Lupus, APS, and pPROM

MaevesMummy

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Hello,
I am curently expecting, am now 18 weeks. Unfortunatly after several very early losses and then we lost our Daughter at the borderline of Viability last September.

I am not sure if all these things go hand in hand, I know that having SLE, I was always more likley to have APS, but I am not sure if APS, means I was more likley to have pPROM (Preterm prem rupture of membranes).
I think bleeding from partial placental abruption caused it. My daughter was also smaller than average, although she was a live birth.

I just wondered if anyone was going through/ been through a pregnancy and got to 38 weeks.
I feel really worried.
I am on Asprin, Clexane and Plaquenil at the moment, and so far have been mostly bleed free, and just a few days out from my dates in scans (it was 2 weeks with Maeve) but I am so paranoid any feeling of damp and I freak out. I also worry about Early onset of preeclampsia, and Preterm birth. I want to keep him/her in as long as possible. xxxxxxxxxxx
 
Hi, I am sorry for the loss of your daughter. .

I am questioned as to whether I have SLE at the moment (originally they said I did) but I do have APS and hava had pPROM

I had three healthy children, then one loss of twins, didn't try again for almost 6 years and then got pregnant again with twins. I had pPROM at 14+5 and eventually had my wonderful daughters at 23+5. The first twin was affected badly by infection that had been undetected and the second twin sadly got a bleed in her lung at 9 days old and we had to let her go. She was just too early. They were both small for gestational age, although measured within the right dates. (Megan was 1lb 2 at birth, Imogen 1lb 4)

I also had bilateral pulomonary emboli when pregnant with the girls and have since had an early miscarriage whilst still on clexane for that, but not on asprin.

APS can cause pPROM, as blood clots in the placenta can cause it. Also, bleeding can, either because it is caused but a clot somewhere or because it weakens the membranes. However, the hospital have still tried to tell me the pPROM was most likely caused by infection, even though swabs showed me clear at the time of rupture and further swabs also did. They should have taken my placenta at delivery so it could be tested, but they didn't, so I'll never know if there were clots in it.

I am now pregnant again, 26+4 and on asprin since TTC and clexane as soon as I got my BFP. I am terrified beyond all belief, but hopeful that things will be OK. Originally I thought once I got past 15 weeks I'd feel better, but I didn't. Then 24, but I didn't. I have also now been diagnosed with Gestational Diabetes, which just adds further complications, including some which overlap with the APS. I am not sure I'll even relax once I hold my baby tbh and it's an awful feeling knowing that being pregnant, even this far along, doesn't mean I'll get to take my baby home at the end.

There is a Facebook group, 'Life After PROM Loss' which I have just joined. It's very informative, I wonder if it would be helpful to you?

Good luck! :hugs:
 
I saw lupus in your title so I'm just throwing my thoughts in....

I have lupus antibodies. I had no clue I had them and I have never had lupus symptoms. They are what caused my baby's heart block. I don't know much about the other stuff and I'm wondering why you included lupus in your title? :flower:
 
Lupus IS SLE and the OP has it. APS can be a part of lupus and is linked to lupus, although you can also have APS on it's own. The OP has both Lupus and APS. APS is the 'part' of lupus which is most likely to cause pregnancy problems and can cause recurrent miscarriages, amongst other pregnancy problems. If you have APS and aren't medicated, there is only a 20% chance of having a successful pregnancy.
 
:shrug: I didn't know not having lupus. It's very strange. I have the antibodies, but no symptoms. My doc says that it can happen like that and that's why no one ever really knows unless something like this happens.
 
Hi, I am sorry for the loss of your daughter. .

I am questioned as to whether I have SLE at the moment (originally they said I did) but I do have APS and hava had pPROM

I had three healthy children, then one loss of twins, didn't try again for almost 6 years and then got pregnant again with twins. I had pPROM at 14+5 and eventually had my wonderful daughters at 23+5. The first twin was affected badly by infection that had been undetected and the second twin sadly got a bleed in her lung at 9 days old and we had to let her go. She was just too early. They were both small for gestational age, although measured within the right dates. (Megan was 1lb 2 at birth, Imogen 1lb 4)

I also had bilateral pulomonary emboli when pregnant with the girls and have since had an early miscarriage whilst still on clexane for that, but not on asprin.

APS can cause pPROM, as blood clots in the placenta can cause it. Also, bleeding can, either because it is caused but a clot somewhere or because it weakens the membranes. However, the hospital have still tried to tell me the pPROM was most likely caused by infection, even though swabs showed me clear at the time of rupture and further swabs also did. They should have taken my placenta at delivery so it could be tested, but they didn't, so I'll never know if there were clots in it.

I am now pregnant again, 26+4 and on asprin since TTC and clexane as soon as I got my BFP. I am terrified beyond all belief, but hopeful that things will be OK. Originally I thought once I got past 15 weeks I'd feel better, but I didn't. Then 24, but I didn't. I have also now been diagnosed with Gestational Diabetes, which just adds further complications, including some which overlap with the APS. I am not sure I'll even relax once I hold my baby tbh and it's an awful feeling knowing that being pregnant, even this far along, doesn't mean I'll get to take my baby home at the end.

There is a Facebook group, 'Life After PROM Loss' which I have just joined. It's very informative, I wonder if it would be helpful to you?

Good luck! :hugs:

Hi, I am in that group! It is very helpfull... Thanks for all your help, its good to know you are not alone but also bad.... I am so sorry for your loss xxxxxx:hugs:
 

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