chorioamnionitis - please has anyone had this ? please reply a simple no if not

[gena]

My baby was born with very low tone, floppy, hypotonicity...then shortly after, within a day or two went to hypertonicity...and spent 4 days in the NICU and 7 days on antiobiotics...I had the chorioamniocentis...pushed 4 hours, he had sepsis and low blood sugar...he had cranium ultra sound, brain scan, spinal, and everything came back normal...but with those terms I was a MESS for a good year, thinking and convincing myself he had cerebral palsy...cause anything you look up under hypotonicity or hypertonicity, cerbral palsy comes up...I definitely made it worse for myself by obsessing on the internet and worrying and crying and blaming myself. That maybe they should have done a c-section instead being in my infection...I was so stressed out with worry I was driving people crazy and not sleeping good. I had myself convinced he HAD to have it...had no reassurance...His tone is normal, he looks like ANY other toddler out there...very strong and mobile and has always met all his milestones! Thank you god! I do remember the Dr. in the NICU told me he suspected that the combination of a long and stressful labor/delivery and reaction to my infection caused his floppiness...I just had NO perspective through the whole process...like what are his chances that he is normal...does he have a more chance of being normal than not...the list goes on and on...I feel extra blessed and grateful now after all of this...the health of a baby truly is the most important thing...something I would say without before all of this in passing...but REALLY feel it now!

 

[bubs82]

Thank you gena.. for your story and your reassurance ! I feel I can handle this better knowing I'm not alone. I'm trying hard not to worry so much, and to enjoy my time with Trystan. He is doing so well - started crawling the last few days - though with a lot of attaining frustrated noises , dragging of arms and legs in an awkward fashion - like a zombie baby lol. He has another consultant appointment 8th October I hope to god I can finally get some positive news ! I definitely need to stop googling its really pushed me over the edge sometimes. When they were doing the chest x rays and heart scans to check for damage I was convinced he had chronic lung disease, even though it was a possibility to me it was a certainty until it was ruled out ! I'm so glad to hear of your little boy doing amazing - what will be will be, I don't want to waste the first year of his life in total misery !! Thank you xx

 

[gena]

I was wondering though, why your Dr.s were concerned with cerebra palsy....yes the internet can be really great and really awful...

Just so you know, my son dragged his body when he crawled with one leg....did that for a few months and then he did the commando crawl and the traditional crawl....my neighbor who had a regular healthy birth had a son who crawled the same way and did not crawl on all fours and he's perfectly fine...

Sounds like you're doing better

 

[bubs82]

I was wondering though, why your Dr.s were concerned with cerebra palsy....yes the internet can be really great and really awful...

Just so you know, my son dragged his body when he crawled with one leg....did that for a few months and then he did the commando crawl and the traditional crawl....my neighbor who had a regular healthy birth had a son who crawled the same way and did not crawl on all fours and he's perfectly fine...

Sounds like you're doing better

Sorry I didn't realise I didn't answer ur question there .... at a consultant check he was retracting his chest whilst breathing, had poor muscle tone and was showing a preference to using one side of his body and not unclenching his fists, apparently early indicators of cerebal palsy .. but of course it cannot be diagnosed so early , and typical me had a meltdown assuming the possibility was an actuality. Yes he seems to be using one leg whilst crawling, I'm glad u said ur son and neighbours son demonstrated this also , very reassuring. I get good and bad days with my thinking ... but as this appointment gets closer I know my anxiety is gonna rise x

 

[elfin2011]

Hi Bubs, just to say, my second son (no chorioamnionitis) crawled like that pulling along with one leg to start with. Didn't have any significance at all.

It is hard not to watch for 'signs' though isn't it, I was like that with my eldest and it's only now when he's 3.5 that I have relaxed about it! I too would assume something was a certainty until proven otherwise, I think it was just my coping mechanism as then if it didn't come true we were better off than I thought rather than worse... !!

 

[bubs82]

Hi Bubs, just to say, my second son (no chorioamnionitis) crawled like that pulling along with one leg to start with. Didn't have any significance at all.

