...if anyone can afford it I would recommend that...there are so many success storys with PCOS sufferers and people start oving more frequent after trying it!

Theres also metformin (which is what I am on) and clomid aswell that can help you ovulate!

If anyone wants to ask me anything please feel free to..

Donna xxx

thanks so much Donna. feel much more hopeful and positive now. would definitely give accupuncture a go