Endo Question

aidensxmomma

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I hope you ladies don't mind me gate-crashing, I just have a quick question.

I'm going to the doctor today to discuss me possibly having endo. I am not sure what to expect at my appointment, but I did make out a list of symptoms and concerns to ask my doctor, so hopefully that will be a good start.

My question is if endo causes you to have shorter luteal phases? Mine is around 11 days, which isn't too short, but still shorter than average. Is it worth mentioning?

I am not currently TTC, but I do try to keep track of my cycles and take ovulation tests just to try to figure out what's been going on with my body.

Thank you in advance. :flower:
 
Hi,

I'm sorry I don't have an answer to your question but I do want to find out the same thing! I think I have endo after looking up my symptoms. Do you mind me asking what symptoms you have? My luteal phase is also 11 days and I wondered whether that was part of it too.

I am ttc, been just over two years now. My doctor has finally agreed to refer me to a fertility clinic after asking for ages! I also asked to be referred to look into endo but she said there was no point as the fertility clinic would do that as part of the process.

I feel really frustrated as I don't know if I have endo or not and just want some answers!

Anyone else out there who knows about endo, would love to hear from you.
 
The symptoms I have include:

*long, irregular cycles
*spotting between periods
*extremely painful cramping - it gets worse when going to the bathroom (TMI sorry) which I believe is a symptom associated with endo
*painful sex
*heavy periods with large clots

Plus, I had trouble conceiving my youngest child and there's a family history of endo.

The doctor I went to see did not at all take me seriously and does not think I could possibly have endo because I did not have difficulty conceiving my first two children. I'm on the search for a new doctor now and will hopefully get another appointment soon.

I know how you feel about being frustrated and wanting answers. It's horrible. I just want to know what's going on with my body. :nope:
 
Thanks for your reply, I have some of the same symptoms as you but still not sure if it's endo it not. I've finally been referred so just waiting to hear from the specialists now.

I haven't ever been pregnant and my husband already has two children so I guess I just assume it's a problem with me!

Hopefully I will find out what's going on once I see the specialist and don't have to deal with my normal doctor anymore!

I hope you find a better doctor!
 
Hi there,

I hope you don't mind me barging in. My DH and I have been trying since June 2012 with one pregnancy that ended in miscarriage. I was recently refered to a fertility specialist who believes that I have endo.

Symptoms
irregular cycles
the worst cramps you can imagine
pain on my left ovary (there is also some sort of mass, cyst, etc)
trouble TTC
Sometimes heavy flow with clotting.
Family history of endo.

You and the doctors can speculate all you want but the only way to tell for sure is to have Laparoscopic surgery which I am having next week. My guess is that your fertility specialist will have a similar plan.

I'm pretty sure I have it and your symptoms sound very similar (unfortunately). I can update you after my surgery and give you my diagnosis if you wish. I really hope both of you find some answers and that my post was a least somewhat helpful.
 
Hi ladies, I was reading your post and wanted to chime in if you don't mind. My husband and I have been trying for 2 years. We have no kids and lost our dog last year. I finally got fed up with my regular OBGYN and demanded to be referred to a fertility specialist. Long story short. I had blood work and vaginal ultra sounds done several times. The HSG is painful this is where they see if your tubes are open. The inject dye into you. Mine were. I had a SONO procedure completed this they inject saline inside you. This procedure they found a polyp (non cancerous) yeah!

Lilsoybean - I did have this surgery 2 weeks ago. Make your they give you strong meds it took me 5 days to recover back to 95%. I had my post op with the doctor. They removed the polyp, small cyst on ovaries and minimal Endo. Overall the doctor said my insides looked great. Now we are moving on to the next stage which we could have done the pills but we opted for shots.

Gook luck to all of your ladies! We are in this journey together!
 
Hi ladies,
Hope some if not all of you have received some answers about your symptoms.
I too have some and am very scared if the outcome, thanks a bunch google and curiousity for that.
We want a third and haven't had luck so went back to the doc. I had bloodwork done, hormone levels were great and was told to go in cycle day 2-3 for blood and ultrasound. So that was today, and low and behold I have great ovary size but my lining is 15mm, on day 3 of my cycle! Over twice where I should be. They are calling me tomorrow about the blood results and to set up a sonohystogram, he suspects polyps, maybe endo. He didn't seem to concerned but I am. I've had issues with heavy bleeding for a frw days of my cycle each month, so bad that leaving the house is difficult that even with double protection I leak through. Last time I had it checked they didn't see cause for concern and just suggested mirena iud. I nixed that as we wanted another. I also have hellish cramps during AF and ovulation, spotting mid cycle, painful bathroom trips during mentruation, back pain, the list continues.
Please tell me I'm not alone in this? Anyone had success fixing the issues?
 
Hi Ladies!

I am in the same boat :) Hopeful42nd I have the same symptoms. I have been scheduled for my laparoscopy in a week to check for endo. My DH and I have been trying for 2 years now with no pregnancies at all. Fingers crossed they will find something so it can get sorted out.
 
I had the surgery and am mostly recovered....still pretty sore though. I meet with doc tomorrow to discuss next steps. I can't wait to see what he says. So, I will update tomorrow when I have more information to share.

I hope everyone is finding answers to their symptoms. I do know that doc found stage 2 Endometriosis and an endometrioma on my left ovary. Everything else, including my tubes, looked good. I can't wait to start trying again and I can't wait to get the results of my hubby's last SA. I'm hoping his swimmers have improved.
 