It is hard not to watch for 'signs' though isn't it, I was like that with my eldest and it's only now when he's 3.5 that I have relaxed about it! I too would assume something was a certainty until proven otherwise, I think it was just my coping mechanism as then if it didn't come true we were better off than I thought rather than worse... !!

Elfin you hit the nail on the head with my thinking - accept the worst and any less would be a happy outcome ! Yes, so so hard not to overthink every sign - I wish I could completely relax but I can't. Thank u for letting me know about ur crawling experience also , can watch him lurching about and enjoy his antics more x

 

[ttcreed]

Hey ladies! I have been gone for about six months. I was pregnant with my first, due to clomid. We lost our daughter on May 2, 2012 to Chorioamnionitis. We are now attempting to try for another baby. I hope we have some good news soon. Hope to talk to you all again!

 

[elfin2011]

Hi ttcreed, so sorry to hear about your little girl. x

I suspect my first son had chorioamnionitis which caused some problems at birth (he's fine now). I was so worried through my second pregnancy that the same thing would happen but he didn't have it. I really hope that your pregnancy goes well, I believe there is no reason for it to happen again.

Bubs82, how is Trystan getting on now?

 

[bubs82]

ttcreed ... I'm so sorry about your little girl :'( I very much hope you will have good news soon , lovely to meet you xx

 

[bubs82]

Elfin2011 , thank u for asking he is doing ok .. still behind with physical and social milestones but trying to keep positive. He has been referred to physiotherapy but still waiting for the appointment. He now crawls more traditionally but still seems to find sitting difficult and doesn't show any interest in social development. He just wants to be alone all the time, shows no emotion when I arrive / leave . So I just don't know .. is he normal, am I overreacting ? I wish I could see the future. I hope all is well with you ?x

 

[elfin2011]

Elfin2011 , thank u for asking he is doing ok .. still behind with physical and social milestones but trying to keep positive. He has been referred to physiotherapy but still waiting for the appointment. He now crawls more traditionally but still seems to find sitting difficult and doesn't show any interest in social development. He just wants to be alone all the time, shows no emotion when I arrive / leave . So I just don't know .. is he normal, am I overreacting ? I wish I could see the future. I hope all is well with you ?x

It's so hard to know isn't it, as they're all different. Harry (eldest, who I suspect had chorioamnionitis) is doing well at preschool and I only hear nice things about him. My youngest Edward (no chorioamnionitis) didn't sit well until he was past 8 months old and didn't crawl at all until he was a week short of one year old, so Trystan is beating him physically! I worried like mad, but he seems fine, he's 19 months now and running around like a loon!

x

 

[bubs82]

Hi its been a while but thought I would update u Elfin Trystan is crawling , sitting, standing with ease - into everything! Recent tests have shown he may be partially deaf which would explain the antisocial behaviour .. all in all he is a happy baby , getting more social as time passes - even waves bye bye on a good day ! Just wanted to thank anyone who replied on this thread , and to say that my boy is happy and thriving xx

 

[cherrylee]

I have never heard of this but I'm so sorry you are going through this. I pray for a good outcome, good luck.

 

[elfin2011]

That's great, so pleased to hear that Trystan is doing well and that he's happy. Thanks for updating me! x

 

[bubs82]

I have never heard of this but I'm so sorry you are going through this. I pray for a good outcome, good luck.

Thank u so much he has started getting more social - he keeps looking to see if someone is watching him and smiling - and watches other babies and tries to join in - he is an amazing little boy!! Xx

Elfin , thank u for talking to me, its really helped get me through this as so few people truly understand how scary it can be xx

 

[elfin2011]

Elfin , thank u for talking to me, its really helped get me through this as so few people truly understand how scary it can be xx

No problem, and best wishes to you both for the future. x

 

[bubs82]

Elfin , thank u for talking to me, its really helped get me through this as so few people truly understand how scary it can be xx

No problem, and best wishes to you both for the future. x

Best wishes to you and your family, and I shall never forget ur kindness xx