Possible hearing loss

[MrsRabbit]

DD has been tested with and without fluid in her ears and she is coming out "not within normal range" for her hearing. Next month she goes into the hospital to be sedated for a better exam and hearing test. Possible tubes.

Anyone have any experience?

 

[mommy43]

my daughter whos now 16 has severe hearing loss in one ear we think due to her being premature it was missed in her early hearing test as they werent as thorough then when she was 7 we actually noticed her favouring one ear n took her to gp she was refered to hospital n had lots of tests she has almost complete loss of hearing in one ear she had a MRI to rule out anything internal n discovered the nerve is actually damaged on the left side n she has slight loss on the right unfortunatly because of the type of hearing loss she has she cannot have an implant on the left as this works with the nerve n a hearing aid wouldnt work either she has had a hearing aid for the right n is waiting for a new set that works by using the right ear as a mater aid she will have an aid for the left but it will send all info to the right its not the usual type of hearing loss a youngster has i also have a friend who is completely deaf n have been involved with a school deaf unit
have u looked at the different types?? is it something u noticed? is it both ears?
if its not complete loss hearing aids work very well n are very much smaller than they used to be has she had problems with her ears infections ect? lots of infections can block the ear canal maybe she needs cromets? sorry for all the q's

 

[MrsRabbit]

She has only had 1 double ear infection back in June. Her doctor has noticed "fluid" several times and she'd mess with her ears. I'd bring her in and it would just be fluid. We tried Singulair but she got the poops from it. She did not have fluid when they tested her hearing this week.

The doctor said he'd hoped their would be fluid.

She LOVES music and will perk up and even dance or rock when she hears music. We do however have to call her several times loudly for her to respond. She's also become more and more behind with her speech. Last week she was being evaluated since she used to get PT and she scored at 7-10 months on one part and 9-12 on the other.

She turns her head sideways with her right ear toward the object when trying to listen. I thought she was just being cute but now I wonder since her left ear tested worse than her right.

She does have severe reflux - which may account for the fluid - getting forced up there. I used to suction vomit, formula etc out of her nose daily when she was younger.

 

[mommy43]

what shes doing sounds very much like my dd favouring her right ear tbh the music is really no indication as children with hearing loss wether slight or complete can actually feel the vibration from music but if she is responding to you calling eventually is a good sign tbh the test they do now are so much more advanced than when my dd was small u said she was going to be sedated it may just be an internal blockage which will be stopping her from hearing im guessing thats what they will be looking for anyway feel free to pm me i'll do my best to help n let me know what happens next month

 

[MrsRabbit]

Thank you! I will update. From another friend who has a child with hearing loss she asked me to ask in Pre-Op if they'll be doing a special kind of hearing test which has to be done under sedation. She says it's the ONLY way they can tell to the extent her hearing loss is.

IDK. This is all new for me. I'm just hoping right now to get DD through this. This will be the third time she's been sedated already in her short life. With her possible asthma there is always a worry she'll respond badly. Also the ENT does not work out of the children's hospital. The nurses here in town are not always as good as they should be with kids - like not knowing how to do a blood draw with an infant etc.

 

[Marleysgirl]

My little boy Andrew has just been fitted with hearing aids.

He failed the newborn hearing test (done just before he was discharged from NICU) and subsequent testing showed that his auditory nerve hasn't formed properly (sensori-neural hearing loss). He may also have conductive hearing loss, they don't really know.

Testing at this age (1yr+) seems to be based on behaviour and responses to sounds, he's not performing very well at the tests and they have set his first aids to quite high a level.

However, with or without the aids he seems to be very intermittent with his responses. Sometimes he will respond to us calling him, other times he won't. He doesn't startle to loud noises at all. And naturally his speech development is delayed - but the specialists aren't worrying about that until they can help his hearing loss.

 

[MrsRabbit]

DD has started signing. She began signing eat a couple weeks and just now signed more eat.

 

[aliss]

MrsRabbit. No experience in your particular situation but I have hearing loss in one ear. Obviously the tests I did (1989-1990) were a lot different. There are so many new advances nowadays, I hope you find some solutions for her. Excessive fluid in the ears was a frequent occurrence growing up. Good luck with the tests!

 

[april17th2007]

My son is 1yr old and he was diagnosed with no hearing at the age of 4 months or so. He had some hearing in his right ear but has now completely lost it. He went through a lot of tests and all, they even did a surgery to try and save his hearing in his right ear.

He now signs and is the happiest little thing ever! haha

Let me know if I can help you in any way!!

 

[MrsRabbit]

DD had tubes placed last week. She had one heck of a sinus infection. The structure of her ears, sinuses, palate appear normal. We go back the end of March for a repeat hearing test. That will tell us what happens next. If her hearing is still poor we discuss 'options'.