Sjogrens :( Anyone dealing with this?

mom2pne

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I am scared for my twins, Peyton and Eli. Eli has been diagnosed with that as of today and with Peyton being his identical twin he could have it too. :growlmad: It could also mean another autoimmune disease as it usually is associated with another like rheumatoid arthritis or lupus for example.

Eli has to see rheumatologist. But glad we have a reason why he kept getting infected saliva glands.

Oh about the disease itself....

9 out of 10 patients that have it are woman, so him being male and only 8 years old is avery surprising diagnosis.

It causes the white blood cells to attack anything that produces liquids like saliva glands, tear glands, etc.

It also can harm the liver, kidneys, thyroid, etc.

It also can cause lymphomas. So very scary.
 
Hi there. I'm sorry about his diagnosis.i don't know much about the disease itself my only experience with it was a lady I looked after on a clinical placement at a nursing home. She had Sjögren's and was in quite a bit of pain and had a dry mouth a lot.however she was 96! So she managed to get through all those years and have a happy life.i really think her complaining was 50% pain and 50% being really old.i don't mean to worry you with my experience I just thought any input might be useful to you.particularly knowing it doesn't seem life limiting
 
My mom was diagnosed 10 years ago. She was controlled with nivaquin until she developed temporal arteritis. Now she uses cortisone to control both.
 

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