Sad :( Bad news from Saline Sono.

[ababy4us]

Hi ladies I need help... here is a little bit of info.

Finally just got my results back from my Saline Sono. Not good

So it seems I have an Ovarian Endometrioma/Endometriosis OR a ruptured cyst that is bleeding.

On a lot of levels I'm relived that I am not crazy in thinking something is wrong on the other hand I am scared that I for sure am never going to be a mom. My nurse said something about possible surgery if it is an endometrioma but everything I have read says that that may not even help. I guess this makes my decision on IVF in September easier as I don't think they will allow me to do it now. I was planning on doing another IUI this month but that isn't going to happen.

The thing that is very strange is apparently this is all on my left side but my right side is the one that I have a lot of pain in. I'm scared and if I have to have surgery I have heard that the waiting list is long at my dr. I guess I'm just upset that this has gone unnoticed for so long and I have wasted a year and money on IUIs that were never going to work.

Have any of ladies been through this? Did you end up getting pregnant with Endo? I'm really needing some inspiration.

 

[ababy4us]

No one?

 

[popchick75]

I'm sorry you are going through all of this

I would have the endoscopic surgery so they can at least see what's up and give you a definite answer....that is the only way they can diagnose endo for sure...not with an ultrasound or by saline sono.

It sounds like either way you aren't happy with your doctor's office. If it were me, I would go get a second opinion. Something doesn't sound quite right.

 

[pbl_ge]

I'm having lap surgery soon, and everything that I hear makes me feel pretty optimistic. I know it's not the same thing as what you're experiencing, but lots of ladies have gotten LOs with much worse odds that you. So long as you have an ovary, you have hope! You don't even need the tubes these days, as Science! can help. The docs once talked to me about reflected pain--problems on the left may be felt on the right or vice versa. I'm not sure how likely this is, but thought I'd pass it on.

Just follow your doctor's orders, assuming you like your doc, and don't give up hope!!!

 

[ababy4us]

Thanks ladies. I just don't see the light at the end of the tunnel anymore.

 

[CaliDreaming]

Ababy4us I know it must be hard to be optimistic after trying for so long, but from the outside looking in, you still have reason to be hopeful. Laparoscopic surgery can be enormously successful in treating endometriosis, and many women get pregnant naturally very soon after the surgery. Even if you ultimately end up doing IVF, having that surgery will definitely improve your chances. The more recent studies that have been done on this are VERY encouraging.

Also, you have the advantage of being in your peak fertility years, so if they can get rid of the endo, there'd be nothing stopping you from getting a bfp.

If you want IVF in September, I think your doctors will do whatever they can to make that happen as soon as possible. That is where they make the big bucks, after all.

TTC can really wear down your spirit, but it's much much too early for you to lose hope.

 

[bernardblack]

Hey ababy.

Sorry to hear the news from the sono'. In some ways you want to know if there are any problems but at the same time you hope there is nothing, its a dilema really!!

I was diagnosed with having an endometrioma on my left ovary just like you, this was back in july 2011 and it was about 6.7cm. November that year, with the help of clomid and without any endo removal i fell pregnant so i hope that helps you out a bit there. I lost the baby but found the endo had shrunk to 4.8cm (as your body is progesterone dominant during pregnancy and the lack of estrogen means the endo cannot and will not grow).

One cycle after the loss i fell pregnant again (and again on the clomid) but lost again and ive never been told given the reason for the losses. So in a nutshell you can fall pregnant with endo but there is also something else i have to share. My endo is randomly shrinking!!!! November 2012 it was 4.5cm and april this year it was 3.7cm and ive no idea whats causing it, weird eh!? Ive changed vitamins which i think has done it but again i hope it gives you some hope. Xxx

Just a quick question, are your cycles long? Mine arent exactly the nice 28 days but they used to range between 55-63 days. These past few months though,with the endo shrinking, ive noticed my cycles are also becoming shorter too, around 45 days. Xxxx

 

[ababy4us]

Thank you for that Bernard! Its nice to get some info from someone who has experienced my situation.

As for my cycles *perfect 28 days* sometimes it is off a day or two but usually never less than 27 and never more than 29. I have done 3 rounds of clomid and never got pregnant. I thought clomid can cause cysts? That is strange that it can help with an endometrioma. Maybe I should see if I can try clomid again. I hate the thought of surgery, I've never had any kind of surgery before so that scares me. I have only been pregnant once for a very brief time and that is even questionable. My first IUI I had two days of darker tests but never made it to the blood draw before I started bleeding heavily. So that is a questionable CP but the dr thinks that is what happened.

All labs are perfect, husband has super sperm, HSG showed tubes were great and open, ovulating very month, it just baffles my mind that we cannot get pregnant

 

[bernardblack]

Hmmm so the endo isnt messing with your cycle length which i guess is one relief.

You could always ask for more clomid but the doctors will only prescribe so much mainly because of the potential longer lasting side effects, like you said cysts and much worse things (obviously rare cases thought so dont panic there).

