Anyone else have uterus didelphis ?

[Justkeeptryin]

Hi, previously I'd been told that I had a bicornuate uterus. Sadly I miscarried and only when I had a D&C was I told that I am not bicornuate but actually have uterus didelphis which is complete duplication. I have two seperate uterus each with their own cervix(I only have one vagina though so never knew anything was different). Its apparently so rare and Im waiting to see a consultant and attend teh recurrent miscarriage clinic. My two miscarriages have been early at 5 weeks and then 9 weeks so I suspect low progesterone. But this uterus is worrying me aswell as it is also high risk and linked to later miscarriages, premature birth and c-section being required. Just wondered if anyone else out there has this? x

 

[JaydensMommy1]

That is rare. Ive worked in an ob clinic for seven years and never seen it but have heard of it. I know the medical study my doctor told me about was that they removed one uterus/cervix so that when the woman did become pregnant the hormones were released to the proper uterus etc. Is that an option for you, have they discussed this? It's good your being referred, most of the time (approx 90%) the problem will be fixed and women go on to have healthy babies. Good luck him let me know!

 

[lizziedripping]

So sorry for your losses hun You are a brave lady who is deserving of some happiness now. I don't have experience of your condition, but just wanted to wish you luck on your journey to become a Mom. Take care xxx

 

[hazybaby]

I have this and I've recently found out I'm pregnant. I'm going to make a doctors apt to discuss it. I was referred to a specialist when it was first discovered and she said that yes there was a higher risk of miscarriage but only slight and can occur later on in the pregnancy due to an incompetent cervix. I've read up on UD and of all of the uterine anomalies, women with UD have a better chance of a successful pregnancy because although everything is duplicated the uterus itself is structurally sound. Hope this info helps, nice to hear I'm not the only one with this.

 

[saramum]

I just found out I have a unicornuate uterus and I have 2 little girls. The second pregnancy was very problematic but we made it through... I asked my doc about future pregnancies and he wasn't too concerned. Stay positive.
I hope things will work out for you.

 

[dejager]

Hi, previously I'd been told that I had a bicornuate uterus. Sadly I miscarried and only when I had a D&C was I told that I am not bicornuate but actually have uterus didelphis which is complete duplication. I have two seperate uterus each with their own cervix(I only have one vagina though so never knew anything was different). Its apparently so rare and Im waiting to see a consultant and attend teh recurrent miscarriage clinic. My two miscarriages have been early at 5 weeks and then 9 weeks so I suspect low progesterone. But this uterus is worrying me aswell as it is also high risk and linked to later miscarriages, premature birth and c-section being required. Just wondered if anyone else out there has this? x

I too have UD. I found out last year having an ultrasound due to kidney pain... found out I only have my left kidney. After doing some research I requested a pelvic ultrasound and they discover the double uterus, and confirmed it with a MRI which also saw a double cervix, which is hidden from a physical exam.
I went to see a doctor in Brigham Women’s Hospital in Boston, but they were unable to do some tests on me due to the muddled anatomy past my one visible cervix. Right now I am in a “wait and see what happens” stage and only last month coming off birth control to try and get in tune with my body so when I try and get pregnant I’ll know optimal times etc. I am charting my BBP and with that you can see when you ovulate and also count your luteal phase so see if there might be a problem with miscarriage. I read on here that taking vitamin B6 and B12 are good with low progesterone: https://www.babyandbump.com/ttc-gro...gthen-luteal-phase-increase-progesterone.html Hope that can help!
There is a group on Facebook for UD that is interesting.

 

[DarlingMe]

I have a BU, but when reading this came up sometimes too. It sounds like miscarriages commonly occur with either condition because the fetal pole/placenta attaches to the uterine wall and the abnormal uterine wall may not be capable of holding a placenta. The blood flow isnt always intact and the tissue may not be strong enough to hold a placenta. It may have alot to do with where your previous pregnancies were implanted, and maybe not hormonal. But definately worth looking into your hormone levels!

