Recurrent Miscarriage Thread

[Tasha]

I'm not sure what the usual dose is but high is 5mg.

That's odd, I've never heard that in fact the opposite. I got pregnant eighteen times in six years (one of them resulted in my rainbow so that was 36 weeks and another was my little girl born sleeping which was 24 weeks) so when you add that up and all the 6/10/12 weeks I was pregnant, I fell pregnant a lot and quickly.

 

[Tasha]

Dr S never said that to me either. Was it his private clinic? The cynic in me makes me think he's saying that so people think ivf

 

[Trying4first1]

Hi Tasha. Yes I went to the private clinic In Epsom. It wasn't him I spoke too it was one of his colleagues. I have never heard of that either. I heard that your fertility remains the same. I think with me I take 2-3 cycles to ovulate again but after that it should be normal.
Last time I took ages to fall but I found out I had an infection on my cervix. Soon as that cleared up I fell that next month, so that must have been why we couldn't conceive as it wasn't a good environment for sperm.
I don't think that's being cynical at all. I thought the same if I'm honest. If so I think it's awful thing to say and is anyway to someone who suffers from RPL. We feel low enough and hopeless as it is without hearing that. I was expecting to come away feeling positive. Not like rubbish.
I doubt I would use the clinic in the future now. I would seek elsewhere which is a shame.

 

[Hope39]

Hi Tasha. Yes I went to the private clinic In Epsom. It wasn't him I spoke too it was one of his colleagues. I have never heard of that either. I heard that your fertility remains the same. I think with me I take 2-3 cycles to ovulate again but after that it should be normal.
Last time I took ages to fall but I found out I had an infection on my cervix. Soon as that cleared up I fell that next month, so that must have been why we couldn't conceive as it wasn't a good environment for sperm.
I don't think that's being cynical at all. I thought the same if I'm honest. If so I think it's awful thing to say and is anyway to someone who suffers from RPL. We feel low enough and hopeless as it is without hearing that. I was expecting to come away feeling positive. Not like rubbish.
I doubt I would use the clinic in the future now. I would seek elsewhere which is a shame.

I hadnt heard of that either, i had to wait quite a lot whilst stabilising thyroid and surgery but as soon as i got the go ahead to try again i always conceived immediately

i would avoid going private when you can see Mr Shehata at Epson on the NHS anyway

xx

 

[dairymomma]

On the folate thing-my doctor prescribed 1mg per day of methylfolate and has said I can go up to 4mg per day if necessary. And the whole idea of getting pregnant later and later with each loss is a bunch of bunk. I've had a few longer waits (6-8 months) between pregnancies but my average gap between pregnancies has been 3-4 months but my last few losses were back to back without a period between so if anything, it was happening faster. I will add though that I've gone 12 months this time but we've been waiting due to my needing time to get my mental and physical health straightened out and now we're waiting til after I meet with the hematologist before we start ttc again in case I need further testing.

Lou-A week behind isn't that bad especially when you are still so early. With my son, I measured behind 7 days from the start and he stayed 7 days behind my dates the entire pregnancy. My older daughter was 5 days small and again, she was that way the whole pg. My sis has had her due date moved 3 full weeks back because her first son was measuring so much smaller and he stayed 2-3 weeks behind until he was born...3 weeks early... Measurements can be hit or miss at this stage and even if there's a week difference, it may just be due to a smaller baby. FX this is a sticky bean!

AFM-my uncle has been having all sorts of testing done because his health is declining slowly but surely and his heart is the biggest concern atm. What he's found is most of his health problems are being traced back to genetic disorders and/or autoimmune issues. He's been in contact with my dad periodically because my RMC stuff is on my uncle's mind alot of late and he's pushing me to get checked for some of the autoimmune things he's got. So now my list of things to talk about with the hematologist has just doubled. But all of it could potentially affect my kids-specifically my daughters-so I'm going to do all I can to figure this out for them even thought it's likely too late for myself.

