any parents with children with SCIDS or immunodeficiencys?

c1reid

mummy to teigan and bump
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hey,my name is claire.im new to BnB and joined as im pregnant but came across this forum. My story is i have a beautiful,amazing daughter who also has ADA-SCIDS or the nickname for it is 'boy in the bubble disease'.This is a rare genetic condition that affects her immune system in the sense that she does not have one.... she was diagnosed when she was 2 and is now nearly 6. would love to speak to any parents who's children have similar problems.
 

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