I'm not sure why I'm telling everyone...I guess because people need to know about this horrific disease. It's called Spinal Muscular Atrophy. A friend of my sister/niece and someone I've come to know over the last year, has 3 children, one of them was 6 months old on monday. About a month ago they took her to the doctor as she wasn't able to do what other babies could...she couldn't lift her head, had a very weak cry, very limp body. They started running some tests and in the meantime she got pneumonia. She was hospitalized for 2 weeks, on a respirator. They got the results last week that she does have SMA, and it's fatal. They've told the family that she's only got 1-2 weeks to live. They took her home last friday...and had a big 6 month birthday party for her on monday. I'm not trying to make anyone sad, just want to share her story. The mother's request today to all her friends was to share this knowledge. As knowledge is power. Sadly SMA is the #1 genetic killer among children under 2 and I as most of us I'm sure had never even heard of it. She said the researchers are still so far away from any tests even being conducted on human beings. Both parents must carry the gene and give it to their children (like Cystic Fibrosis) and then they have a 25% chance of getting it. This has really hit me over the last couple of weeks, a lot of tears have been shed..as sometimes life just seems so cruel. Then I feel my baby kick and I think, I should be happy right now and I am most of the time. Just feel so sad for this wonderful family. **Update** Sadly sweet angel Georgia passed away last tuesday. I went to her funeral today and let me say it was the saddest thing I've ever done. Her parents are beyond strong. The service was beautiful and perfect. And at the end all the little girls there released balloons into the sky for Georgia..... If anyone has sometime, please sign this petition to help cure SMA...this is Georgia's mothers only wish right now...to fight this disease! http://www.thepetitionsite.com/182/petition-to-cure-SMA Thanks.