CMPI...doctor's stopped the prescription

[Sarah lo]

My LO went to the docs today to review the prescription for her special milk and he's stopped it. He said its time to try her on ordinary formula again. I'm just not sure how to go about it, do I gradually introduce the new formula or just swap her straight onto the new stuff? Her special milk is a cow & gate one so I'll probably stick with cow & gate but do I go for w follow-on milk or put her on the infant stuff?

I'm completely clueless with formulas as she was BF then moved straight onto the prescription stuff so I'm not sure what the different "stages" mean!

 

[Baby Love]

Hi there Sarah lo

I know you posted this a while ago but I'm actually looking for advice - maybe you have had experience of this. My little one is also one year old (where did that time go?!) and cmpi - every time we try him with dairy he flares up again so we have to stop. My question to you is when do you think I should stop giving him special formula. He only has about 10oz a day now (two bottles), but I am worried about stopping altogether because he needs those nutrients for brain development etc. He drinks oat milk also, but it's not the same!

I was just wondering what processes you have gone/are going through with this, if at all?

Hope to hear from you soon

 

[londonbump2]

Baby love do you have a paed? They should be able to advise, at Euan's next appointment we'll be challenging him (he'll be 13 months), I think it's normally a small amount of baked milk first.

 

[Baby Love]

Baby love do you have a paed? They should be able to advise, at Euan's next appointment we'll be challenging him (he'll be 13 months), I think it's normally a small amount of baked milk first.

Morgan has his 12 month check up soon, so I'll mention it then. Morgan can have milk baked in things but anything more than that and he flares up. I'm assuming that he's still going to be cmpi for a while, and really wanting to know when is best to stop the hypoallergenic formula. Is Euan still on it, or is he breast fed?

 

[Baby Love]

Also, sorry Sarah lo for hijacking your post!

 

[starstarstar]

Sorry I don't have any experience with this but didn't want to r&r. Infant milk is generally for babies up to 6 months so I don't think you would go onto that. I think probably follow on milk would be better. If u were you I would introduce it gradually i.e substitute so many bottles of the prescription milk for new formula per day and then up it until you are just solely on new formula.

Hope that helps and LO takes to the formula easily x

 

[Sarah lo]

Lol that's fine, hi-jack away. I saw the post and thought, ooh I posted something similar to that a few months ago, I can answer that. Then I clicked on it and realised it was my post!

Well, I'm not entirely sure how to advise as in my experience CMPI babies often react differently to one another. However I'd be happy to tell you what happened with us.

So LO started with it at about 4 weeks old and she had a sore hard tummy, constipation and green poo. We got her on special milk at 3 months and she did really well. When we started weaning we kept completely off dairy and only ever used her special formula if we needed to put milk in her food.

At 7 months the doc stopped her prescription (that's when I wrote this thread) and so we had no choice but to switch her formula. I'd planned to do it gradually but one day we drove all the way to my mum's in Wales and forgot her special formula so DH had to just go out and buy a tub of normal formula (cow & gate follow-on) which we just switched her to cold turkey as we had no choice.

She was absolutely fine

So at that point we started slowly introducing other dairy products into her diet. Starting maybe with a scraping of butter on her toast, a sprinkle of cheese on her pasta etc then slowly slowly built up from there.

Now she's just turned a year old and she's pretty much on a normal baby's diet. The only thing I don't give her is full on cheese sauce (eg macaroni cheese) I've never tried it with her but I'm scared to! And she still can't have cows milk as a drink- I tried it a couple of weeks ago and all her old symptoms came back.

So that's where we are. To answer your original question, I'd say you have 2 options, stay on special formula until a time comes when LO doesn't react to cows milk or try and swap to normal formula in the meantime. Tbh though chick, I wouldn't have thought there'd be any less nutrients in the special stuff to normal formula so I'd say it'd be absolutely fine to keep LO on the special stuff for the time-being and just keep trying dairy products every few weeks. Deffo discuss it with you doctor when you go see him but it sounds to me like you're doing fine.

xx

 

[londonbump2]

He's still on formula (and I assume will be for quite a while)! I haven't tried to introduce anything, paed said not to as he's only just settled (was 4 months when he finally got put onto his milk).

It's great that she's tollerating baked milk, maybe leave it at that till you see her paed? Not sure what the next step is from there but I don't think it's switching formula yet.

Sarah I still can't believe your GP! Obviously great she was fine but :O :O :O

Do you get baby oat milk? I know you get soya junior, you could try that as a drink, it's close to cows milk so she might or might not tollerate it. Euan can only tollerate a small amount of soya, he has bread with soya flour and sometimes a small bit of something else (might try soy cheese soon).

 

[Sarah lo]

He's still on formula (and I assume will be for quite a while)! I haven't tried to introduce anything, paed said not to as he's only just settled (was 4 months when he finally got put onto his milk).

It's great that she's tollerating baked milk, maybe leave it at that till you see her paed? Not sure what the next step is from there but I don't think it's switching formula yet.

Sarah I still can't believe your GP! Obviously great she was fine but :O :O :O

Do you get baby oat milk? I know you get soya junior, you could try that as a drink, it's close to cows milk so she might or might not tollerate it. Euan can only tollerate a small amount of soya, he has bread with soya flour and sometimes a small bit of something else (might try soy cheese soon).

I know, shocking eh! To be fair though the doc did say at the time that he would re-start the prescription if she'd had a reaction.

 

[Baby Love]

Thanks so much for all the advice!

O/T Sarah lo, but I was born in Leeds and grew up in North Wales, before moving to Lincoln and then finally Canada!

With regards to Morgan's cmpi, I ideally don't want him on ANY formula for much longer - he's almost 13 months old now and if he wasn't cmpi I would have him on cows' milk. The formula is just so expensive and we've been paying for it ourselves since he was 6 months (he was bf before that). My ideal situation would be to use up his last can of nutramigen and then just have him on oat milk to drink (we also supplement with flax seed oil in his cereal). Not sure if this would be okay

Probably best to ask the doctor but it's nice to hear from people who've been through it or have a little insight