30+5 weeks and have been told babies lung didn't develop

[BabyMami]

Hi everyone, I have posted on here quite a few times but just yesterday I was told some sad/ scary news.

I am 30+5 weeks pregnant with my first.

At my regular appointment check up, midwife told me my fundal height was measuring 5 weeks back, so she then organised for me to go for a growth ultrasound scan just to check if anything was causing it. Yesterday my partner and I went for the scan after a week of waiting. As the sonographer was checking everything out she would say things like "good" "oh bub looks good" "he seems like he is growing just fine!" ... which relieved us both. She then asked us to wait in the waiting room to follow up. We waited... and waited... and waited... 40 minutes went by and I turned to my partner and said "something isn't right". He assured me everything was fine and that they were just a little busy. The sonographer finally came out and said "Make sure you attend your next routinely check up appointment nextweek. It's all good".
Seeing as though she said "it's all good" I didn't know whether it really was good or not.. But, we started heading home.

About 20 minutes later, my mobile rang, and it was a Dr from the hospital. My heart froze. She then had asked me if anyone had told me anything in the room whilst doing the scan and I said no not really.. She then told me they had found something wrong with my babies lung. Something about it not forming or developing and that they need to refer me to a specialist hospital. She told me the name of this condition but I was too shocked to even remember such a long word. Which then lead me to google, I looked up lung problems in foetus' and I think I have identified the right one as to what she was decribing to me. All i can say is I am devostated and so sad that my little man is suffering and I had no idea. I read the chances of survival are low and babies who are born with this condition rarely ever survive and if they do, they will face a lifetime of lung problems.
The specialist hospital hasn't called me yet, so in the meantime we are waiting. If they haven't contacted me by next weds (my routine checkup), I have to ask my midwife to call them.

I hate waiting. Why must we wait while he is in there suffering. *Sigh*
I really thought he was ok and that everything was perfect. I guess my instincts weren't so spot on

I'm trying to stay positive and strong for my little guy. I know nothing is impossible but honestly I am also filled with doubt.

Sorry for the long post. Please pray for my little guy.
Thank you in advance I will keep this thread updated when I find out more.
Also, has anyone experienced or heard of anything like this before?

xx Blessings

 

[Taylah]

Oh babymami , just wanted to say I'm sorry you are going through this worry & I really hope everything turns out fine please keep us posted I will keep checking on you & your little man, on a positive note if it were really urgent I'm sure they wouldn't have you waiting around , try stay positive for your bub xxx

 

[BabyMami]

Thank you Taylah. I ended up calling them and they actually said they'd been trying to contact me since yesterday! They were provided my old number from my previous hospital instead of my new one. *Sigh*. Now we have to wait till Friday as they are now fully booked tomorrow. So my appointment is on Friday at 10am. I will keep you posted. Thank you so much for your support it means so much.

Take care xx

 

[kimbotrav]

thats awfu news im so sorry i ope friday comes quickly and you gt to fnd out a little more just wanted tosend hugs and pray al will be ok xxxxxxx

 

[Luzelle]

Sending you my best thoughts and hugs. I have no knowledge of the problem taht your baby has but just wanted to wish you well. I hope you get some answers on Friday and that you are treated gently, compassionately and with the respect your baby boy deserves.

 

[Stressbucket]

All the best. Praying for you and the little guy.

 

[GuardianAngel]

Good luck today

 

[Elljo3]

Really hope that is/has gone well for you and baby.

Thinking of you both. X

 

[SabrinaKat]

hoping all is 'okay' today....

take care of yourself...

best wishes

 

[BabyMami]

UPDATED 12/10/2012


I would just like to greatly thank all those that prayed for us. It is an absolute miracle. We couldn't of had any better news today!