 

[QueenofChaos]

Queen of chaos, I don't have much advice either. I think someone was talking about blood clotting testing done on the husband too, way back in this thread. Another angle to look at perhaps.
QUOTE]

Thanks for the lead. We'll look at any angle we can. How does the husband get tested for that? I assume it would be a problematic gene of some sort?
It appears that our GC's hospital is willing to do a chromosomal test on our lost ones, as this would be our 7th MC, if related, not just her 1st. So, that is positive.
For our 6th, a chromosomal test was done and the results were normal - no problems.
We have also been referred to our hospital's genetics group. Hopefully we'll know the questions to ask within 10 days or they will have their crap together and know what to look for, based on our story.
One thing that keep bothering me, is that, with 6 MCs it seems we still weren't influenced to ask the right questions or get the right tests.
So many assumptions are made in this whole process. That drives me a little crazy. How can you know if you've finally asked the right questions and undergone the right tests?
We wish we could have all the answers possibly available before trying again with our GC. She is a rock and willing to try again no matter if we get answers or not. We just don't want to cause her needless pain though.

We're currently trying to find out more about C4M2 (sp?) It seems to be a gene that can cause early recurrent MC. We also want to learn more a bout "recessive lethal genes," such as described in a book we're reading - usually a problem for incestuous situations, but can rarely be a problem for random strangers. So, we want to know what suspect genes the genetics doctors should be looking for.

Any and all leads are welcome. Thank you for your responses. They say joy shared is doubled and grief shared is halved.

 

[Trying4first1]

Thanks hope. I knew it was a load of rubbish. Don't know why I took it to heart for. I guess we just do at times.

Dairymomma thank you so much for the info. It is something for me to consider. I'm putting my own plan together seeing as the hospital are doing nothing apart from early scans and monitoring.
You saying about getting pregnant faster, that happened to my cousin too. I had a longer gap last time of 8 months but who is to say it's going to take me that long again. It may well do and I am prepared for that but before I took 3-4 cycles.
Next cycle I am going to temp no matter how much I hate it, just to check that I am/not ovulating again. Really hoping it starts again next cycle.

Also has anyone heard about clomid helping RPL? I've heard about it producing better eggs but surely it would over stimulate?

 

[Tasha]

I'm not sure Queen. I'll go back through the thread tomorrow, see what it said.

Trying, it was something I discussed at one point because I had quite long cycles and recurrent miscarriage. The doctors train of thought was that the long cycles may be producing poor eggs. Nothing came of that though.

 

[dairymomma]

Tasha-btw, cute avatar pic!

Trying-I've never discussed Clomid because my cycles are pretty regular and I tend to get pregnant easily. I have also carried to term three times so my doctor feels that proves I don't need it. I agree as my problems likely stem more from clotting issues (I've bled in the first tri for all but one of my thirteen pg), genetics-MTHFR and the resulting low folate levels being the biggest thing here, and probable hormone imbalances which have been correcting themselves over the last few years. But I can see where Clomid may help some women.

 

[Tasha]

Thank you dairy. I use quick reply in here and so don't switch it off. If he offends anyone then they can message me and I'll insure it gets turned off. I realise that it can be painful when you are still waiting and hoping for your rainbow (I was for six years, sixteen miscarriages and two sillbirths as you know), so I do get it, I hope he offers some people hope too though. Someone once said to me that I was the person she looked at and thought if she can get a rainbow then there's a chance for everyone.

 

[dairymomma]

I can't speak for anyone else but seeing him doesn't offend me. I'm used to seeing all sorts of avatars on the boards so it never occurred to me that it could be an issue in here. I don't have an avatar so I've never thought of that perspective.

 

[Trying4first1]

Tasha- I was thinking of the poor quality egg thing, but then at my age (30) my eggs should still be ok. At the private clinic they said my egg quality shouldn't be an issue. But I have also heard that it can help the corpus luteum to produce more progesterone.

Dairymomma- my cycles are too very regular. Well not at the moment they are all over the place from my last MC. But I'm normally 28 days on the dot. Also I had a 12 day LP which is ok. I used to only have a 9-10 day LP but that changed after my 2nd MC. I guess clomid isn't used as often in RPL when you ovulate on your own?

