Hi Annie,
I'm so sorry about your loss. I don't have Factor V def, but I'm homozygous for MTHFR and Lupus Anticoagulant Antibody positive. Unfortunately I didn't find out until after 2 miscarriages in the last 6 months. I started on Lovenox injections just about a week ago and will have to be on it while TTC and during pregnancy. This is some basic information on Factor V Leiden that comes from a trusted website (I work in the medical field and I use it all the time.) And like Lotus said, treatment really depends on if you have 1 or 2 copies of the bad gene for Factor V Leiden deficiency. I hope everything works out for you!
What is factor V Leiden? — Factor V Leiden is a condition that makes blood more likely to form clots in the legs, lungs, and other parts of the body.
Blood clots can be dangerous. If a clot forms inside a blood vessel, it can clog the vessel and keep blood from getting where it needs to go. If a clot travels to the lungs, it can cause breathing problems or even death.
Factor V Leiden is a life-long condition that people are born with. It is caused by an abnormal gene. Parents pass the abnormal gene to their child. Often, parents might not know they have the abnormal gene because they don’t have any symptoms of the condition.
What are the symptoms of factor V Leiden? — Most people with factor V Leiden never have any symptoms. The condition only causes symptoms if a blood clot forms, and that is unusual. When clots do occur, they can cause:
●Warmth, redness, pain, and swelling in the leg – These are symptoms of a condition called “deep vein thrombosis” or “DVT.” This is a blood clot in a vein deep inside the leg (figure 1).
●Breathing problems, sharp chest pain, coughing, and fast heartbeat – These are symptoms of a condition called “pulmonary embolism.” This is a blood clot in the lungs.
●Headache, trouble moving or talking, and seizures – These can be symptoms of a type of stroke caused by factor V Leiden.
Should I see a doctor or nurse? — See your doctor or nurse right away if you think you might have a blood clot in your leg. If you have symptoms of a stroke or a blood clot in the lungs, call for an ambulance (in the US and Canada, dial 9-1-1). These conditions are very serious and can be life-threatening.
Is there a test for factor V Leiden? — Yes. If your doctor or nurse thinks you might have factor V Leiden, he or she can order a blood test to look for the abnormal gene.
How is factor V Leiden treated? — If factor V Leiden causes a blood clot, the main treatment is medicines that get rid of clots or keep them from getting bigger. Some of these medicines come in shots and others come in pills. Doctors sometimes do surgery to remove a blood clot in the lungs or help with brain problems from a stroke.
People who have had a blood clot usually take a medicine in pill form to prevent clots for at least 3 months after the clot is found. This medicine helps keep new blood clots from forming. It is important because people who have one clot often have another later on.
Is there anything I can do to prevent blood clots? — Yes. People sometimes get clots because they have been sitting still for too long. Taking a long trip raises your risk of blood clots, especially if you fly. To help prevent a clot on a long plane trip, you can:
●Stand up and walk around every hour or 2
●Not smoke just before a plane trip
●Wear loose, comfortable clothes
●Change your sitting position and move your legs and feet often
●Drink plenty of fluids
●Wear knee-high compression stockings
●Avoid alcohol and medicines that make you sleepy – These can keep you from moving around enough.
Women with factor V Leiden should ask a doctor or nurse if it is safe to take birth control pills. The hormones in these pills raise the risk of blood clots. This can be dangerous for women with factor V Leiden.
What if I want to get pregnant or need surgery? — If you want to get pregnant or need surgery, tell your doctor or nurse if:
●You have had a blood clot
●Your father, mother, brother, or sister had a blood clot before age 50
If the doctor or nurse thinks you might have factor V Leiden, he or she can order a blood test to look for it. If you have it, you might need to take medicine to help prevent blood clots and other problems.
), usually for heterozygous they will just monitor or do low-dose aspirin. However, given your history of a loss, it seems that treatment may be warranted. Warfarin is contraindicated in pregnancy so do NOT take it. The typical treatment would be lovenox injections daily. 