Ttc for a baby for one year is tough, 2 is even worse and 3 doesnt get much better. But if i could wind the clock back when i was first diagnosed with having the endo i probably would go for the surgery cause the route im currently on isnt the right one. Im due to start ivf and i dont believe i need that much assistance but its the next step the doctors want to take. Im at a point where now i will have the endo removed but only after baby 1.

Do you check your temps and use ov sticks so you know your fertile time?

Its funny you say about the left side with the endo but the right hand side is the painful one, when i have ultrasounds im the same. My personal theory is that the endo is squashing down on the left and therefore pushing up on the right like a tilt if you will. They think i have a slightly tilted uterus but it could also explain your pain perhaps, you could always ask for that to be checked.

Sorry to hear about the chemical pregnancy xxxx

 

[ababy4us]

I have a fertility monitor and I use opks. But I'm going to stop because it just adds to the stress of it all.

I'm supposed to have IVF in Aug/Sep of this year and I think its rather pointless until we know for certain what is going on.

I did have one person say during a pap smear one time that I had a tilted uterus but I've asked over and over again and they say no

Good luck on your journey through IVF. IVF scares the crud out of me.

 

[Baylea]

Hi Ladies, I hope you don't mind me adding something here. Have any of you tried the endo diet? Just a thought, and I know it doesn't exclude the need for surgery, but it does seem to have fantastic results, often along side it.

I have been ttc for 2 1/2 yrs, with losses and not much help from my dr. I have lots of symtoms of endo, I'm aware it could be other things, but while I'm waiting for my drs to help me out, I like to feel I'm doing something.

It involves cutting out all wheat, not gluten, but wheat itself (they believe there is a link between hormones that were GM'd into wheat in the 70s and endo), and all diary as this causes an inflammatory response. If you're at all interested then Dian Shepperson Mills' book 'Endometriosis: A Key to Healing And Fertility Through Nutrition' gives you all the info, including the science and research behind it. From what I understand she runs quite a successful clinic in london.

I've been on it strictly for 6 weeks, but from what I've read it can take a few months to really get results, and of course if the endo is severe then you still need surgery to help things along.

Sorry if I'm repeating things you already knew, but thought I'd throw it out there in case.

Best of Luck ababy4us, and the rest of you ladies xx

 

[Cazmania]

Ababy4us.

Hi there. I only just read your post as I moved from LTTC to the preggo boards in March. I just had to write to you to tell you my story.

I tried for 22 months before falling pregnant and that was all due to my RE actually taking an interest in what was going on. My husband was diagnosed with low morphology, but as we already have a child, my RE said with his high sperm count it doesnt make a difference. Prior to going to my RE mid last year, I had all the testing done at a famous fertility centre who said we could never conceive due to my hubby low morph. I had all the tests; the hsg, bloodwork, saline soon etc and I was perfect, with perfect cycles albeit painful periods. Something didnt sit right with me so I sought out a second opinion. Fast forward to December, after 3 failed IUI attempts my (new) RE suggested a laparoscopy to see if he could find a reason because on paper, we were super fertile.

Well, I have (had) stage 4 Endometriosis which included a massive endometrioma on my left ovary. Due to the severe adhesions, the inside of my uterus resembled the moon with craters and polyps everywhere. My doc advised me that it would of been impossible for a fertilized egg to implant in such conditions and even IVF would of been a failure!

The pain after the Lap was no worse than period cramps and I was back to normal within a week and I had a ton of work done (I was under for 3 hours while they removed all the endo and fixed the inside of my utuerus). It really is not a bad surgery as it is all done via keyhole.

We were not allowed to try for one cycle after the lap to allow for everything to heal properly and the first month that we were allowed to try we finally got our BFP (completely natural)!!!! I did continue to use my fertility monitor and CB OPK's to time catching that egg perfectly.

So I suggest going for the lap to get the endometrioma removed (my doc also said that they are known to affect the egg quality) and while you are under, if they find anything else, they will fix it. I should add that I had a hysteroscopy(the camera is inserted inside the uterus) and a lap.

I hope this all made sense and if you have any questions; please dont be afraid to ask and I will try my best to answer.

 

[bernardblack]

Baylea - i want to do try the endo diet but from the recipes and recommendations online i think it would be too much of a drastic lifestyle change and potentially expensive one. If i had more motivation i would do it

Hi caz - funny you mention about the hysteroscopy, im having one done next friday, im hoping if they find something itll be removed but by the same token as im wide awake for the procedure i kinda hope they dont need to remove anything!!!! Like i said earlier if i would wind back the clock i would have asked for a laproscopy years ago

Congratulations on your natural bfp xxx

 

[dovkav123]

Hi Ladies, I hope you don't mind me adding something here. Have any of you tried the endo diet? Just a thought, and I know it doesn't exclude the need for surgery, but it does seem to have fantastic results, often along side it.

I have been ttc for 2 1/2 yrs, with losses and not much help from my dr. I have lots of symtoms of endo, I'm aware it could be other things, but while I'm waiting for my drs to help me out, I like to feel I'm doing something.