I had a patient in nursing school that had this. She had just had her 2nd pregnancy when I was taking care of her, about 2 years apart, and each pregnancy in a different side! She had 2 cervix and did not have to have a c-section with either, which can be common as well. I hope they are able to find some answers for you!

 

[Justkeeptryin]

Thanks so much everyone for replying, it makes me feel so much beter that Im not alone. I had an appointment last week at the recurent miscarriage clinic to get blood taken and the midwife there has never seen anyone with this condition. I was having to explain to her all about it.
What I do know however is that its not linked to early miscarriages, I have something else going wrong. So will be interested to see what results come back. Just need to wait 6-8 weeks though for results which is a killer.
Also since my first post here I have been for a kidney scan which sure enough showed I only have one kidney at my right side. Its bizarre that Im finding all of this out now, I've reached the age of 29 before this has came to light.

 

[DarlingMe]

The specialist I was seeing said that kidney problems are very common with this as they all develop at the same time. Just curious any ear problems? The external ears form at this time too. I have an extra kidney ureter they found and attributed to all of this.

I thought first and second tri miscarriages were a risk but I guess not. I hope that you don't have anything else major going on and you get some fast blood results, 6-8 weeks would kill me! Keep us posted and good luck!

 

[Justkeeptryin]

The specialist I was seeing said that kidney problems are very common with this as they all develop at the same time. Just curious any ear problems? The external ears form at this time too. I have an extra kidney ureter they found and attributed to all of this.

I thought first and second tri miscarriages were a risk but I guess not. I hope that you don't have anything else major going on and you get some fast blood results, 6-8 weeks would kill me! Keep us posted and good luck!

Hi, its funny you should mention ears. I hate my ears as they stick out. At least I have long hair to cover them. How bizarre if that was linked because they form at the same time. Other than that , I have been experiencing labyrinthitis when I fly now. An inner ear disorder that affects balance.
I will post my results when I get them x

 

[JaydensMommy1]

Hey! How r u???

 

[funkym]

Hi - I also have a double womb, sadly i've had a few mcs but also have a little boy who is 2 and i'm currently pregnant again (in the opposite womb from having my son)!! xx

 

[mztova]

Hi, I also have DU. Fertility clinic diagnosed me originally with Bicornuate Uterus and my OB found they were mistaken and that I actually have BU.
I am carrying my first baby in the right side which is the bigger of the two. So far so good and I am almost 28weeks.
The only "thing" that has happened I found out this past Tues at my OB and I also have U/S each visit...
I have decreased blood flow to the placenta, so I am now off work until I give birth. My OB said she isn't convince this has anything to do with the DU. Anyone could have this.
So I am on restricted activities..which means lots of laying/sitting on the couch.
Its nice to see this post and have other that have the same thing that I have....
Hugz to you all
Tova

 

[Justkeeptryin]

Another success story in the news last week...yet another woman thats had twins..one in each womb. It gives hope to us all x
https://www.dailymail.co.uk/news/ar...boys--uterus--beating-odds-50million-one.html

 

[dejager]

And another one in Florida just had twins!
https://www.huffingtonpost.com/2011/09/20/andreea-barbosa-twins-uterus_n_971911.html#comments

 

[lisaharstad]

Yes, I too have a didelphis uterus. My right side was blocked which caused me to have endometriosis. Before I had my first child, I had the vaginal septum removed. My first pregnancy was normal until delivery. After my first delivery, I had to have a blood transfusion. My second pregnancy was normal and the baby came three weeks early. Delivery was normal. My third pregnancy was a tubal pregnancy that burst and I had to have emergency surgery. My tubes are now tied. I have very bad cramps.

