Kidney Transplant

[purplerat]

Hi,

My son has ARPKD ( autosomal polycystic kidney disease) and he needs to have a transplant in about a year or so time, when he is about 3. Has anyone's LO gone through a kidney transplant? I don't really know what to expect, though I have read a few leaflets. It will be done at Great Ormond Street x

 

[purplerat]

Anyone?

 

[lilbumpblue]

Aww hun didnt want to read and run im sure he will be fine! X

 

[evasmum]

Hi Purplerat

I stumbled on your thread while searching the forums, your wee boy is the cutest!

I hope you don't mind me saying but I lost my daughter to ARPKD in January 2010, there is a fantastic Yahoo support group for parents with children who have ARPKD, have you seen it? I am sure you would get lots of information from the other women on there:

https://health.groups.yahoo.com/group/ARPKD/

I hope all goes really well for William when the time comes

 

[purplerat]

Hi Purplerat

I stumbled on your thread while searching the forums, your wee boy is the cutest!

I hope you don't mind me saying but I lost my daughter to ARPKD in January 2010, there is a fantastic Yahoo support group for parents with children who have ARPKD, have you seen it? I am sure you would get lots of information from the other women on there:

https://health.groups.yahoo.com/group/ARPKD/

I hope all goes really well for William when the time comes

Hi evasmum,

Thank you very much I am very sorry to hear about your daughter. This disease is just so awful and I am very lucky William has made it so far already.

Thanks for that link, I will definitely take a look over there

 

[lilbumpblue]

How is he now hun? James will need a transplant too xx