Does anybody have Post viral fatigue/ME/CFS?

[HellBunny]

Anybody?

 

[fairygirl]

I have a 'fibromyalgia' diagnosis.

 

[TTC First]

I also have Fibro

 

[TaraMum]

Hey, yes I have M.E and Fibromyalgia, been unwell since 2001. Feel free to PM me if you need a chat

 

[fairygirl]

Ergh Fibro. Diagnosed 2002, after 2 years of pain and illness following glandular fever!

Hi ladies :wave: How do you control yours? I find diet and exercise the only way (yet still overweight!) and just accepting I will always feel slightly unwell each day. My biggest issue is when tension builds in my jaw and neck, leads to chronic headaches. A doctor reckoned I had a neck injury. I'm going to save for acupuncture and chiropractor one day.

Any other tips?

 

[TTC First]

I just manage mine by activity. I know my limits as to what I can and gan not do and I get a lot of rest. I take lots of breaks and avoid stress where ever possible.

I am wondering how this effects pregnancy though. I have never had a child so I don't know what to expect.

 

[misslissa]

I was diagnosed with CFS in Dec 10, pretty sure all stress related and my immune system shut down, virus after virus. I'm looked after by a specialist team (not that much now but they are there when I need them). Feeling like I've got more of a handle on it recently but it still doesn't take much to set me back!

If you would like to PM me about anything please feel free.

Why don't we start a CFS/Fibro group to support eachother?

X

 

[fairygirl]

I have had 2 pregnancies and been fine for both apart from gestational diabetes that I am high risk for anyway. Like you said you know your limits. I do wonder if it sometimes makes it a bit harder to look after my LO in terms of energy.

- Just wanted to add they found no link to the loss of my first, but do take extra folic acid just in case

 

[misslissa]

How much folic acid do you suggest?? Didn't realise that was important, I take the standard 400 at the mo while ttc.

 

[fairygirl]

My doctor said just an additional 400, but you can't overdose on it and if I remember rightly some countries advise even more.

 

[misslissa]

I'll up mine a bit then just to be safe.

 

[sarahfh]

I'm technically "recovered" from M.E but still have periods of time where I have much less energy than normal and I've never got back to 100% health. My mum has lupus so things like that seem to run in my family.

 

[summer rain]

I was diagnosed with CFS in my early teens but mostly recovered so I'm not currently under a specialist or anything. I have experienced some worrying neurological symptoms more recently but haven't been to the doctor specifically about them. Like I said; I'm mostly recovered and usually ok, recently though I've just had swollen glands and throat problems pretty much constantly and ended up with an abscess in the space between my tonsils and roof of my mouth, which I think is linked to the CFS. The only other time it really flares up again is early pregnancy, I don't remember much from any of my first trimesters because I have to sleep for up to 18 hours a day and am extremely fatigued for the rest of the time xx

 

[Olivette]

Hi Ladies,

I have had M.E for 7 years; since being a teenager.

My health has been at varying levels although most recently I was well enough to start an apprenticeship. A great opportunity and it was going really well, until I found out, 2 weeks in that I was pregnant. This is great news (we're really happy) but my M.E has now relapsed and because we haven't told my boss yet (due to a previous MC) it has been hard to explain why I've been so poorly.

We're going to give it till the weekend and then reassess what we do. I won't be able to make it to the end of my apprenticeship anyway with being pregnant if all goes well, but im just not sure i'm going to be able to get back to work. . Hmpf!

Ox

 

[sunshine1978]

hi ladies, I've just joined this so not sure what Im doing yet I have been suffering with cfs for a few years, it was really bad at the beginning of the year ended up bed bound for about 5 months. the end of this year has been a lot better but still have to manage it, and i havnt gone back to my normal self that was full of energy. i found that i also have blocked tubes, so am about to start IVF in a few weeks. I heard good things about pregnancy and that it can help CFS for the time you are pregnant? anyone else out there have CFS and has done or about to do IVF?