I have a 'Unicornuate Uterus'!

jewlia88

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Hi All!

After several years of severe period pains and a recent hysteroscopy and laparoscopy - I've been told I have 'Unicornuate Uterus' (UU) [was told 24 hours ago]. I have only one kidney. I was explained that kidney and uterus is linked - so if something is wrong with the kidney the uterus is affected.

I have been reading up on UU. I'm just in shock at the moment - not really sure what to feel or how to react.

I would love to hear from anyone who has been diagnosed with UU =)
 
Oh Hun - sorry to hear that.

Sending you huge hugs x
 
sorry to hear that never heard of that before so cant help ive got a retroverted uterus thats about it :D
 
i have a Bicornuate uterus which is a heart shaped womb and i'm not sure if it was the cause of my problems in giving birth but its something i need look into. it did make me very big less space and everything.
some times reading on google etc can cause you more worry than you need cause you tend to hear of bad stories best person to talk to is your doc hun.
good luck i hope all isn't as bad as you think it is.
this one seems to say that a healthy pg is poss https://en.wikipedia.org/wiki/Unicornuate_uterus
 
i have a Bicornuate uterus which is a heart shaped womb and i'm not sure if it was the cause of my problems in giving birth but its something i need look into. it did make me very big less space and everything.
some times reading on google etc can cause you more worry than you need cause you tend to hear of bad stories best person to talk to is your doc hun.
good luck i hope all isn't as bad as you think it is.
this one seems to say that a healthy pg is poss


I agree! I think I have been reading too much!! I have really started making myself paranoid. Was reading statistics on stillborn and miscarriage rates and they are really hard! Not too sure if I am strong enough to even start or bother!
 
:hugs: Google can be a terrible thing - I'm always on google reading up on how women who have similar problems to me are unable to have children and it terrifies me. Each woman is so individual and different, and despite this obstacle you may well be able to have a healthy baby with no difficulties :hugs:
 
Dear Jewlia,

I have Unicornuate Uterus. It was first diagnosed as bicornuate uterus by ultrasound. I got my positive in 2007 and was a healthy pregnancy. My daughter born at 36 gestacional weeks, 2.8 kg and 47cm, cesarian section with no complications. My doctor examined my uterus and told me it was not bicornuate.

When I was TCC my second baby i did the HSG and was finally diagnosed UU. The left cornu was normal and the right cornus was rudimentary and noncommunicating. Unfortunally I got pregnant in the rudimentary cornu, what was confirmed by MRI. Because of the imminence of rupture of the gravidic rudimentary cornu, my doctor decided to terminate the pregnancy at 14 weeks. I was a very dificulty to me, but there was no chance for me or my baby. In the surgery my doctor preserved only the left cornu.

I have 2 normal kidneys e 2 ovaries.

Ps: English is not my native language, so I sorry for any errors ;-)
 
Sending BIG :hugs: to you!! :hugs: :hugs: :hugs:

I was diagnosed a little over a year ago with a Bicornuate Uterus (heart shaped). I remember feeling in shock when I was told the diagnosis, and it did take quite a bit of time to come to terms with such big news. I went through so many different emotions, and at one point didn't want to talk to anyone, especially my DH, because I felt broken and like I was letting him down. After a couple days of not talking to anyone, I finally came to my senses and just opened up completely to him and realized that he too was emotionally affected by this, but re-assured me I was not alone and that we could get through this together.

All I know is that googling things can sometimes make your mind race, wonder and worry more than you before, I know it did for me. Your should try to contact your Doctor and ask if s/he is able to sit down and talk to you about it, so that all your questions are answered. I know getting the facts was a lot of help for us, and gave us hope for a better tomorrow.

If you ever want to talk, feel free to pm me, I am always willing to listen.
 
Hello,

So sorry for the late reply. I thought I would get email notifications when someone posted. It's such a emotional overload - it's hard to talk about it with my partner because to him, it's ok - I'm healthy & all will work out. However, I am mote of a realist.

How did your partners take the news? Were they supportive?
 
Hello,

So sorry for the late reply. I thought I would get email notifications when someone posted. It's such a emotional overload - it's hard to talk about it with my partner because to him, it's ok - I'm healthy & all will work out. However, I am mote of a realist.

How did your partners take the news? Were they supportive?

Hey Hun,

In the top right of your post, it will show thread tools, there you can choose your subscription type so you can get emails if you want.

My DH has been pretty supportive, and says if it is meant to happen (conception that is) then it will. He hasn't said much to me other than that, but is always there for me when I have a breakdown about not having children. He seems quite like your partner, and says I am healthy and that it will work out.

:hugs:
 
:hugs: Google can be a terrible thing - I'm always on google reading up on how women who have similar problems to me are unable to have children and it terrifies me. Each woman is so individual and different, and despite this obstacle you may well be able to have a healthy baby with no difficulties :hugs:

I heartily concur. Every time I have a mild symptom of anything, I head straight to Google and think I'm gonna die. :\ And I've convinced myself my chances of getting PG are slim because of PCOS, when there are far more serious conditions out there!
 
