Recurrent Miscarriage Thread

[Hope39]

I didn't have intralipids hun, he doesn't prescrobe them to everyone and you won't get intralipids on the nhs anyway. Intralipids have to be paid for at £450 a time !!

He prescribes prednisolone on the nhs and if you still miscarry on Prednisolone he will add in hydroxycloroquine xx

Intralipids is an egg yolk based transfusion, have there really been deaths from them? He isn't getting confused with Ivig transfusions is he which are completely different and you can have a reaction to them? I might be wrong but I thought intralipids were very safe xx

 

[Trying4first1]

Wow! There is no way me and DH could ever afford that.

Glad that the Other drugs are on the NHS that's good to know. I wonder why the NHS in general won't prescribe. I'm getting the vibe that they won't give me anything.

I'm sure that my gyne said that it was the intralipids. I will ask again when I see him next. There is so much to think about. However I know I can't worry about it yet until our genetic results are back and until I have had my hysteroscopy.

With the genetics they are testing the pregnancy tissue but they said about me and DH having bloods. Not heard about this since. I wonder if we have them taken when we go in for the results on the pregnancy tissue? They spoke to me after I woke up from my op. My head was all over the place so I can't remember much of what I was told Xx

 

[Tasha]

From what I have read it's only premature babies that have died from intralipids. I'd imagine they're were egg reactions since it was breathing related.

 

[Hope39]

Wow! There is no way me and DH could ever afford that.

Glad that the Other drugs are on the NHS that's good to know. I wonder why the NHS in general won't prescribe. I'm getting the vibe that they won't give me anything.

I'm sure that my gyne said that it was the intralipids. I will ask again when I see him next. There is so much to think about. However I know I can't worry about it yet until our genetic results are back and until I have had my hysteroscopy.

With the genetics they are testing the pregnancy tissue but they said about me and DH having bloods. Not heard about this since. I wonder if we have them taken when we go in for the results on the pregnancy tissue? They spoke to me after I woke up from my op. My head was all over the place so I can't remember much of what I was told Xx

If the pregnancy tissue came back as having a genetic problem then they probably wouldn't test you and DH but if the tissue was fine then they would probably test you both (karotype test)

The never do all the tests at once because they're bdgets are so stretched

Xx

 

[petitpas]

Wow, were they allergic reactions? I thought that stuff was pretty benign. It's the immunoglobulins I was worried about but they aren't used very much any more. I was just on steroids and a low dose at that. I say 'just' but we took it pretty seriously and you do get a checkup after starting to make sure your blood pressure is ok etc.

As for parental karyotyping, well they told me at the time that it was only covered on the nhs after four losses. That's because the chances of the expensive test coming back with something are pretty low.

 

[Hope39]

Wow, were they allergic reactions? I thought that stuff was pretty benign. It's the immunoglobulins I was worried about but they aren't used very much any more. I was just on steroids and a low dose at that. I say 'just' but we took it pretty seriously and you do get a checkup after starting to make sure your blood pressure is ok etc.

As for parental karyotyping, well they told me at the time that it was only covered on the nhs after four losses. That's because the chances of the expensive test coming back with something are pretty low.

I only got the karotype test because they messed up the D&C on my 5th loss so that the products couldn't be tested xx

 

[Tasha]

I paid for mine privately after the miscarriage after Riley Rae, so I'd had two stillbirths and eight first tri loses by then.

 

[blueblue]

Mine was private but our rm clinic does it on nhs. Hope you get the results back soon x

 

[TicketyBoo]

Hi ladies, I found this thread a few hours ago and I've been glued to it! I feel like I've learned so much more here in a couple of hours than I have in any blood hospital!

I'm looking for some advice. We've been trying since last July, I have fallen first try twice but sadly both have ended in missed mcs at around 9 weeks. The MW at the EPU said no tests are offered but I need to feel like I'm doing something positive instead of just waiting for more bloody bad news.

I'm seriously considering going private for tests (I'm in Glasgow) has anyone done this rather than wait for nhs?

 

[loeylo]

Ticketyboo, where in Glasgow are you? I am near Glasgow.

 

[Trying4first1]

Thanks ladies! So sorry I have not been on for a while. Was having a bit of a detox for a while as needed baby related issues off my mind. I really appreciate you responses 😊
It makes sense for them not to do the bloods unless they have to as these tests do cost a lot of money.
Went to the hospital today and my karyotyping results are still not back yet. It's only been 7 weeks so hopefully they will be back very soon.
My hysteroscopy went well. Everything was clear. So painful though. I would never want it done again. Never felt anything like it.
We have just been advised to try again. So maybe next month. I am CD12 now so will miss his cycle as I am spotting from the hysteroscopy and I doubt it will stop by the end of the week. Also I have not been taking folic acid and have only just restarted my omega 3 and d3.
We will be offered two additional early scans and close monitoring but that is all. Unsure of what to do. Do we just try again and hope for the best? Our results are all good so far so nothing suggested there is an issue xx

 

[TicketyBoo]

I'm in Robroyston. Where abouts are u?