It involves cutting out all wheat, not gluten, but wheat itself (they believe there is a link between hormones that were GM'd into wheat in the 70s and endo), and all diary as this causes an inflammatory response. If you're at all interested then Dian Shepperson Mills' book 'Endometriosis: A Key to Healing And Fertility Through Nutrition' gives you all the info, including the science and research behind it. From what I understand she runs quite a successful clinic in london.

I've been on it strictly for 6 weeks, but from what I've read it can take a few months to really get results, and of course if the endo is severe then you still need surgery to help things along.

Sorry if I'm repeating things you already knew, but thought I'd throw it out there in case.

Best of Luck ababy4us, and the rest of you ladies xx

-----------
I am not on endo diet, but similar. Since January I cut out alcohol, sugar, pork and beef, dairy(eat yogurt only). In March I felt the difference. My periods became lighter, less clots and instead 7-8 days, they are 5-6 days.
I beleave that food is our meds and only strong will and big life change will give you good results.

 

[Torsornin]

I often have pain on the opposite side when I have a cyst - you arent crazy - my dr said it is cause it pulls everything wonky

I hope things look up for you

 

[dovkav123]

Baylea - i want to do try the endo diet but from the recipes and recommendations online i think it would be too much of a drastic lifestyle change and potentially expensive one. If i had more motivation i would do it

Hi caz - funny you mention about the hysteroscopy, im having one done next friday, im hoping if they find something itll be removed but by the same token as im wide awake for the procedure i kinda hope they dont need to remove anything!!!! Like i said earlier if i would wind back the clock i would have asked for a laproscopy years ago

Congratulations on your natural bfp xxx

Baylea,
You don't change everything at once! Try with coffee first. Drink green tea instead. Reasearch states that coffee drinkers have 80% of chances of endo. Slow down with sweets.(they cause inflammation and imbalance your hormones) stevia is good substitute. NO processed meals! Endo doesn't allow any meat only fish. Start with small steps -Eat poultry(organic) instead pork and beef. (high fat diet slows down your liver, you need liver to excrete access of hormones). Eat veggies and fruit with all your meals and snacks! Better organic, or peel the skin. Slow down with weat products, there are many tasty gluten free grains.
It is not a diet, it is a life change habbit. It will help you to avoid gaining weight, daibetes, heart diseases, digestive problems and other problems.
Hope it helps! Wish you the best!

 

[bernardblack]

Hi dovkav, was the above post meant for me?

If so ive made some tiny changes in that i no longer drink any caffiene whatsoever, ive cut out all fizzy drinks/tea/coffee and will either drink greean tea or a decaf normal tea, been doing that nearly 8 months now and i think thats been a big help. Im tee total too, not touched alcohol in 8 months and i dont miss it either.

The past 5 to 6 weeks ive been eating fruit and veg every day (even though it is expensive..booo!)

I guess the only thing i struggle with on your list is the wheat thing oh and the meat thing. Guess ive already beeen making a lot of good new habits

 

[dovkav123]

Hi dovkav, was the above post meant for me?

If so ive made some tiny changes in that i no longer drink any caffiene whatsoever, ive cut out all fizzy drinks/tea/coffee and will either drink greean tea or a decaf normal tea, been doing that nearly 8 months now and i think thats been a big help. Im tee total too, not touched alcohol in 8 months and i dont miss it either.

The past 5 to 6 weeks ive been eating fruit and veg every day (even though it is expensive..booo!)

I guess the only thing i struggle with on your list is the wheat thing oh and the meat thing. Guess ive already beeen making a lot of good new habits

and keep it up! I feel the difference too! My periods are shorter (before 7-8 days, now 5-6 days), I don't have horribble pain and a giant flow! My chin has no longer painful acne! O is 2 days earlier, more energy no more midday naps! no spotting before periods. My hair grows longer too! I don't have killing migraines before period.
to you!
and to my RE who says that she never heard that diet can change endo symptoms! My cardiologist told me the same about cholesterol, no supplement or food will lower my cholesterol! Idid with my diet!

 

[ababy4us]

I sure do appreciate the info on the diet, thank you for that.

I couldn't do it. I HATE fish every kind there is including tuna and I like wheat not to mention gluten free is so very expensive around here and not much available. I do eat tons of veggies and fruit every day and only have a cup of coffee a couple of times a week and I rarely finish it other than that I drink water or organic milk.

I have a question for you ladies since you all seem so extremely knowledgeable. What's the deal with Red Raspberry Leaf Tea? Is it good or bad for Endo? I've read so many conflicting things.

 

[dovkav123]

I sure do appreciate the info on the diet, thank you for that.

I couldn't do it. I HATE fish every kind there is including tuna and I like wheat not to mention gluten free is so very expensive around here and not much available. I do eat tons of veggies and fruit every day and only have a cup of coffee a couple of times a week and I rarely finish it other than that I drink water or organic milk.

I have a question for you ladies since you all seem so extremely knowledgeable. What's the deal with Red Raspberry Leaf Tea? Is it good or bad for Endo? I've read so many conflicting things.

I am from Lithuania and we drink red rasberry leaf tea to fight fever and flu.
I just read Lith website red tea leaf reduces period pain and flow. I beleave it is very good for endo.
This tea has lots of antioxidants and reduces inflammation.
Cheers!