Miel, I don't know how committed you are to staying with your doctors, but if you're willing to consider a change, I strongly recommend contacting Stanford. They are AMAZING, and my doctor there, Dr. Baker, is the head of the department and is one of those top-level doctors who speaks at international conferences. They've got cutting-edge technology and are generally ahead of the curve.
Being a teaching hospital, the costs are also less than many other places.
It's a bit of a drive, but the knowledge and just general awesomeness of the staff make it worth it. When I freaked out one day, total panic, rather than getting mad, they held my hand and helped me calm down and weren't judgmental or anything. they're so caring and take all the time you need when you have questions. Of the places I've been for this, none have beat Stanford.