Plagiocephaly/brachycephaly diagnosis/awaiting treatment journal

Discussion in 'Baby Club' started by HLx, Apr 3, 2020.

  1. HLx

    HLx Mummy to Layla, George & Enzo <3

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    I know! Even the bumpy bits at the back of the head are not visible now, probably because he has so much thick hair covering it! I really dont see us needing it for 5 more months, I say 3 max, which means october, and hes 1 in November, so i have everything crossed!
     
  2. Suggerhoney

    Suggerhoney TTC our Rainbow baby ❤

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    Awww yay I found ure journal hon.
    Hope little man is doing OK
     
  3. Babybump87

    Babybump87 Mummy to my three musketeers

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    Fingers crossed for a October graduation! That would be amazing ! I know what you mean about his hair covering . DSs is the same makes it a tad harder to notice any changes ! Xx
     
  4. HLx

    HLx Mummy to Layla, George & Enzo <3

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    *UPDATE*

    We had our appointment yesterday, Enzo is down to 90% and hes at 6mm when we started at 19mm! Hes channelled a total of 29mm in just under 3 months!! We were told 7 months for treatment, but as it seems Enzo is a serial growth spurter, we are looking at only another 1 or 2 more months in the helmet! That's only if he keeps growing at the rate he has been. So so so happy, we are well into the green zone now!
     
  5. Babybump87

    Babybump87 Mummy to my three musketeers

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    Ooo was looking for your update yesterday !

    Wow that’s just amazing ! The difference is incredible

    Woop for the green zone !!
     
  6. Bevziibubble

    Bevziibubble Well-Known Member
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    That's great news!!
     
  7. missielibra

    missielibra Well-Known Member

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    Thats amazing news! So glad.it helped so much and that his head is doing so much better!
     
  8. HLx

    HLx Mummy to Layla, George & Enzo <3

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    Were now at 88% brachy, and down to 5mm plagio! Almost there!
     
  9. Bevziibubble

    Bevziibubble Well-Known Member
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  10. Babybump87

    Babybump87 Mummy to my three musketeers

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    Oh wow that’s amazing !!
    I can’t believe how much it’s improved !
    Is it just mainly working on getting the branchy down now then as his plague is so close to normal ?

    These charts still confuse me all these weeks in haha !

    Have you had any comments of the other mums in the school yard yet ?

    So happy for you all !! Amazing
     
    #150 Babybump87, Sep 9, 2020
    Last edited: Sep 14, 2020
  11. HLx

    HLx Mummy to Layla, George & Enzo <3

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    Thanks hun! Hes doing amazing! I think so.. tbh I think she just wants to get to the corner of his chart which is practically perfect I think, his chart said he's now in the middle of the bottom corner which is perfect measurements, and the end of the green zone, so to me he still has a perfect head of course, you can't even see no difference now, his hair has over grown the last of any lump or bump! :haha:

    Weve had a few stares, but tbh, I have a lot of the school mums on my Facebook and I obviously put pictures of him wearing it on there, so its not a bit shock to a lot of them, but there are others we've not seen since before lockdown and I think they wonder what the helmet is for, and as its personalised with his name on it kind of looks like he wears it for fun :haha:

    How's your little dude doing, ive not been on here in forever!
     
  12. HLx

    HLx Mummy to Layla, George & Enzo <3

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    You would never think he had severe brachy and plagio now!

     
  13. Bevziibubble

    Bevziibubble Well-Known Member
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  14. Babybump87

    Babybump87 Mummy to my three musketeers

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    Ahhh wow that’s just amazing !! I love hearing how he is doing and the great progress !

    Haha I’ve had a few looks at school too but also a few reassuring comments from mums who have had other friends kids wearing them. It’s funny the ones who look but are too worried to ask !

    Ahhhh he’s tooo adorable !! He’s a proper little boy now ! Handsome little fella!

    We are going next week for our appointment ! Always get nervous before we are due to go. He’s been doing great apart from teething !

    There’s defiantly an improvement in his head shape I don’t immediately notice anything now and you can see the roundness at the back from the side now as opposed to just all flat . I can feel it too. So I’m hoping for lower down the chart !
     
  15. HLx

    HLx Mummy to Layla, George & Enzo <3

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    Hahaha I know I have it in supermarkets, today in Lidls an old lady stopped and said beautiful weather, isn't he going to be too hot in that winter hat? I actually had to hold in my laughter... winter hat, I've never seen a winter hat look like a helmet before! :haha: but I was polite about it and explained, and she did apologise, but that's been the best so far :haha:

    Thats amazing hun! Do you have an inkling on how long he may have to still wear it? Out next appointment now is the 4th October, then he turns 1 in November, its a push again time and I don't think he will be put of it by then, but it is possible x
     

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