Reflux "GER" just diagnosed... advice?

[babylove719]

Hi Ladies, I'm looking for some advice and hopefully reassurance. Really hoping to hear from someone with similar experience that this will get better soon!

My 3 week old baby girl has just been diagnosed with G.E.R. or Reflux. Her pediatrician has prescribed Axid (Nizatidine) .25ml twice a day. Also advised me to eliminate milk from my diet and can give her 1ml Maalox as needed for difficult episodes. She is also taking Culturelle (a probiotic).

Anyone here had their LO on Axid? Did it work? and how long did it take to work? She's been on it for 3 days now.
Also I have cut out milk from my diet and cut wayyy back on all other dairy but not quite cut it out completely. I'm hoping that will be enough. How long does it take to see a difference from that change?

I do see a small improvement so far, but she still has so much on and off pain from the burning acid and a few bad episodes of it each day. I just can't stand the look of pain on my baby's face and seeing her little body writhe in agony
Any advice is greatly appreciated!

 

[kermie219]

Hi! I have an baby with silent reflux, you can see him be sick and then swallow it all back so he hardly ever actually vomits but the reflux is horrible. I know how bad it can be the screaming, arching, difficulty feeding, not sleeping. It's so isolating and the most difficult thing we've ever been through (and I'm not being dramatic it really does get quite bad) sometimes he cries for 4+ hours with no breaks. Anyway you are quite lucky to get a diagnosis so young as some families suffer for MONTHS as the majority of dr's don't recognise this as an actual problem. We are on ranitidine now .5 3x daily it's the infant zantac. And I drink a probiotic which is supposed to carry onto to baby. It really worked at first but are being refered to a specialist to try a different med now. MOst meds you will see a difference in a few days to a week. But there are a few things I have learned that can be quite helpful...

-handle baby very gently after feeds (it helps keep it all down)
-wind by rubbing his back and not patting as patting seems to make it worse
-invest in a swing! (it's the only way he sleeps most of the time)
-try to keep him upright after feeds for as long as possible
-I have quite a strong letdown that leads to bad episodes and find that winding after letdown then putting him back on the breast helps
-I wear him in a wrap all the time and that keeps everyone sane as he always seems settled in it. He's really warm and straight up in there so I think that's why he just sleeps
-and finally I find that my son goes quite bad during after nappy changes so we stopped lifting his legs up to change him and now just kind of roll him over which helps A LOT

sorry for the novel but I know how hard it can be. good luck! x

 

[satine51]

Hi,

My LO has a mild silent reflux, she has just been prescribed infant gaviscone. There is a thread for reflux mummies, hope you find it helpful https://www.babyandbump.com/parenting-groups/506794-reflux-help-support-thread.html

 

[kermie219]

one thing I find hard about reflux is that everything I read keeps talking about changing formulas...my son has never had formula so I find that very frustrating