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xxxxy - 49'ers

Vanilla_girl

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Does anyone on here have a son with this syndrome? My son was diagonosed with this at a week old and I would love to talk to someone who has been through this.

thanks
 
How old is your little boy? Have you joined Unique the rare chromosome disorder charity yet? They are really nice and will be able to put you in touch with other xxxxy families :D

I found this on their website: https://www.rarechromo.org/information/Chromosome_X/XXXXY FTNW.pdf

Www.xxxysyndrome.com might be helpful too if you haven't already seen it.
 

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