Torticollis/Plagio

[BoyorGirl]

Hi there, I am looking for any support from Moms who have had babies with torticollis which resulted in plagio (flattened head syndrome). At our 2 month old Drs visit, we spoke with our doc how we were noticing our son tilting his head to the rt in his car seat constantly, but the biggest thing we wanted to address was that his eyes were asymmetrical! Looking at our baby dead on it was not that noticable, but when we held him up in front of a mirror you could really see that his rt eye was far more pronounced then his left eye! Almost like it was open wider and the orbit itself was bigger. We were referred on to a physio specialist who taught us how to do stretches with our baby to loosen the tighten muscle from torticollis! She said that as long as we keep doing the stretches and keep our baby off the flat spot that resulted from the torticollis from him having his head always in one position, everything else should resolve, including the asymmetry of his eyes! Well, we have now been doing the exercises excessively for 2 months, tummy time, repositioning etc, the whole bit and although we have seen improvement with his neck muscles, only slight improvement from his eye is apparent! It has opened up a bit more but still the asymmetry remains! It is so frustrating and though I know it is not a life or death issue, I am at a loss cause I feel I have been putting 100% into this everyday! Has anyone experienced something similiar? Will the eye asymmetry resolve over time with physio etc or should I seek another opinion?? possible helmet for plagio? Although I feel his flat spot has improved greatly.

 

[KatieKoopa]

Ella has both torticollis and plagiocephaly. Her spot didn't improve enough with repositioning and physio so we ended up going the helmet route. I am so glad we did as we now have about 2.5 weeks left and her head is perfect. She had slight facial asymmetry and slight ear asymmetry that has corrected itself with the helmet. I write a blog about it in my signature! Let me know if you have any specific questions.

 

[swalumni]

Our LO was diagnosed with torticollis at 4 months in his neck, arm and thigh muscles. He receives in home weekly physical therapy. We make the effort every day to help him develop his skills but its hard. We've already seen improvements though.

 

[Lovingmybaby]

My son was diagnosed with both at 2 months of age and received physical therapy from the time he was 2 months till a year old and wore a helmet for 6 months and now you cant tell he ever needed it except he has an ear that is asymetrical...It can be a very stressful time when your baby wears a helmet but its will pass quickly..I actually miss seeing my son wear his..Also my son is developmentally delayed..He is at an 8 months developmental level and he is almost 14 months old...