Anyone else declined testing for downs Syndrome?

[FlowerFairy]

Had my booking in appointment today and after careful consideration we decided to decline blood testing for Downs.
I think the length of time it takes to give a definate answer if the ratio is high makes me feel i wouldnt want to think about ending the pregnancy then.
Anyone else declined? xx

 

[_Lexi_]

I had the cvs test today after being given high results yesterday. I should get the results Wednesday/Thursday, so not long to wait. With the amnio it can take up to 3 weeks though as they need to grow the cells x

 

[Sarah27]

No but I wish that I had!

I have one LC who was low risk for DS (Tested on bloodwork)
One angel stillborn at 36+5 low risk for DS (Tested on bloodwork)

With my rainbow I got given 1:5 for DS.. with nuchal and bloodwork. No one explained to me the implications of getting a high risk restult.. and TBH i didn't think about it as I am 28 years old so not in the high age risk range.

I found out at 11 weeks that about our odds and after two failed attempts at cvs I finally had a successful amino on Friday at 16 weeks. Which is hard now as the baby is moving and I do actually look pg..... Thats a full 6 weeks of waiting and wondering what the outcome is going to be.. its been a complete nightmare, especially considered we have had a stillborn baby.
They have also tested for other trisomy problems such as edwards, potters and turners in the amino but that also takes 2 weeks to grow the fluid and cells, which is good to know but wouldn't really think about them otherwise... And to think I could nearly be 18-19 weeks when we get those results its far too much to take too late into a pregnancy.

For any future pg if we have any I shall be declining DS testing.. From what I have seen there are many false positives for this and soo many people get wonky blood work and an ok nuchal fold or the other way around......

Sorry I have garbled a bit there but thats just how I feel xx

 

[amore]

I declined with my first and I have declined again this time. Even if I had the test and it came back high risk I would still keep the baby but would then be worried when everything could be perfectly fine so it was an easy decision for me to make.

It must be so hard for you Ladies that have had the test and have high risk results and then you have to make such difficult decisions which I know I couldnt handle. I really hope your little ones are ok -big hugs x

 

[FlowerFairy]

No but I wish that I had!

I have one LC who was low risk for DS (Tested on bloodwork)
One angel stillborn at 36+5 low risk for DS (Tested on bloodwork)

With my rainbow I got given 1:5 for DS.. with nuchal and bloodwork. No one explained to me the implications of getting a high risk restult.. and TBH i didn't think about it as I am 28 years old so not in the high age risk range.

I found out at 11 weeks that about our odds and after two failed attempts at cvs I finally had a successful amino on Friday at 16 weeks. Which is hard now as the baby is moving and I do actually look pg..... Thats a full 6 weeks of waiting and wondering what the outcome is going to be.. its been a complete nightmare, especially considered we have had a stillborn baby.
They have also tested for other trisomy problems such as edwards, potters and turners in the amino but that also takes 2 weeks to grow the fluid and cells, which is good to know but wouldn't really think about them otherwise... And to think I could nearly be 18-19 weeks when we get those results its far too much to take too late into a pregnancy.

For any future pg if we have any I shall be declining DS testing.. From what I have seen there are many false positives for this and soo many people get wonky blood work and an ok nuchal fold or the other way around......

Sorry I have garbled a bit there but thats just how I feel xx

Not garbled at all. So sorry for your loss this post sums up mexactly why I have declined testing . I wish you all the luck in the world

 

[mummy2b2010]

hi hun, i declined the downs syndrome testing with my LO and will be doing it again this time....for me no results will make me terminate my pregnancy so i think it would be a waste of time and worry for me that would be pointless (this is just my opinion)

one of my very good friends had a low score (very high risk)...she went though the emotional turmoil of having an amnio and as she is 38 years old being told by numerous drs and midwifes that the chances are very high of being born with downs, she was obviously devistated but was willing to go through with it and her son Ross is now 15 months old is the happiest healthiest little boy youll ever meet without a hint of downs.

I believe some people get misleading results that end in unnessisary worry sop if u are not concerned then i would just enjoy your pregnancy.

this is not at all meant to offend anyone who has decided to have the test, this is just my personal opinion and experience from my best friend. xxxx

 

[FlowerFairy]

I declined with my first and I have declined again this time. Even if I had the test and it came back high risk I would still keep the baby but would then be worried when everything could be perfectly fine so it was an easy decision for me to make.

It must be so hard for you Ladies that have had the test and have high risk results and then you have to make such difficult decisions which I know I couldnt handle. I really hope your little ones are ok -big hugs x

i also declined with my other 2 boys. I don't want to ever have to make a decsion like that

 

[FlowerFairy]

Thanks Ladies. Good luck to those who have tested.
I have heard too many ladies get high results and have weeks of worry and further evasive testing to find the baby had no hint of Downs. I want to enjoy this pregnancy as much as possible and I am only 29 so not in the highest risk level.
I'm not naive that baby could have DS but if that happens we will love our baby no matter what. x

 

[_Lexi_]

Don't think age has anything to do with it. I'm only 23 and have no history of it in my family yet my results were 1 in 27, which is very high x

 

[Dorian]

I, too, have declined testing for Downs or any other problems. This baby will be loved regardless and I don't want to have a high risk number come back, and just worry and worry for the next months ahead.

Good luck to those of you who have and have come back high risk though. ((HUGS))

 

[Mummy of Ange]

I have declined in the past and will be declining again. Even if they told me high risk, i would still continue the pregnancy, so personally i dont see the point x

 

[Charlie_x]

Yes i declined it with both of my boys and i would decline it again

 

[legs11]

I declined as if it came back high risk I would just worry for 6 months and I knew I would never have an amnio so didnt see the point.

It was a really hard decision but felt so much better once I had made it!

 

[future_numan]

We have also declined to test for anything.. here in Canada they strongly suggest amino or cvs test over the age of 35 ( which I am )
I thought about it for a time but decided we will take what God gives us and love him/her no matter what !

 

[MrsPMP]

I will be declining tests like amnio etc, anything with miscarriage risk[my aunt had amnio at fifteen weeks, just found out a month later that her baby died at fifteen weeks even tho shes now nineteen weeks pregnant....so it was probably caused by amnio.

 

[avellana]

I'm not getting any additional testing for Downs Syndrome (besides the 12week ultrasound) because it does have risk, the U/S results were ok, and in this country, believe it or not, there's no legal way to terminate a pregnancy

 

[megangrohl]

I declined it because I will love the baby no matter what happens but that's just my personal preference.

 

[xAmiixLouisex]

I declined. Since it wouldn't make a difference to me. I also think if it came back high risk it would put a bit of a downer on your pregnancy, with all the worry and stuff.

People say they'd like to be prepared. But, I personally think even if you knew you would still be in shock when the baby was born. My mom was told my brother had cleft lip and palette at her 20 week scan. She pushed it to the back of her mind through out the rest of her pregnancy and although she pretty much knew already when he was born. It was still a major shock to her and took her a few days to come to terms with it.

 

[Lillou]

I am likely going to decline testing

 

[Ju_bubbs]

I have declined it all 5 times. If I had the tests and they came back high risk, I wouldn't want to take the risk of miscarriage that is involved with further testing - amniocentesis(sp?) etc and I'd certainly not consider terminating.. so the only thing I would get out of the tests is possible unessecary worry for the rest of my pregnancy!

IF the first stage of testing was able to give a definate answer about downs syndrome, I may have considered, purely so that I could prepare myself for caring for a downs baby, but without a definate answer, there was no point for me.