We went to the specialist hospital today (my mother, partner and I). Waited 50 minutes over our appointment time and finally a male sonographer called us in. He was very sincere and nice to us and explained that we will now be going for an ultrasound to check babies measurements and also check out the lung. Afterwards, the professor and a small medical team of Drs will come in and discuss what we will need to do next. We got into the room. There was a lady already there waiting for us (another sonographer) and she too, was very kind and sensitive. She begun, the jelly, the probe, pressing on my stomach. We saw our little baby boy again, his spine, head, but due to being 31 weeks, we couldn't really make out much of what he looked like. She started taking still shots and labeling/measuring them. I started shaking (from nervousness). I was so uncomfortable and scared. She then had a few issues with the angling so the male sonographer took a turn. He apologised if he pressed harder as it was a little hard to see from babies position. I said it was ok and smiled. He started doing the same; still shots, labeling etc. He then had to change probes to see a little more clearly. He looked at the heart for a little while, we all saw it beating away. I looked over to mum, she had a tear in her eye. This was the first ultrasound she'd seen of my little one.
Then I heard some mumbling between the man and the woman. He said "Sorry, we like to mumble alot, don't mind us" and smiled. Then after another 10 minutes, I hear him mumble to her "Do you see anything obvious?" She said "Mm no, I don't actually"". He continued. Probing around my belly, and for the next 10 minutes he had a serious yet blank look on his face. They both were staring into the screen, mumbling amongst eacthoher. I turned to my partner and mum with a little grin on my face. They had no idea what I had heard or what I was grinning about. The sonographer then said, " We're having abit of trouble identifying any obvious issues, I will get Professor and get him to take a look".

I felt SO happy at that very moment. I couldn't believe what I was hearing. BUT I didn't want to get my hopes up.

Professor came in quite fast and he got straight into it. "Hmm yes, I see what you mean". "Which lung was it? The right one yes?" "Yes, the right lung" the man said.
"I can't visualise any obvious lesion. Both lungs look normal to me"
They exchanged words amongst eachother, and he kept looking, comparing and then asked the man to open up the ultrasound from my previous hospital to try and visualise what they were speaking about. He saw the images and said "Ahh yes, I see why they are concerned, but machines can differ in light and shade. My machine doesn't show any obvious lesions." He then went closer and showed us that there was a small lighter and brighter part of the right lung where he could identify looked a little different from the other lung parts, but he said, they don't look bright enough to be of any concern. He told us he doesn't think there is anything wrong but he would like me to come back in 4 weeks just to make sure.

Afterwards he explained to us that even if the issue was present, babies with this problem often can breathe on their own after birth, but some need ventilation. He also said sometimes these lesions can disappear as a child grows older but if it does lead to complications, they can have surgery.
(Turns out the Dr from my other hospital told me something different!!!)

Even though we aren't completely off the hook yet, words can't explain how happy we are to hear this news. We feel so blessed and grateful for all those
who supported us in prayer and comfort. Thank you so much. I will still update after our next ultrasound in 4 weeks to follow up. Fingers crossed it really is nothing at all.

With the strep B, he told me to inform my midwife and during labour they will give my antibiotics.


So once again, THANK YOU !!! God bless you all.

 

[MrsMA]

So happy for you, fighting back the tears of joy for you, xx

 

[zombiedaisy]

Thats wonderful news!! So happy for you

 

[Agiboma]

Totally in tears and so overjoyed for you and your family.

 

[drsquid]

sounds like this is what they were worried about https://en.wikipedia.org/wiki/Congenital_cystic_adenomatoid_malformation

good to hear they decided it isnt there. sorry the first hospital freaked you out so much

 

[Pink_Sparkle]

So glad for you! xx

 

[Taylah]

Great news Hun , let us know how you go with your next scan xx

 

[Ersurgeongirl]

So happy for such great news!

 

[Luzelle]

Overjoyed for you!

 

[BabyMami]

Thank you wonderful people

@ drsquid, you are indeed correct! Are you a Dr?

 

[drsquid]

yup. radiologist =)