Hi all. Hope you don't mind if I chime in. I've received been diagnosed with severe endometriosis. I had lap surgery back in April of this year after being so much pain... I literally couldn't move the first day of my cycle because I was in so much pain. I've also been trying to conceive for 3 years at that time and nothing. Sure enough... ENDO. I don't have the usual signs though. I have normal cycles that come every 27-28 days, I have a 14 day luteal phase and I ovulate. I also had a HSG to show my tubes are open. The doctor suggest that the only way I'll get pregnant is throw IVF. However, I'm trying to keep the faith that we can have a baby naturally. The biggest thing I've done since the surgery is change my diet. I have seen a huge difference in my cycles since changing my diet. I'm thinking about going gluten free because endo is nothing more than inflammation of the pelvis/abdomen area and gluten free diet helps aid that.
 
Swtshae- What did you change about your diet? Has it helped the pain? I'm thinking of trying gluten free as well.
 
Hi ladies :) Sorry you all have to deal with this too but thank you for all your replies. :hugs:

I did finally see a new doctor who also suspects I have endo and I have a laproscopy and a hysteroscopy scheduled for Friday this week. Not looking forward to it, but definitely looking forward to getting some answers and figuring out what my next steps should be. I'm really happy I found a doctor who took me seriously and is supportive should I decide to TTC after I get all my results back.

So I'll be getting some answers and making decisions soon. How long after your surgeries did you ladies find out your results?
 
aidensxmomma - You should get results immediately. My doctor told my husband that day the condition of my endo. I also had a post op to discuss further plans with trying to conceive as after surgery you're totally out of it because of the meds.

lilsoybean - I had the surgery mid April and my post op was 2 weeks later. In that 2 week time frame I had researched natural ways to get pregnant with endo and diet was the common factor I found. The biggest component from my research was staying away from red meat (unless organic but still consume small doses). Red meat has a lot of estrogen (because of hormones) and endometriosis is a disease that feeds off of high estrogen levels. Well looking back at my diet we were having red meat at least once a week to try to incorporate different meals... At my 2 week post op appointment I asked my doctor if he thought that changing my diet would help and he said no. That I should get on the pill and IVF would be my best bet to conceive. Well I decided against that as I'm not ready to move in that direction and I don't believe his word is final. In May, I totally changed my diet. I begin to NOT eat read meat and minimized the amount of diary I was eating. Though I don't eat seafood I cook that for my husband and I'll either eat chicken or no meat at all. Let me just say 6 months later from that surgery I can tell a HUGE difference in my cycles. I haven't had nearly as much pain as I did before. The only correlation I can make is the red meat... I truly believe that has made a difference. I use to get excruciating pain in my rectum (sorry if that's TMI). I found out after surgery that I have endo on my intestines and that is what's causing so much pain. Well since the diet change that pain has decreased tremendously. My diet has really helped my condition. I can't speak for what it can do for you, but it has helped me so much. Though I have eaten a steak and burger here or there, red meat isn't a big part of my diet anymore and I feel better. Research endo diet and or anti-inflammatory diets and see what you come up with. Endo is just inflammation so I follow a close anti-inflammatory diet (very similar to gluten free).

Please let me know if you decide to change your diet and how you feel. I totally think it will help!
 
I thought I would chime in and let you know my story because I'm a bit atypical endo suffer.

I have stage 4 endo with displaced organs that have been glued together similar to a frozen pelvis. I've had a lap surgery and went through a Lupron treatment. I have had 1 ovary and 1 tube removed.

My details:

1. 14 day LP
2. Very regular 27 day cycle
3. Not much pain typically 3 Advil would take care of it. I only needed that the first day if my cycle.
4. A 4 day cycle however CD 1 is very heavy
5. I do have large clots with AF
6. Infertility
7. A family history of endo
8. A few cyst have shown up but only the last couple years.

I highly recommend getting tested if you even suspect there might be a problem.

Good luck to everyone.
 
Milty, I have a very similar cycle like you with having endo. The only difference is before changing my diet, I had a large amount of pain. The first day of my cycle is very heavy and I do have some clots. Over the past couple of years I've also had some cyst. Are you trying to conceive and or had a child?? I would like to know if I have a chance!

Thank you!
 
Like you I also follow the diet.

I have 1 DS who took several years to conceive. I had been TTC my second since 2011. I've had 5 CP and one MC at 8 weeks. I will say endo is not my only problem. Endo is actually the one issue I can magage. Believe me if I can get pg with my endo I really think everyone can. Now I will say sometimes if you have endo you could also have immune issues which can be harder to overcome.
 
Milty, when you say immune issues what do you mean? I'm glad to hear you've been able to conceive with your endo. I've been trying for three and a half years... My fertility doctor said he doubts I get pregnant naturally but I am not ready to attempt IVF...
 
Immune issues are commonly found in women with infertility especially with recurrent miscarriages. There are several different kinds of immune problems but basically your body attacks your pregancy as if it was a foreign invader. Or your own immune system causes problems with getting and staying pregnant.

They say about 30% of women with endo have immune issues.

Here are a couple links that can explain it better than me.



https://haveababy.com/fertility-inf...ing-immunologic-implantation-dysfunction_16-2

Also read the info on this page about Prostaglands

https://www.endo-resolved.com/infertility.html
 

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