Twin a having tachycardia

[lanet]

During my routine growth scan yesterday they noticed baby a having super fast heart rate most of the scan. Up to 280!!! They rescanned and did a biophysical and all was normal except a few second blip of the fast rate.
They sent us to a hospital 3 hours away where im currently hooked up to monitors to watch her. We've seen the fast rate a few times, but she goes right back to normal. They've said if it's over 25% of the time then they will treat me with a high dose of heart medicine and keep me in the hospital!
I'm scared and worried and don't even know what to think. Baby b will get the medicine too if I take it. I may be in the hospital far away from DD on Christmas! I just want both babies to be ok. And they keep kicking off the monitors. What a long night!!

 

[xxshellsxx]

Sounds so scary, so sorry you're having to go through this! I hope things settle down and you can get home, keep us posted on how little one is doing

 

[SucreK]

Hey lady--i have no expedience with in utero tachycardia, just tachycardia after birth. Are they saying you may need to deliver or they're just handling this via the heart drugs (potentially)?

 

[lanet]

They had nicu come talk to us about early delivery "just in case" and had us sign consents for delivery "just in case" and said they would decide if we needed steroid shots today. But the dr said they won't deliver for high heart rate, unless they just can't get it to respond to all lines of treatment first. I've seen so many drs and waiting to see several more this morning. Her rate looked good overnight, she spent very little time in tachycardia. Hope the echo looks good too.
Let me tell you a pregnant woman with restless legs and 2 wild twins does not mix with sitting still in a hospital bed!

 

[SucreK]

They had nicu come talk to us about early delivery "just in case" and had us sign consents for delivery "just in case" and said they would decide if we needed steroid shots today. But the dr said they won't deliver for high heart rate, unless they just can't get it to respond to all lines of treatment first. I've seen so many drs and waiting to see several more this morning. Her rate looked good overnight, she spent very little time in tachycardia. Hope the echo looks good too.
Let me tell you a pregnant woman with restless legs and 2 wild twins does not mix with sitting still in a hospital bed!

I'm glad her rates stayed good overnight! I had the steriod shots at 31 weeks (and delivered at 33 weeks)--I say get 'em (maybe even request them?). They don't hurt, they only help. And it's great news that tachycardia doesn't mean imminent delivery.

I started bringing my own lumbar support pillow to the hospital after the first or second premature labor scare. Their pillows don't cut it!!!

 

[lanet]

They diagnosed her with svt. They said it wasn't frequent enough to require treatment thankfully, but we have to be monitored 3 times a week. So thankful to be going home but on edge and praying it just totally resolves

 

[xxshellsxx]

That's good news. I have SVT myself and its scary how suddenly it can come on. Glad they are keeping an eye on your little one and hopefully it will resolve itself x

 

[henrysmumkaz]

So sorry you're having to experience this but it is very good they've diagnosed it before birth. You may have been told this already but a lot of children grow out of it by age 1.

My son (not one of my twins) has had SVT all of his life. He's about to turn 5 years old and it's been mostly under control for a couple of years. We only have a couple of attacks a year now where his heart will reach near 300 beats per minute, sometimes more, but they used to be very very frequent when he was a baby as they grow so fast and the medication dose needs constant reviewing. Triggers are mainly illness and him outgrowing his medication dosage.

Anyway. I know how utterly terrifying this feels for you and I empathise. But I am SO glad they've caught it now so your baby can get immediate treatment. They didn't diagnose my son until he'd had two cardiac arrests at 6 months old, completely dismissing my concerns since he was born about his often erratic heart rate at a "virus".

If you ever want to talk about it please do message me x

 

[marymoomin]

I have no insight other than I had tachycardia when I was pregnant. Just wanted to say good luck and thinking of you.

 

[lanet]

Thanks everyone. We saw some of the best specialists. A wonderful pediatric cardiologist, during her ultrasound the heart rate went to 288 for 3 minutes. She said she doesn't even bat an eye when she sees it like that for 30 straight minutes. It's when its like that for 48 hours that damage such as heart failure and hydrops start. So I feel like we are really being watched carefully. A lot of overwhelming info, but thankful it's highly manageable, and being at a leading children's hospital made us realize how much worse it could've been. So ready to snuggle and comfort these little babies. But hopefully not for at least another 8 weeks!

 

[xxshellsxx]

Glad things are looking more positive for you all, it's hard when you think they are distressed and can't do anything about it, i worry every day with my little one's fluid and growth issues and it just makes you realise how much you love them before they are even here x

 

[lanet]

I totally agree. It makes them more real if that makes since? Like I wonder if she's uncomfortable when it happens? And I can't do anything for her right now.

 

[lanet]

You won't know anything more until christmas Eve right?

 

[xxshellsxx]

It definitely makes it more real, i've spent all day sorting and packing my bags for the babies and myself ready for xmas eve just in case! My scan is at 9am and consultant at 10.25... so i'm hoping by lunchtime that day i will know what is happening. I'm taking my bags hoping that reverse psychology works... i will have to bring them home and unload the car lol x

Keep us posted with what is happening x

 

[lanet]

I didnt pack a bag with dd, my water broke at 36 weeks. I need to start thinking if doing that. Are you buying preemie baby clothes or just newborn? I wonder if I need a few preemie sizes.

 

[xxshellsxx]

I've bought a few preemie sizes and a few newborn/first size - should cover all bases to begin with, Dh can then go and buy a few more of the correct size. I have two packs of nappies as well, 1 x preemies and 1 x size1 - with another preemie pack at home that DH can bring in if thats what we need and about 10 packs of size 1 lol

If the preemie stuff is too small i will just leave it with the hospital for the NICU to use x

 

[marymoomin]

Don't buy prem nappies for the hospital you will get all you need there. X

 

[lanet]

I'm really struggling to cope. I just failed my glucose test. This whole year started with ivf and delays and then getting ohss. Then get pregnant and have bleeding from sch, then second tri bleeding from low lying placenta. Now the 3 weekly appts to monitor baby girl and now this.
I'm suffering with horrible restless legs and can't sleep. I still feel slightly nauseous and weird about food. I'm so uncomfortable. I feel like I'm reaching the end of my rope mentally and physically

 

[messica]

I'm not sure if it helps hun but I felt the same way about that time and hit a second wind (or rather third because I also found welcome relief early 20 weeks).

My GD got really nasty around then and my insulin had to be upped (and by upped I mean doubled). Feeling yucky about food likely has a lot to do with your levels being out of whack. Any time I ate before it was recognized and treated made me feel like absolute crap. Tweaking diet, and then ultimately the insulin did improve that and I was actually able to eat best toward the very end. Don't be afraid to get hooked up with more Zofran if the nausea doesn't back down though. Lots of twinner moms struggle with third tri morning sickness.

If you're not opposed to trying it, unisom at night is incredibly safe and I swear it saved my sanity. I was getting a solid 7-8 hours at night and it made the days more physically and mentally bearable when my body got a great rest.

Beyond that, vent away. It's really not fun, especially at the end and when you've got other things like peanuts tachy to worry about. I'm thinking of and praying for some relief for you. I hated when people said it would be worth it in the end but really, it's true. Everything you're enduring now will be long forgotten the minute you hold them in your arms. (((HUGS)))

 

[xxshellsxx]

I'm glad there are so many ladies here to offer the right advice for you Lanet I understand the exhaustion and pains but can offer no helpful advice, just that you're not alone xxx