 

[Justkeeptryin]

Hi, thanks for posting. Its great to hear of another person that has had success with uterus didelphys. After my two early miscarriages this year I was told that they were unlikely to be caused by the double womb. Sure enough blood tests have revealed that I have a blood clotting disorder which appears to be the cause. I still worry nonetheless about the double womb potentially causing problems aswell. I love to read all of the success stories out there x

 

[Justkeeptryin]

Hi for those that posted on here to say that they also had uterus didelphys would you mind please posting how this was diagnosed.
Im resally confused right now and worried that I may have been misdiagnosed. Originally I was told that I was bicornuate, then at my D&C they said it was didelphys as I had two wombs each with their own cervix. Now when I've asked for further testing I seen a consultant on Monday. He done an hour long investigation by vaginal ultrasound and also used a telescope thing. He noticed that there is def. two cervixes but he can only see a normal size womb, he couldnt see a second womb.So Im now referred for an MRI and hysteroscopy under anaesthetic. Also found an upper vaginal septum.
I know that normal ultrasound is not ideal for dignosing which anomaly it is but Im now worried that its a full septum that I have splitting a normal sized womb into two. Doctors seem to think that if there is two cervixes it always means two wombs but Ive since discovered that this is not the case.Im worried if its a septum that I will need surgery for it to be removed.Apparently didelphys and sepate are confused all the time.
Heres what I know for sure:
-At abdominal scans it shows as slightly heartshaped at the top..this is why they thot bicornuate.
-At my D&C they said two completely seperate wombs each with a cervix
-Upper vaginal septum
-Only one kidney

 

[DarlingMe]

Hi for those that posted on here to say that they also had uterus didelphys would you mind please posting how this was diagnosed.
Im resally confused right now and worried that I may have been misdiagnosed. Originally I was told that I was bicornuate, then at my D&C they said it was didelphys as I had two wombs each with their own cervix. Now when I've asked for further testing I seen a consultant on Monday. He done an hour long investigation by vaginal ultrasound and also used a telescope thing. He noticed that there is def. two cervixes but he can only see a normal size womb, he couldnt see a second womb.So Im now referred for an MRI and hysteroscopy under anaesthetic. Also found an upper vaginal septum.
I know that normal ultrasound is not ideal for dignosing which anomaly it is but Im now worried that its a full septum that I have splitting a normal sized womb into two. Doctors seem to think that if there is two cervixes it always means two wombs but Ive since discovered that this is not the case.Im worried if its a septum that I will need surgery for it to be removed.Apparently didelphys and sepate are confused all the time.
Heres what I know for sure:
-At abdominal scans it shows as slightly heartshaped at the top..this is why they thot bicornuate.
-At my D&C they said two completely seperate wombs each with a cervix
-Upper vaginal septum
-Only one kidney

I was told I have a BU. Diagnosed during pregnancy. From what I have researched, the uterus forms with two cavities that join together. There is a middle part of tissue that disolves in a normal uterus and opens into one cavity. With cases like these the extra tissue does not dissolve for whatever reason. in your case the middle part of your septum could have dissolved while the rest remained. It is hard to diagnose and an MRI is supposed to be the most accurate. There are so many different degrees of all the uterine anomalies that there really is no cut and dry diagnosis in some cases. The kidneys are also formed at the same time as the uterus so kidney abnormalities are common as well. I have two tubes from my kidney to my bladder on one side.

I was told at 12 weeks I had a large cyst growing pushing on the placenta. After seeing a specialist I was told it was the right horn of my uterus filling with fluid. The septum had blocked it from filling on my 7 week. My placenta grew on the middle septum and was a very large placenta I was told during my c-section. We saw a specialist 3 times in addition to regular scans to monitor for growth restriction and placental growth. LO was also transverse until about 34 weeks then breech. LO was a healthy 39 week scheduled section. The doc and the nurses were all intrigued by the placenta and uterus since it isnt an every day occurence.

I would be sure that surgery is absolutely necessary. Although you had a m/c it may or may not have anything to do with this diagnosis. Most women with these anomolies, depending on the degree, have c-sections anyhow. So if you can sustain a normal pregnancy you will have to have surgery to either correct the anomoly or deliver a baby. I was told I can have surgery to correct this but I really dont see the point unless recurrent m/c become an issue, but every case is different.

 

[aimadinging]

I asked my doc about future pregnancies and he wasn't too concerned. Stay positive.