Update on my little girl x

Discussion in 'Pregnancy - Second Trimester' started by Sam_Star, Apr 10, 2009.

  1. Sam_Star

    Sam_Star Mummy to a Battle Maiden

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    As some of you know i was told on tuesday that my little girl has CCAM and that i had to have further tests and scans done to determin how she was really doing. Well Yesterday the midwife rang and said i had to have the tests on wednesday but that i have to travel to Bristol to have them done!!
    Now i am super scared surely this cant be a good thing??
    Im going to St Micheals hospital does anyone know anything more about the hospital or about the tests themselves - im really scared :cry:
     
  2. Caramel

    Caramel Mummy to a cheeky monkey

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    Oh hun, please don't think of it as a bad thing. It may just be that that hospital has the best facilities to ensure accurate and speedy testing, in which case they're doing their best to ensure that you and your LO get the best medical care possible which can only be a good thing.

    I'm afraid I don't know anything about the hospital or the tests but I really hope all goes well for you sweetheart :hugs:
     
  3. Eoz

    Eoz Mummy of 5! Eeek!

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    Sorry hun I know nothing either.Maybe research it online.It may just have better facilities.Maybe you could look at it in another way.ie you'll be in the best care and your local hospital can't do that.Take care and try not to worry to much xxxx
     
  4. PrincessSoph

    PrincessSoph Well-Known Member

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    im sure they are just sending you to bristol cos they have better facilities. really hope your lil princess is doing ok. keep us updated hun :hugs:
     
  5. haaza123

    haaza123 Mom to Sonny and 5 angels

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    Hey really dont know much about it either but like the other girls have said, the hospital they're sending you to may specialise in it. My friends baby had a heart problem, she used to have to travel to London to have further tests becasue that hospital specialised in her babys condition.

    Sending you :hug:
    xxx
     
  6. dizzy duck

    dizzy duck Mummy to Oliver

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    Aww hun, try and see it as them trying to give you the best possible care for you and your little girl, Bristol must be place to go, don't see it as a bad thing. I really hope all goes well, sorry I can't answer your questions, thinking of you hun, take care :hugs: XX
     
  7. embo216

    embo216 Mummy to 3 <3

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    Oh hun i'm not usually in this section but your post made me want to come in. I'm so sorry you've just found this out. My little girl was diagnosed with CCam at her 20 week scan, which was around christmas time- hardest time of my life. We too had to go to a specialist hospital- Addenbrookes at Cambridge for us. There's an awful lot of factors with Ccam hun just look my little girl, shes been through a lot but now 100% healthy :)

    One thing I will say is be careful when researching it online, theres an awful lot of negative stuff on there. Its quite rare hun and I can talk you through everything we went through.

    xxx
     
  8. Armywife

    Armywife Mummy to 2 beauties

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    Oh sweetie, i can only repeat what others have said. I'm sure they just want to send you to the hospital with the best facilities which is a good thing. They are probably making sure your little princess has the best care possible. Keep us updated, lots and lots of love and hugs x x x
     
  9. rubywoo77

    rubywoo77 Mum of 2

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    I don't know anything about the hospital - but just wanted to send you hugs, please keep us updated.

    x
     
  10. peekers

    peekers Well-Known Member

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    im so sorry hun that i dont know anything but like the other ladies have said it could be that the hospital has better facilities :hugs:
     
  11. earthangel

    earthangel Guest

    thinking of you xxx
     
  12. Izzy'smummy

    Izzy'smummy Well-Known Member

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    Hi

    Unfortunately I know exactly what you are going through as our baby has also been diagnosed with a CCAM.

    It too was diagnosed at the 21 week scan - we have been refered to Oxford and will probably have to be delivered there.

    I am having 2 weekly scans and since the diagnosis the CCAM has regressed and the heart (that had been displaced ) is now back in its normal position.

    I found it all very hard to accept at first but I feel I am being looked after really well and having the regular scans has reassured me.

    Although I rarely post on here I do lurk every day and I wouild love to support you through your pregnanacy (as it is a rare condition and I have felt very isolated at times).

    Looking forward to keeping in touch

    Tke care

    Love Ellie xx (and Pink bump aka Emelia Faith,26+2)
     
  13. Jkelmum

    Jkelmum Well-Known Member

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    Just been searching Net for you and found this which should give u hope :hugs:
    Most fetuses with Congenital Cystic Adenomatoid Malformation do not require intervention during the pregnancy and will do well with management after birth (usually surgery to remove the abnormal piece of lung) :hugs:
     
  14. littlemansmum

    littlemansmum Mum Of 2 Beautiful Boys x

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    Chick, when i was having my first i had to go there as they suspected a heart defect, i was lucky in that my baby was fine, but the cardiologist was fab, really kind and professional and really put me at ease while doing scan etc.
    I had not been made aware of possible problem at my scan so was HUGE shock when a midwife from Taunton phoned about my referral, but she said they speialise in childrens and in-utero medicine and if a procedure was needed then they were the best to do, as she said i may need surgery on lo while still in and had to be done by 27 weeks if it was needed, which as i said luckily wasn't.
    In any case i found the hospital fab, and have every confidence in them, the only thing i found was parking was very limited so allow plenty of time for finding somewhere.
    I wish you and Elinor May all the best chick and hope you the good news you deserve, i may not have had to go through what you are, but i now the fear at a possible problem and just the unknown so if you ever want a chat or a cry or a shout feel free to pm me.
    Huge hugs to you both xxx
     
  15. Pippin

    Pippin Sam and Adélie-Rose's Mum

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    Like the girls said hon they have specialists there. It's a good thing it means that you'll have the best looking at your little one so you can trust their conclusions more. xxx
     
  16. smith87999

    smith87999 Mom of 4

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    Sounds like they are sending you to a hospital that will know about your baby's condition... so that is great... and glad you have found some girls who have dealt with this and you can ask questions...

    Hang in there...

    Saying some prayers for you and baby :hugs:
     
  17. tmr1234

    tmr1234 Guest

    iam sorry u have to go thow this thinking of u and ur famly
     
  18. joeyjo

    joeyjo Mum to 2boys, growing #3

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    I went to St. Michael's Hospital a few years back when I had a large ovarian cyst. Everybody was really nice and seemed to really know what they were talking about. It was busy but they still took their time to explain everything clearly. Hope all goes OK. :hugs:
     
  19. Kbee

    Kbee mammamia

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    :hugs:
    Thinking of you......Am sure they are sending you to the best hospital for your little girl.
    xxxx
     

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