 

[loeylo]

Lanarkshire - I was going to suggest contacting Wishaw General. I found them fantastic and I know another lady on here rates them highly. I was offered for testing after two losses, then again after my ectopic (which technically doesn't count!)

 

[TicketyBoo]

It's the Princess Royal Mat attached to the Royal Infirmary I've been dealing with. Asked about testing at the EPU and also when being seen by emergency gynaecologist but told 'not yet, it's probably just bad luck' both times.

Hubby and I have agreed to wait a few weeks (2nd MC was only 10 days ago) and then look into going private. I've read good things about the Glasgow Centre for Reproductve Medicine so I think they'll be our first stop. I'm just so impatient!

 

[newlywedtzh]

Hi ladies been a while. Curious if u all have seen the new publication on RPL regarding lack of stem cells? I had a friend send me the actual publication but it wouldn't let me attach it here. Here's an article about it though

https://www.theguardian.com/lifeand...cause-of-multiple-miscarriages-for-first-time

What is everyone's thoughts? I have one rainbow baby but just started ttc for number 2 And this did not make me feel very good at all :-/

Forgive me if this has already been discussed if it has can someone give me a page number to go back and read ?

 

[Tasha]

Not been discussed newly but I read about it last week. I agreed to donate my womb lining when they took mine so it's interesting to me. I'm glad that it looks like a new reason but sad for those that it's too late for.

 

[loeylo]

It's the Princess Royal Mat attached to the Royal Infirmary I've been dealing with. Asked about testing at the EPU and also when being seen by emergency gynaecologist but told 'not yet, it's probably just bad luck' both times.

Hubby and I have agreed to wait a few weeks (2nd MC was only 10 days ago) and then look into going private. I've read good things about the Glasgow Centre for Reproductve Medicine so I think they'll be our first stop. I'm just so impatient!

That's terrible! Maybe speak to your GP and see if they could at least run some basic bloods? I was tested for clotting disorders. I was told "bad luck" for my first but after my second they started to think there may be an issue. My ectopic was a separate issue since I know the second mmc definitely wasn't an ectopic but I'm not sure with the first mmc as I never had any scans.

After my third I then went for testing where they ran through my chances of carrying successfully in each future pregnancy. It was all quite reassuring (except the 1/10 chance of another ectopic which terrified me) - I'm now scanned at 6 weeks then as often as I need through first tri.

My testing all came back fine so I'm still unexplained, although I had a perfect pregnancy (except reduced movements and me feeling pretty ill, but no major complications) with my wee one who is 5 months old today.

I took pregnacare, omega 3, plus an extra folic acid tablet and baby aspirin. Oh, and vitamin d. Im convinced something in there got me my rainbow but I don't know what so I am going to do the same next time and hope I get rainbow 2!

Interesting reading in the above article although I don't think implantation has ever been my issue as my body tends to hold onto my babies for a while after they stop developing.

 

[newlywedtzh]

Tasha I was wondering if u we're apart of the participants! I guess for me it's a little scary thinking that it might take a very long time until something is done to treat this- which could be too late. It just all seemed very grave like we are "defective" and not much we can do about it but what can explain all of the many rainbow babies then- stars aligning? They speak a lot about methylation in the publication (it was a bit over my head tho even with a biology degree and a 7 year career in science!) but for me I know I have the MTHFR gene mutation with has to do with methylation pathways (folic acid breakdown) and also linked to RPL. they didn't mention a connection in the paper but maybe there is one...which would be reassuring bc it's an easy fix- methyl folate supplements.

 

[TicketyBoo]

That's terrible! Maybe speak to your GP and see if they could at least run some basic bloods? I was tested for clotting disorders. I was told "bad luck" for my first but after my second they started to think there may be an issue. My ectopic was a separate issue since I know the second mmc definitely wasn't an ectopic but I'm not sure with the first mmc as I never had any scans.

After my third I then went for testing where they ran through my chances of carrying successfully in each future pregnancy. It was all quite reassuring (except the 1/10 chance of another ectopic which terrified me) - I'm now scanned at 6 weeks then as often as I need through first tri.

My testing all came back fine so I'm still unexplained, although I had a perfect pregnancy (except reduced movements and me feeling pretty ill, but no major complications) with my wee one who is 5 months old today.

I took pregnacare, omega 3, plus an extra folic acid tablet and baby aspirin. Oh, and vitamin d. Im convinced something in there got me my rainbow but I don't know what so I am going to do the same next time and hope I get rainbow 2!

Interesting reading in the above article although I don't think implantation has ever been my issue as my body tends to hold onto my babies for a while after they stop developing.[/QUOTE]

I've read a lot about women taking baby aspirin during 1st tri after miscarriages. I've even read that some docs advise this before any tests to see if it'll help! Unfortunately it's not something I could try cos I've got a history of stomach ulcers so it's too dangerous for me 😞

Testing for clotting disorders is def something I'd like, along with some proper hormone, thyroid etc tests. Again tho, GP just said to try again and tests will be carried if if I have a 3rd MC. I can't bear the thought of another one tho, especially if I found out something was wrong after.

 

[TicketyBoo]

Oops, don't know why that first bit didn't come up as a quote, still getting used to this 😊