Vasa Previa - A condition all woman planing on having a baby need to know about!!!

[Mum2miller]

We lost our Perfectly Healthy Baby to a Rare pregnancy condition known as Vasa Previa. It effects 1 in 3000 woman, the need to scan for it and follow the appropriate management is so important yet still not always being done. My Hope through telling Millers story is that losing babies from Vasa Previa will be a thing of the past.

On tuesday the 8th of June at 35 weeks along my waters broke at home. i had been diagnosed with Vasa Praevia 2 weeks prior but was not admitted to hospital for observation. I was raced to the hospital, almost an hour and twenty minutes passed before my c section was performed my son was born at 2.04pm on the 08th of June 2010 he suffered severe blood loss resulting in failing kidneys, heart and majority of his other organs we were told that while this may repair itself his brain could not and he would have severe permanent brain damage and would never leave the Hospital. on the 10th of june at 1.30 am we turned off his life support and our son Miller Ramage Passed away at 1.40 am. My thoughts go out to all mothers and fathers who have experienced the loss of a child no words can explain this heartache and pain. Vasa previa is A condition in which blood vessels within the placenta and the umbilical cord are trapped between the baby and the opening to the birth canal, a situation that carries a high risk the baby may die from hemorrhage due to a blood vessel tearing at the time the fetal membranes rupture or during labor and delivery. If the membranes rupture at home the baby has about a 5% chance of survival. Vasa Praevia is a condition that is easily diagnosed but unfortunately in many cases still isnt being scanned for. My Hope by sharing Millers story is that all pregnant woman will be able to be the advocate for their baby by asking for a Colour Doppler scan to be performed to check for this condition and if confirmed follow the recommended management plan.

Please watch my youtube video dedicated to my son Miller to help raise awareness for this potentially fatal pregnancy condition.

https://www.youtube.com/watch?v=m3AW8jMkAJM

It only takes a few extra minutes and may save your babies life!

Thank you
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[MissRamejkis]

Thank you sweetie, that is very brave of you to share your experience. I am so sorry for your loss xxxx

 

[v2007]

My friends daughter died from Vasa Previa in 2007.

Something that take 2 seconds to check on a scan cost her her a life.

Her waters broke at home.

She was delivered at full term by a crash section as they thought they could see a faint HB, they tried in vain for 40 minutes to get her little heart pumping but it was too late.

Rip Miller and My friends daughter Ruby.

V xxxx

 

[elaineindc]

my heart goes out to you mum2miller. thank you for posting your story, i for one will be asking for the scan that could detect this condition. with love, x

 

[Mum2miller]

thank you, He is already my Guardian Angel but if his story can save even one babies life then he will be a Hero and he won't have died in vain.

 

[lynzlogan]

thank you for sharing, i had never heard of this.
Ever so sorry for your loss xxxxx

 

[Chellepot]

I'm very sorry for your loss and thank you for sharing your experience. I had not heard of this and will be asking my midwife for more information.

Everyday I read about something else I need to be worried about, I don't think I will ever enjoy this pregnancy

 

[fluffyblue]

Hi hunni what a touching story and im so sorry for the loss of your baby.

Im high risk with a blood clotting disorder and as such have a artery scan on 29th September. I was terrified at first when they told me I needed this but the more research I have done just instills more faith in me that it will help massively in diagnosing if anything is going to happen

thanks again and all the very best xxxx

 

[Deutschette]

I am so sorry for the loss of your beautiful baby boy. My thoughts go out to you and your husband, and I can only wish that things get better for you two over time.

I thank you from the bottom of my heart for this information. I will be getting this scanned for, no matter what.

 

[Tasha360]

thanks for sharing. so so sorry he really was beautiful xx

 

[debgreasby]

 

[moomoo]

Thank you for sharing.. Your baby boy is incredibly brave and beautiful.. So sorry for your loss xx

 

[mislaww]

I'm so terribly sorry for the loss of your lovely little boy Miller. Thank you for sharing your story.

 

[wubba]

Thanks for the info and sorry for the loss of your beautiful sonxxxxx

 

[Mum2miller]

Thank you to all the ladies who shared my video 460+ people have now viewed it, i know Miller would be proud!! xx

 

[Mum2miller]

just thought id bump this up for any newbies to have a read. Please dont be scared by the condition. im not sharing this video to scare anyone just to make ppl aware of how preventable death from VP is. Thankyou to everyone who has viewed the video now over 1100 views.

 

[Braethan]

A beautiful perfect baby, how heartbreaking. I'm so sorry for your horrible loss. It is very good of you to be raising awareness and probably saving some precious little lives.

 

[BBonBoard]

I am so sorry to hear about your loss.

 

[MMonroe8]

So so unbearably sorry for your loss. Thank you for spreading the word about this; I will definitely scan.

He really was beautiful.

 

[poppykat]

Thank you for sharing the video. I think it is so important to raise awareness of conditions in pregnancy. It may be scary to pregnant women, but if babies lives can be saved then it is worth it.

I am so sorry for the loss of your beautiful son.

Sweet dreams Miller xxx