Hi all! I am so happy to find a site like this and to know I'm not the only one with UU. Here is my story: I have only been pregnant twice in 9 years neither of which were planned and both pregnancies were unsuccessful. My last pregnancy was in 2008 everything appeared to be normal until I was 6 months along and I go into preterm labor. I went to the hospital and within 10 minutes of me being there my water broke. They told me I was in preterm labor and there was not really much they could do for me. They were aweful and I can remember asking a nurse a question and she replied back to me "it doesn't matter anyway your baby is going to die"! They ended up life flighting me to Houston where they tried everything they could to keep the baby in as long as they could. The next day they performed an emergency c-section and my son did not survive. When they did the c-section they were able to tell I had a UU but I was never told. After a year had passed my husband and I decided to TTC. We tried for a year before going to a doctor to find out if something is wrong. After many tests it was determined that I had UU. I felt crushed! After my doctor found out that I had UU she told us that it would be unethical for her to try to help us get pregnant but if we were ever able to get pregnant she would be more than happy to see us again. I went home just sobbing because I felt like we were never going to be able to have kids. I was never really informed in great detail about UU. I have seen a lot of posts with women who have UU that have almost completly have had normal pregnancies. I have been TTC now for almost with no luck yet and to be honest it gets depressing! I would love to hear from someone that has UU.

Hi All!

After several years of severe period pains and a recent hysteroscopy and laparoscopy - I've been told I have 'Unicornuate Uterus' (UU) [was told 24 hours ago]. I have only one kidney. I was explained that kidney and uterus is linked - so if something is wrong with the kidney the uterus is affected.

I have been reading up on UU. I'm just in shock at the moment - not really sure what to feel or how to react.

I would love to hear from anyone who has been diagnosed with UU =)
 
Hello!!! I was diagnosed with a Unicornuate Uterus last year. I have two ovaries, but only one fallopian tube. I have a small piece of uterine tissue that is not connected to anything that is next to my UU (weird) and everything is covered in endometriosis. I got the news after I woke up from having a laparascopic appendectomy - and a misdiagnosis of appendicitis. Better safe than sorry I guess.

The doc woke up me, gave me the run down and said I probably won't ever have children. My "lovely" sister spoke up and said "Oh, she'll be fine with that, she doesn't want them anyway!" I couldn't even respond. I just cried. I felt like I fell into the deepest darkest whole of nothingness. The next few weeks, all I did was research on UU. I even did an entire paper on it for my nursing program. I was obsessed with it.

At the time, I had a boyfriend of about a year. We hadn't had sex and we waiting for marriage. In April 2011, we got engaged and October 1, 2011 we were married! We wanted children very badly and we knew what we were up against. I bought an ovulation kit, we scheduled an appointment with a fertility clinic and we were ready to go.

October 9 I had some spotting. I just thought maybe I was starting early. Two days later, I couldn't keep anything down and I was exhausted. So, just for fun, I grabbed a pregnancy test out of our ovulation kit .. and it was POSITIVE!!!!!! I just stood in the bathroom for what seemed like forever. I paced, I shook, I cried, and then I ran out to my husband on the couch and said "So ... there's two lines here. How about that?" He smiled the biggest smile I've ever seen!

So far, everything has been ok. The doctor isn't too concerned about my first trimester. He is concerned with my second and third though. He thinks there may be a need for a cervical cerlage, a potential for bed rest, and a risk for preterm labor. The first ultrasound was last Monday, and there was nothing there - so of course, I freaked. He said it was way too early to see anything, but my endometrium was thickened, my breasts are sore, and I'm exhausted. He was pretty satisfied with all of that.

I go back next Monday for another ultrasound. This time, there should at least be yolk sac. I'm so nervous and so hopeful that everything goes right! Everything I've read says it's so rare, and when and if a woman with a UU gets pregnant, it's a high risk for miscarriage and preterm labor. So, we are hoping and praying.

The whole point of my little story is to encourage those of you out there with this diagnosis (or any thing else for that matter) to not give up! We had prayed about it for a long time before the wedding. I got the Lupron injection (to help with the endometriosis) and we stayed positive. The doc said I must have gotten pregnant the day of or the day after the wedding. In our opinion, it was God's gift to us. It was completely perfect!

So ladies, please, go to the doctor, do your research, but don't ever take someones word for 100%!! There is no such thing as "NEVER" .. unless of course you have no ovaries and uterus. Please don't stop trying, try to stay positive and just know that when it's supposed to, it will happen!!


Melissa
 
Sorry for the sad news ... Yesterday I lost the baby.
 
Mischa, I am so sorry....
But at least now you know you are able to conceive...the doctor was wrong and you can have hope you will have your baby soon.
 
Hi there I found out I had a unicornuate uterus after my c section. Can I just say, I made it to 39+5 so I was so close to my due date. The risks with a uu is baby is more likely to be breech, preterm labour and I think the miscarriage risk is slightly higher. I know its hard not to worry but it is possible to have a baby.
 

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