cyst on babys brain

[MrsBroodyPant]

Hi,

I had my 12 week scan today which showed a cyst on the back of babys brain. I have to be rescanned next week to see if it has changed bigger/smaller. It could cause disability and the doc mentioned dandy walker.
Anyone any experience of this? Everything else perfect but its brain.

Im so sad and crying all the time. It took 22 months to get pregnant and i have thanked my lucky stars everyday since.

Xxx

 

[Sheri2]

I baby girl also has choroid plexus cysts on her brain. My ob and Dr at the hospital both told me 99% of the time they go away. They will monitor your baby to make sure they are going away. Don't be surprised if they get bigger before getting smaller. I'm 20 weeks and they are still watching to see what happens with the cysts. I found out at 18 weeks that's she has them. I had an ultrasound today and they were still there. Have another one on the 15th I'm praying they are at least smaller if not gone by then. Good luck and don't worry to much

 

[MrsBroodyPant]

Thank u for replying.

Are your babys cyst affecting her brain development?
What will happen if the cysts get bigger? What will happen when baby is born? Will they drain the cyst?
Xxx

 

[Sheri2]

Your welcome.....I know how it is to worry and I wanted to put your mind at ease Dr's both told me the cysts usually go away by 28 weeks. They will probably send you for a level 2 ultrasound to get a clearer view. It is a soft marker for trisomy 18 which is a form of downs but my baby only has the cysts no other markers. Dr at the hospital said that if her hands were clenched in fists the would have been another big marker but they weren't. 99% of the time they go away so they didn't elaborate much more to me other than I get to see my beautiful baby girl every 4-6 weeks for the rest of my pregnancy to watch the cysts and monitor her growth (which at 18 weeks she was 8ozs) I'll bet your baby's cysts go away by then don't stress yourself out its not good for you or the baby but I will deffinately keep you updated on what happens with mine so you can kinda keep you mind at ease. Just think no matter what you wouldn't be given something you couldn't handle we are women we are made strong.

 

[MrsBroodyPant]

Thank u.
But my doc didnt say the cyst would go away. Its one big cyst and it will affect the brain i think. Its called arachnoid cyst. I go back for an us in a week to see whats going on but the doc didnt give us much hope. I think it will not survive. Im crying non stop. I cant feel this sad for a week. Dont know what to do or think.
I dont think this is going away. The doc was very worried and said im very sorry and sent me out the back door xxx

 

[steph.]

MrsBroodyPant i am so sorry you are going through this I dont have any experience with this but i found a study that says the outcome is usually good if its not associated with any other abnormalities.

"The cysts can be found in different brain compartments and may have different origins. Choroid plexus and arachnoid cysts are the most commonly diagnosed lesions and, when not associated to other fetal anomalies, have a good prognosis. " https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3279101/

Dont give up yet. Big

 

[MrsBroodyPant]

Thank u!

Thats very kind of u to quote some text.
Xxx

 

[Hope2302]

Didn't want to read without leaving any comment. Just wanted to say that I pray the cyst doesn't get bigger and leaves baby unaffected.

 

[MrsBroodyPant]

Thank u. Thats very kind of u xxx

 

[MrsBroodyPant]

Still waiting for my scan on thurs. This is the longest week ever xxx

 

[bumski]

just want to wish you lots of luck at the next scan and i hope baby is doing really well and it will be a lot smaller a problem than your maybe expecting, we got told at our 20 week scan our baby has a problem with her spine and ushered out to wait a week to be rescanned so i know how stressful the wait can be. thoughts are with you x

 

[littleone2010]

Hi Hun, I remember you from the pregnancy tests bit. I was also ltttc and unfortunately I have also had my share of worrying stuff this pregnancy but thankfully everything seems fine now I've had extra testing. I know it's more devastating when you have been trying for a well wanted baby, don't let it eat you up yet, try and stay strong until that scan, there is definitely lots of hope yet!!! I had a friend with something similar and her baby was fine. Its good to get your feelings out though, we are all here for support. Good luck for that scan xxx

 

[laila 44]

Mrsbroodypants I'm so sorry u are going through this. I too remember you from first trimester early days... I hope baby will be ok. Please keep us posted xx sending u good vibes

 

[MrsBroodyPant]

Thank u ladies.

Lots of people seem to remember me! I have been on B&B since sept 2010.

Got a phone call today from hospital to say my blood test results show a very very low hcg level and papp-a level too. They are worried. They couldn't tell me if my NT test came back high or low risk as my levels are so low that they are off the scale and the computer wouldnt reconize it!!!

Gutted...this baby is so loved and wanted xxx

 

[littleone2010]

Oh Hun, I'm sorry, let's see what happens through extra testing (if that's what you plan to do) and go from there, take each day one at a time and hopefully through all this bad news there will be some good! Xxx

 

[LovelyFay]

I pray your baby is okay mrsbroodypants best of vibes too you and little one!! Keeping you in my prayers

 

[MrsBroodyPant]

Thank u ladies. You are all very kind.
I will update xxx

 

[bumski]

thinking of you and i hope you get some good news x

 

[Moom7900]

Sending you and baby lots of love and hugs......hope you get happier news xxxxxx

 

[MrsBroodyPant]

UPDATE:

The cyst has gone! The brain looks normal. Its a miricle!!!

However as my hormone levels are so so low the baby could have a choromosome disorder. Im having CVS test on tues to see if it has a disorder or not. If it has a choromosome disorder then it wont be compatible with life.
My low levels are very worrying. But i got good news today so that encouraging

Xxx