 

[Trying4first1]

Ladies I found some 75mg asprin in Tesco today
Now im hoping my cycles sort themselves out so I can get a BFP again one day so I can use them 😊

 

[blueblue]

Hi Tasha
I read about the Vit D thing so will carry on taking next time. Can I just take an extra folic acid or is that too much?
Went to the open evening at Dr Shehatas clinic. Was ok but didn't find out nothing I didn't know already but was good to see it all.
One thing though, when I was asking questions I was asked when my last MC was. He said oh that's ok then as after each MC it takes longer to fall pregnant. This took me back a bit and I didn't ask why. So now I am really upset this evening as I feel I should give up hope of having a BFP anytime soon. Last time it did take us much longer so maybe there is some truth in it
Sorry just feeling very deflated this evening and fed up X

Lou - hope everything works out, thinking of you x

Trying - I hadn't heard that either, we did have a few breaks TTC during our losses but every time we tried, I got pregnant straight away 4 out of 5 times so it didn't seem to take longer. I don't think it can be true that it takes longer for everyone. Hope you get your BFP soon x

Tasha - he's beautiful x

 

[Trying4first1]

Thank you blue
I am so glad that it doesn't seem to be true.
I have never fallen pregnant straight away but I still don't see how it can take longer. We normally ttc straight away after first AF and my body probably isn't ready which is probably why it takes a while. I don't think I am ovulating at the moment. I think my body takes a good 3 cycles at least to recover.
Thank you x

 

[hopeful23456]

hi queenofchaos- I was on this board as I had 4 early unexplained m/c and then I had my twins (IUI, stim meds, baby asp, lovenox, prednisone, progesterone, fish oil, acupuncture, neevo dha, metanx (both contain metabolized folic acid).

I'm wondering if you are going to a clinic that specialized in recurrent miscarriages? to not have clear direction of what tests you need to take and steps to take would be frustrating. I went to a clinic that is actually called obstetrics, gynecology and infertility in MN and they have seen several recurrent m/c patients and we just threw everything at it that has ever helped anyone and it worked with the twins. so sorry for all you've been though
I did have a uterine septum and that was surgically removed but I had 2 m/c before and 2 after. all of mine were really early though, 5-6 weeks and nothing there but empty sac or just nothing at all by the time I had a scan so was probably implantation issues.

 

[blueblue]

Trying - hope you ovulate soon, it's a lot for your body to go through. After the 4th mmc I had acupuncture (and then went on to Response), it helped regulate my cycles from 31 days (which isn't abnormal) to textbook 28 days. I know this sounds strange, but it also helped with the grief, it felt like a weight had been lifted off me (it was before everything worked out with no.5). I saw a lovely lady who specialised in fertility and was Zita West accredited, she didn't charge anymore than a normal acupuncturist. I think having someone to talk to also helped x

 

[QueenofChaos]

hi queenofchaos- I was on this board as I had 4 early unexplained m/c and then I had my twins (IUI, stim meds, baby asp, lovenox, prednisone, progesterone, fish oil, acupuncture, neevo dha, metanx (both contain metabolized folic acid).

I'm wondering if you are going to a clinic that specialized in recurrent miscarriages? to not have clear direction of what tests you need to take and steps to take would be frustrating. I went to a clinic that is actually called obstetrics, gynecology and infertility in MN and they have seen several recurrent m/c patients and we just threw everything at it that has ever helped anyone and it worked with the twins. so sorry for all you've been though
I did have a uterine septum and that was surgically removed but I had 2 m/c before and 2 after. all of mine were really early though, 5-6 weeks and nothing there but empty sac or just nothing at all by the time I had a scan so was probably implantation issues.

Hi hopeful, thank you for your kind response. Unfortunately no, we don't know of any clinic that specializes in RMC, at this point.
We are working with an ordinary IVF clinic and our hospital.
Just this very day we both gave blood for karyotype testing, after a 1 1/2 call with a genetics dr.
We're so scared that, once again, nobody will be asking the right questions this time. What if the genetic testing finds nothing? What if there are problems with our GC since her last birth (10 yrs)?
I hate thinking these things. Hopefully we find a "smoking gun" and can just move on.
What is the problem is clearly me? If so, my oh would like to find a 3rd-party donor or friend for insemination. Any thoughts on that? I think I'd be cool, but maybe a little jealous?
Very empathetic dr. at least. Really listened. Took a very thorough history of us both, we thought. So scared we'll never find the answers...
And time is running out. Even if we achieve ultimate success soon we get what, 30 years with our children?

 

[petitpas]

Queen, sorry, I just popped in and saw some of your posts. My thinking is, your GC's last loss was genetically normal, correct? Usually, that would indicate that the problem lies with the carrier so she is the one that needs testing. What has she already had checked?

 

[blueblue]

Queen, I hope you get some answers soon, glad your doctor is very empathetic x