elises_mumma
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My Gastroschisis baby Elise born 34+3
My name is Sarah and this is the story of my baby girl Elise Carole, When i was 12weeks i went to my first scan and being terrified before the scan i had a feeling something was wrong....I was right we found out that Elise had something called Gastroschisis.
(where the tummy stops forming and the bowel and other organs form on the outside of the body)
On finding this i burst into tears cus i had seen it on OBEM! I couldn't believe this was happening to me... at 16weeks we found that her bowel was starting to swell so i had to have more and more scans.. at 26weeks we found that her bowel had collapsed and come out of her tummy more, this caused more swelling. I was told that she could have a blockage there or a twist in the bowel so i would be sent to a specialist hospital in Southampton Neonatal unit.
I was put under alot of stress at this point not knowing what was going on with my baby. I was told that she was showing signs of distress at 33weeks, then got told she was going to be delivered by section (i was gutted) I had to wait a week before Elise was born, on 21/3/11 at 15:55 Elise was born.
She weighed 5lbs 12oz and had to be put on a breathing tube right away. I didn't see my girl for 11hours after she was born cus they needed to operate right away but they couldn't get all the bowel in.
(she had her large intestine, small intestine, gaul bladder, appendix and some of her tummy on the outside)
When they were finished they told me they had to unpick the bowel from the hole as it had stuck to the defect, and they found she had a dead bit of bowel that had twisted and come apart so she couldn't poop.
(there was nowhere for it to go!!)
She had full closure after 2 days of her bowels being in a Silo. She was loosing too much fluid from the hole so they had to poke it in. After this she was put on a TPN and we tried taking her off the breathing tube. (WORKED 1st TIME!!) She just had the oxygen prongs for 5 days after! Elise was 6 weeks old before they even thought about operating, but nevertheless on 4/5/11 she went for her surgery a grueling 5 hours later she came out, she wasn't doing well at first, she was in shock and by this time she was actually addicted to morphine. We weaned her off it slowly.
After 2weeks recovery from the surgery she was allowed to have milk and 1 week after that she was fully on the breast and ready to come home!! So after 9weeks in Neonatal she was finally home.
But the problems didn't stop there.
We found that she has a milk protein intolerance. So i had to stop breastfeeding (Gutted again.)
She has been admitted 6x to our local and once to her birthplace due to her tummy not being right... but for a little while she was doing so well until a few days ago when we learnt that she could have narrowing where her scar is on the bowel.
But!! Through out all this Elise is the happiest baby I have ever seen! You can never tell what she has gone through!!
I feel like its still my fault sometimes but doctors have no idea how this is formed or how this is caused. People tell me I have been so strong with all this as i was cleared of PND when elise was in the hospital.
Thank you for taking your time in reading this!
xxx
My name is Sarah and this is the story of my baby girl Elise Carole, When i was 12weeks i went to my first scan and being terrified before the scan i had a feeling something was wrong....I was right we found out that Elise had something called Gastroschisis.
(where the tummy stops forming and the bowel and other organs form on the outside of the body)
On finding this i burst into tears cus i had seen it on OBEM! I couldn't believe this was happening to me... at 16weeks we found that her bowel was starting to swell so i had to have more and more scans.. at 26weeks we found that her bowel had collapsed and come out of her tummy more, this caused more swelling. I was told that she could have a blockage there or a twist in the bowel so i would be sent to a specialist hospital in Southampton Neonatal unit.
I was put under alot of stress at this point not knowing what was going on with my baby. I was told that she was showing signs of distress at 33weeks, then got told she was going to be delivered by section (i was gutted) I had to wait a week before Elise was born, on 21/3/11 at 15:55 Elise was born.
She weighed 5lbs 12oz and had to be put on a breathing tube right away. I didn't see my girl for 11hours after she was born cus they needed to operate right away but they couldn't get all the bowel in.
(she had her large intestine, small intestine, gaul bladder, appendix and some of her tummy on the outside)
When they were finished they told me they had to unpick the bowel from the hole as it had stuck to the defect, and they found she had a dead bit of bowel that had twisted and come apart so she couldn't poop.
(there was nowhere for it to go!!)
She had full closure after 2 days of her bowels being in a Silo. She was loosing too much fluid from the hole so they had to poke it in. After this she was put on a TPN and we tried taking her off the breathing tube. (WORKED 1st TIME!!) She just had the oxygen prongs for 5 days after! Elise was 6 weeks old before they even thought about operating, but nevertheless on 4/5/11 she went for her surgery a grueling 5 hours later she came out, she wasn't doing well at first, she was in shock and by this time she was actually addicted to morphine. We weaned her off it slowly.
After 2weeks recovery from the surgery she was allowed to have milk and 1 week after that she was fully on the breast and ready to come home!! So after 9weeks in Neonatal she was finally home.
But the problems didn't stop there.
We found that she has a milk protein intolerance. So i had to stop breastfeeding (Gutted again.)
She has been admitted 6x to our local and once to her birthplace due to her tummy not being right... but for a little while she was doing so well until a few days ago when we learnt that she could have narrowing where her scar is on the bowel.
But!! Through out all this Elise is the happiest baby I have ever seen! You can never tell what she has gone through!!
I feel like its still my fault sometimes but doctors have no idea how this is formed or how this is caused. People tell me I have been so strong with all this as i was cleared of PND when elise was in the hospital.
Thank you for taking your time in reading this!
xxx
i know it s the 1st or every month... xxx
